anyone have success with entocort?

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Regular Member

Date Joined Jun 2007
Total Posts : 186
   Posted 1/24/2008 6:05 PM (GMT -6)   
I am so close to remission but can't quite get there.  I just want to get better but do not want to go back on prednisone.  I tried Entocort once, but was flaring very badly and after being on it for 2 weeks and seeing no improvement my doc switched me to pred.  I wonder if I wasn't on it long enough for it to start working.  Has anyone else tried Entocort?  Did it work for anyone?  And how long did it take before improvement started?
left-sided UC
400 mg Asacol 4 pills 3 times/day lialda 1 pill 3 times/day
making some very light attempts using Rowasa enemas just cant seem to do these
iron supplements 3 times/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day

Veteran Member

Date Joined May 2006
Total Posts : 619
   Posted 1/24/2008 7:14 PM (GMT -6)   
I tried it briefly, but I discovered through a blood test that I was anemic and my Remicade infusion quit working earlier than eight weeks so I was flaring again. Going into the holidays I was feeling REALLY bad. While I was undergoing iron injections my GI took me off the Entocort and upped the Prednisone again, this time to 40 mg. (I had gotten down to 5 mg every other day). I am doing better now, but the Remicade is once again not making it to eight weeks (today was, quite literally, a crappy day!), this time though my GI is willing to try a different tact, which I had been pushing for. I am getting a Remi infusion this Saturday, which will be six weeks and I'm going on a six week schedule. We're going start the taper again a few days after the Remi infusion. By the time I get back down to the point where the taper causes me trouble I will be ready for another infusion, and this time when I get low in the taper my GI says he will reintroduce the Entocort, the reasoning being it may help bridge me from the low taper dose to getting completely off the Pred. So, while I don't yet have the info you need, I am saying don't call it quits yet on the Entocort. It's focuses on the intestine and side effects aren't as widespread or as harmful as with Prednisone, so you may want to give it another shot, especially as you had some other stuff going during the previous attempt with it.

Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)

Regular Member

Date Joined Jan 2005
Total Posts : 81
   Posted 1/25/2008 1:33 AM (GMT -6)   
I tried Entocort because I didn't want to be on pred again. The Entocort was appealing because there were few side effects. Not to discourage you but it didn't work for me. I was also on 9 mg for a little over 2 weeks. Good Luck!
Jennifer, 21
Diagnosed 2002-age 16
Imuran 100 mg
Lialda 2.4 gm
Prilosec 20 mg

Regular Member

Date Joined Jul 2007
Total Posts : 402
   Posted 1/25/2008 8:23 AM (GMT -6)   
I did a course of Entocort once for a mild flare. It worked for me. If I remember correctly, it did take about 2 weeks for it to kick in.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)

Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 1/25/2008 9:11 AM (GMT -6)   
I take entocort and it works well for me.  I never really felt any side effects from pred but this seems to be a less dangerous option.
Worked for me inside of a couple days.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 1/25/2008 3:28 PM (GMT -6)   
It worked for me, but it did take about a month for it to kick in. Give it another try, but be patient, it does take awhile to see results
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Diosmin(for leg and vein support)

Regular Member

Date Joined Dec 2007
Total Posts : 354
   Posted 1/25/2008 9:00 PM (GMT -6)   
The entocort worked for me in a matter of hours but it only lasted for about 20 days. My GI said that sometimes it doesn't work as well in the left side.
Jessica 26/F
Asacol 3pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 30 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)

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