Surgery was the best decision for me after suffering with a 2.5 year flare. I was steroid dependent and nothing was working to gain remission. If you are considering surgery please get educated! There is a great resource discussion board at www.j-pouch.org They have threads that discuss permanent ostomys as well as kock pouches. People from the age of 5 up to 71 have opted for surgery, age nor length of time with the disease is not always a factor.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free