Hello All - Starting back on Remi after 3 month absence

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 1/24/2008 8:07 AM (GMT -6)   
Well after several infections and more diabetic foot issues we are back today for an infusion.  Glad to get it as my symptoms were returning.  I am still having severe body aches and pains and sometimes a low grade fever, but the doctor cleared me this week for an infusion.
 
On the house front, we have had to get a housekeeper since I can't do my chores the way I used to.  My new found life after colitis gave me great comfort as being participatory, but now with two major diseases and an inability to stand or walk other than for a few minutes...I now really just fill my day with PT, reading, and napping.  The fatigue and pain is gruesome - not to mention the painkillers.
 
I will give you an update after my infusion.
 
Love to all
bob 

tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 1/24/2008 8:17 AM (GMT -6)   
Hey Bob! That is great news you are cleared for Remicade. Does that usually work quickly for you? Enjoy the housekeeper....I couldn't live w/out mine!!

How's the PT on the foot going? Sending happy thoughts your way!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 1/24/2008 8:36 AM (GMT -6)   
Bob....it's hard to hear all you're going through. I hope the remicade is able to give you some much needed relief.

I understand your desire to do what you can, it's a good idea to have a housekeeper so that level of worry isn't constantly on your mind.

Feeling better thoughts sent your way,
quincy xx


*Heather*Status: mini flare Dec 28... tapered to every second night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Lonie
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Date Joined Feb 2005
Total Posts : 6448
   Posted 1/24/2008 8:45 AM (GMT -6)   
Hey Bob, just to let you know I'm thinking about you, and I hope the Remi gives you some relief from the UC. As Quincy said, I hate to hear all the pain you are enduring, and it's good that you have some help with the housekeeping. You need to concentrate on your PT and feeling better my friend. Take care, know we are always here for you.
Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


kb5
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Date Joined Jan 2007
Total Posts : 1015
   Posted 1/24/2008 8:47 AM (GMT -6)   
Hey Bob, I wish you all the best and hope the remi helps. What kind of books are you reading? We could start a little UC book club!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/24/2008 9:19 AM (GMT -6)   
Bob, I'm sending well wishes your way. I hope that the Remicade helps and that you can get back on a regular schedule with it. It sounds like getting a housekeeper was a great move and will allow you time to concentrate on other things and not worry about the accumulating dust bunnies! Take it easy and please know that you are thought of often.
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005. www.myspace.com/dmbarris
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 1/24/2008 10:50 AM (GMT -6)   
Hey Bob, Hope the remicade works for you. Sending well wishes your way
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 1/24/2008 11:09 AM (GMT -6)   

Hi Bob,

I am so sorry to hear that.  I treat myself occassionaly to having someone come in and clean my house when I am really down and out.  I just found out she is willing to come to New Jersey (I moved from Philly) when I need her.  In saying that it is such a treat but I can imagine how you feel.  It's important to feel as if we are contributing in some way.  My heart truly does break for you.  Please keep your faith and I am sure you won't give up and will find something you can offer.  There is to much for you to give as you have for me many many times.  Thank you.

Stacy


Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
Canasa when needed
 
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/24/2008 11:56 AM (GMT -6)   
I really wished you lived closer to me so I could be of some help to you my dear friend. But the most I can do is send a cyber ((hug)) your way and wish for the best. It's good to know that you've been cleared to start the Remi again - that mean things are looking up yes? Hang in there and know we are always here for you when you need us.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


Dansky
Veteran Member


Date Joined Mar 2005
Total Posts : 2844
   Posted 1/24/2008 1:23 PM (GMT -6)   
Bob,

I too am so pleased to see you back, sorry I have been missing in action, but I'm back now and pleased to see you around, take care my friend and look forward to hearing how well the Remi goes.

Dave
Dansky Co-moderator UC forum
 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!
Azathioprine, Beloc-Zok, Calcichew, Citalopram Hydrobromide, Dihydrocodeine, Mydocalm, Paracetamol, Pariet, Prednisolone, Sulfasalazine, Zopiclone.
 http://www.healingwell.com/donate/

 

 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/24/2008 1:41 PM (GMT -6)   
sad   sad sad sad sad sad Can't believe the time you are having buddy.This must be such a horrible time for you at the minute.I hope the docs are doing everything they can for you.We are sending some healing vibes your way big guy and i hope they get to work quick.
                                                GET WELL REALLY REALLY QUICK BUDDY
                                                                 Marty and family
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/24/2008 4:44 PM (GMT -6)   
Bob, I hope the Remicade works as well for you as it does for me. Sounds like you have enough other problems without the old colon acting up now.

Feel better soon.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 1/25/2008 8:46 AM (GMT -6)   

Thank you my dear friends, I really appreciate your words and hugs.  The remi went well, and I look forward to the kicking in-as it were.  I have been having blood movements with a bit more urgency again. 

I am going to a muckity muck surgeon from Johns Hopkins who does leading edge (I refuse to use the word cutting edge here) surgery.  His specialty is the charkot diseased feet and ankles - removing as much of the diseased and fractured bones and replacing with plastic and steel implants.  Bionic Bob.  I have been waiting to see him for 8 months, and I am told I will get 15 mnutes with him.  I am nervous here but the surgery holds promise.  I am told though that about 75% of the patients are not eligible for one reason or another.  We will see.  My minister/friend is taking me - Thank God.

Hope you all have a wonderful weekend. And of course...Love to All.

bob

 

 

 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/25/2008 8:51 AM (GMT -6)   
Bob you really are such an inspiration to us all.We are always here for you, like you have always been here for us.I'm praying for your health to improve soon.
Msarty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 1/25/2008 8:53 AM (GMT -6)   
Bob, I'll be praying that you are one of the patients that is indeed eligible for the surgery. Being bionic can be kind of a cool thing! I like the name "Bionic Bob!" :-) Let us know how it turns out my friend. Just one more thing; your minister friend sounds incredible. Glad that he is there to be with you.

Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Dansky
Veteran Member


Date Joined Mar 2005
Total Posts : 2844
   Posted 1/25/2008 2:07 PM (GMT -6)   
Bionic Bob, just you know that not only is your Minister friend going with you we all are in thought, I'll be praying you get fixed real soon my friend.

Take care.

Dave
Dansky Co-moderator UC forum
 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!
Azathioprine, Beloc-Zok, Calcichew, Citalopram Hydrobromide, Dihydrocodeine, Mydocalm, Paracetamol, Pariet, Prednisolone, Sulfasalazine, Zopiclone.
 http://www.healingwell.com/donate/

 

 


transformers
New Member


Date Joined Jan 2008
Total Posts : 12
   Posted 1/31/2008 10:18 PM (GMT -6)   
Bob I will also have you in my prayers. you are well accompanied by the minister and God of course, you can't go wrong!

transformers
New Member


Date Joined Jan 2008
Total Posts : 12
   Posted 1/31/2008 10:19 PM (GMT -6)   
Bob I will also have you in my prayers. you are well accompanied by the minister and God of course, you can't go wrong!

Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 1/31/2008 11:07 PM (GMT -6)   
Hey Bob. Glad to hear you're able to handle another dose of Remi before the UC kicks in to make matters more difficult.

Not sure if you've "played" on wikipedia.com before or not, but when I'm stuck at home sick and weak as a kitten I find it is great for filling in hours of time. I find you can easily bounce from article to article for ages and it keeps my mind so active I can temporarily forget how crap I feel. Maybe it'll do the same for you.

Thoughts are with ya mate,
--Sev
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 1xDesert spoon of Metamucil smooth orange 3 times a day;
    - 3xGarlic Oil caps 3 times a day, 7mL Olive Leaf Extract 2 times a day.

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