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honey bee 123
New Member


Date Joined Mar 2007
Total Posts : 19
   Posted 1/22/2008 7:18 AM (GMT -6)   
is it true that proctitis can turn in to pancolitis. xxx
plus aloe vera juice


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/22/2008 7:39 AM (GMT -6)   
Honey bee, it can happen but the majority of the time it doesn't spread. In about 30% of cases, proctitis will spread beyond the rectum, but not always to the entire colon. Check the resources thread on this forum, there is some really good, complete information there.
Judy
 UC Forum Moderator
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/22/2008 8:03 AM (GMT -6)   
I will give my experience. I had left-sided UC for maybe 7 years, mostly in one spot. Then the next scope I had, it was all in my rectum. It has stayed there for 5 years and did not spread.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm


honey bee 123
New Member


Date Joined Mar 2007
Total Posts : 19
   Posted 1/22/2008 8:32 AM (GMT -6)   
thanks for both ur comments its made me feel better i have been really worring about it xxx
17 right sided colitis proctitis not in remission
3 asacol twice a day, aloe vera juice, garlic pills, multi vits, vit c and zink and cod liver oil.


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/22/2008 10:38 AM (GMT -6)   
The impression seems to be that pancolitis is worse than left-sided or proctitis....that's not true. The location of ur UC is not the most important determing factor in how bad your symptoms are. UC could spread to you entire colon but you could have mild symptoms. But it could be confined to your rectum and you could have aggressive UC.

Of all the people I've spoken to who had surgery there are more left-siderers than pancolitis-ers. I take the point that that could be influenced by left-sided having a higher incidence than pancolitis. But I stand by my comment. I don't think location is a major factor in how bad your UC "feels"
800 mg Asacol a day
500 mg Asacol suppository now and then!
Fibre supplement, Iron supplment,Probioitcs
Balanced Diet, Reduced Stress
 
"There is no greater tragedy in life than doing nothing for fear of doing too little. May you live all the days of your life."
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 1/22/2008 1:25 PM (GMT -6)   
I agree with you Damo...

There are many who don't deal with their symptoms or don't even have symptoms.

Just because the info "out there" say a low percentage of ulcerative proctitis doesn't become pancolitis or even spread above the original site of diagnosis...it doesn't mean it won't happen to you.

Throw stats out the window if you're relying on them in hopes.

I had a doctor say to me he didn't think I would have PSC (primary sclerosing cholangitis) because I'm female...well, I have it. I told him stats won't change what's going on in my body.

I'm a firm believer in using my meds...and do believe that the 5ASA meds are amazing if you can take them. The only downside is that I have to take them...lol!

q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/22/2008 1:34 PM (GMT -6)   
I agree with what Damo said as well. Where your UC is doesn't necessarily mean it's less severe or more severe than in another place. Same goes for Crohn's vs UC - one isn't necessarily worse than the other, except that Crohn's can hit anywhere in the GI tract and UC is only in the colon. Same thing for IBS vs IBD - a severe case of IBS can cripple people more than a very mild case of IBD.

No matter what type of UC you have, inflammation always (nearly always) starts in the rectum and progresses upward. So, during one flare I could have pancolitis and during another flare, if I catch it quickly enough, the inflammation may not spread the entire way up.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
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