No more meds, no more (college) books, no more colon's dirty looks!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/25/2008 8:12 PM (GMT -6)   
I officially have a surgery date: February 21st! I had my consult today, and it really made me sit back and look at how the last (almost) 2 years of non-stop flaring have really affected my life. I'm going to have to take this last semester of school off and come back and graduate in the fall, but I think its worth it. I've been so sick for so long and nothing has worked and I really couldn't believe when the surgeon said I wouldn't have any pain when having a bowel movement :). Although I may sound really excited, I'm equally nervous, I tried taking a nap after the appt today and all I could think about was the ostomy I will have for 6 or so weeks after the first stage of the surgery (doing the j-pouch) and the colonoscopy the day before...(shudder). But the possibility of being able to eventually eat what I want, where I want, along with just being able to leave my apt is almost too good to be true...AND being steroid/drug free for my wedding/honeymoon in mid/late-June! I guess it will feel like a final push of pain and fear and uncertainty followed hopefully by relief...sweet sweet relief...<sigh>
Diagnosed Fall of 2004

Meds:
Remicade 6 infusions
(Per Day):
ProBio 1
Asacol 8
Canasa 2
Rowasa 1


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5177
   Posted 1/25/2008 8:34 PM (GMT -6)   
Did you read Keith's (KS1905) recent posts about a one-step j-pouch that can be done by laparoscopic surgery? He has been looking into it to resolve his pancolitis. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 1/25/2008 8:36 PM (GMT -6)   
I hope it all goes very smoothly for you! You'll be in my prayers! Please keep us posted.

My niece had the surgery a few years back and said it is the best thing she ever did. She is med. free.
Julie - Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Biotin, Vit/Min
& Daughter 8 UC dx 08/07 Colazal, Prednisone, 6MP, Iron, Vit/Min.


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/25/2008 8:48 PM (GMT -6)   
Old Hat: I have not read that post. However I did discuss one-step and laproscopic with the surgeon. He said based on the drugs that I'm on, and the amount of bleeding/diarrhea/symptoms I'm experiencing that a one-step would not be safe or rather, not have as high a chance of success as a 2-step. As for laproscopic, I understand the incisions are smaller, however the incision I was shown for the "open" surgery was maybe 3 inches or so...which apparently helps with the removal of the colon and reduces complications(especially when its damaged from severe inflammation, apparently it can start to disintegrate upon removal...making it harder to get through the smaller incisions).
Diagnosed Fall of 2004

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (40mg taper)
Asacol 8
Rowasa 1


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/25/2008 8:51 PM (GMT -6)   
Also, thanks for keeping me in your prayers keylime! I'll update as frequently as possible. I'm waiting on the surgeon's nurse to give me some numbers of people who have had him and the j-pouch. But from what I've read on this board and others, surgery is always seen as a relief, even if there are some complications.
Diagnosed Fall of 2004

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (40mg taper)
Asacol 8
Rowasa 1


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5177
   Posted 1/25/2008 9:03 PM (GMT -6)   
Oh, right-- now I see in your signature that you've been taking Pred. That was a condition the surgeon cited to Keith as negating 1-step laparoscopic surgery. He hasn't taken steroids for a couple yrs, which is why they would consider him for that kind of procedure. Best wishes to you for big health improvement ASAP. / Old Hat

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/25/2008 9:33 PM (GMT -6)   
Thanks Old Hat, sorry about the signature. I always forget to update it until after I post something, hehe.
Diagnosed Fall of 2004

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (40mg taper)
Asacol 8
Rowasa 1


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/25/2008 10:40 PM (GMT -6)   
Visit the ostomy board here at HW....I'm sending you best wishes for all to go smooth, a speedy recovery and a fantastic IBD-free life.

Keep us posted about the surgery and recovery.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Liz&Kenny
Regular Member


Date Joined Jul 2005
Total Posts : 431
   Posted 1/26/2008 10:01 AM (GMT -6)   
Hi Carlow,

I had surgery summer 2006 and it was, like others have said, the best thing I have ever done. I am still impressed every day at how good I feel and what a change it has been. I also had a 2 step, with 10 weeks in between. I would be glad to be in touch with you, I know how it can be both really exciting and really terrifying. If you would like, you can email me at eglarson AT hotmail dot com.

I'm glad you're excited about this! Waiting for the date is so hard!

Best, Liz
Liz

Kenny's my colon, he decided to get UC in July 2004.
RIP Kenny! JPouch Step 1: 6/19/06, Step 2: 8/25/06.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/26/2008 10:17 AM (GMT -6)   
Good luck with your upcoming surgery!  I had jpouch surgery 8 years ago, best health decision I have made to date.  Just be patient with the recovery process, the early days can be difficult.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 1/26/2008 10:38 AM (GMT -6)   
good luck, i'm excited for you to get healthy!
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
Eleventh Remicade infusion End of January


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/26/2008 4:16 PM (GMT -6)   
Thank YOU so much for all the well wishes and advice guys! I really hope I can get that 2nd step taken care of in time for my wedding...but I might have to leave the bag in if it takes too long to heal. I'm a little bummed, but I will take a fully active honeymoon (eating, hiking, mountain driving, wine tasting!) with less/little intimacy than a painful, drug altered one with just as little intimacy.
Diagnosed Fall of 2004

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (40mg taper)
Asacol 8
Rowasa 1


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/26/2008 4:52 PM (GMT -6)   
I'm so excited for you! Congratulations - on your upcoming surgery, your upcoming wedding, and your upcoming graduation! Yippee!!! To finally be UC free - sweet :)

Your outlook is great! May you heal quickly.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 623
   Posted 1/27/2008 10:27 AM (GMT -6)   
You'll be toasting at your wedding, baggie or no baggie, that you and your spouse are embarking on a whole new life and a whole new way of life -- med free! What a wonderful way to start out your new life together!

Best of luck and say bye-bye to all those fricking meds and living in bathrooms.

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/27/2008 9:47 PM (GMT -6)   
yay for you getting better!
 i promise that the time you spend with the bag will not be that bad! 
Good luck, i hope it all goes well

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/27/2008 11:03 PM (GMT -6)   
Thanks again all! I meet with my dept chair tomorrow to talk to her about my decision, she's been extremely helpful and considerate these past few years. I really hope she's still around when I come back. I don't know what I'm going to do these next couple of weeks to keep me busy before the surgery, but I suppose I'll spend it researching this operation, etc, as much as possible (the curse of a formal education, I research everything now). Oh, and keeping my mother from being too much of a (overly concerned) mother, anybody else have one of those? :)
Diagnosed Fall of 2004

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (40mg taper)
Asacol 8
Rowasa 1


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/28/2008 8:30 AM (GMT -6)   
Please visit www.j-pouch.org for support and encouragement.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


cabdrivr34
New Member


Date Joined Jan 2008
Total Posts : 6
   Posted 1/28/2008 1:04 PM (GMT -6)   
Good luck with your surgery. Why are we all not having this surgery rather than suffering with flares and different meds and all the BS that goes along with this problem..

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 1/28/2008 9:09 PM (GMT -6)   
I will Sue, thanks. I've downloaded the Ostomy Handbook from the Ostomy forum here on HW too. Thanks cabdrivr, who knows eh? It took me a long time of suffering to push past that "hump". Whatever anyone's decision, just remember in the end its yours and yours alone. I guess thats why its so hard to do it voluntarily.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February)

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (30mg taper)
Asacol 8

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, May 25, 2018 7:07 AM (GMT -6)
There are a total of 2,965,858 posts in 325,284 threads.
View Active Threads


Who's Online
This forum has 162990 registered members. Please welcome our newest member, Nakuul Dhami.
383 Guest(s), 11 Registered Member(s) are currently online.  Details
John_TX, JacksWorldOGuts, wayup, Mark FW, RobLee, ddyss, fiddlecanoe, elvin, straydog, Jack & Diane, iPoop