Well, toward the end of '07 it was looking like I was going to have to seriously consider surgery, but we're going to try a different tact.
I have been doing well since I finished the five week course of iron injections and got the anemia under control and upped the Prednisone to 40 mg a day. I discussed with my GI that the Remicade has been doing wonders, but I start to bleed a little and get some mucous and feelings of urgency after about 4 or 5 weeks. So I am going to have my next infusion this weekend, hopefully (insurance permitting, of course) which will be 6 weeks and then put me on a 6 week schedule.
A few days after the infusion we're going to start tapering me off the Prednisine, but this time, when I get down to 15 mg, which is when I start to have problems, it will be close to the time for the next infusion AND he's going to also try introducing Entorcourt to help bridge me through the Prednisone taper. So with any luck this will do it and I'll just be on the Remicade and Lialda and finally off the Prednisone in a few months. Fingers crossed.
He also did blood work this morning to make sure my iron levels are where they ought to be, I am going to have another bone scan, but I have to wait til the end of June, insurance won't pay for them closer than two years apart. GI also told me to make sure I keep up with taking a multi vitamin with folate.
So that's where things are for now; I had a really rough few months from Sept through Dec., but hopefully I'll be able to get this darn thing under control finally.
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections;
9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)