I went. There about 10 of us, 8 with CD and myself and one other with UC. The other UC-er had just had surgery with a surgeon I am actually meeting with soon, so we chatted a little, but not a lot. The CD-ers, on the whole, were all quite ill. I think all of them were on remi or humira and many of them had fistulizing disease that had lead to bowel perforations. So, on the whole, the meeting kind-of scared me, to be honest. Not so muuch because of the diseases but because of the way the people seemed impacted by the diseases. A lot of people seemed either angry or resigned to a difficult life, like they'd thrown in the towel. At one point, when a woman with CD told me a story aobut her bowel perferating (which was how she got diagnosed with CD!!!), I said "I am so sorry," and the moderator looked at me and said "see what you have to look forward to?!" I actually stared right back at him and said I disagreed, and basically didn't speak to him the rest of the night. I understood that they were struggling with a lot of issues that are difficult and depressing, I am not denying that. But I just felt like no one seemed to feel any sense of optomism, and that made me not want to return. so, as much as I am hoping to find someone with UC that I can talk to face to face, I don't think it will be among that group of people. I hope that doesn't sound awful of me to say...
Pancolitis dx 3/07
9 Colazal a day (used to be on 12 Asacol, don't think Asacol helped)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.