What Probiotics Do You Use? (kind of long, sorry)

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tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 1/26/2008 9:09 AM (GMT -6)   
I have been doing a lot of research into the use of probiotics with UC and here's my understanding of them so far:
-The underlying cause of UC is not known, but its symptoms are triggered by an inappropriate immune response. E.G., our bodies think there's an infection or injury in our gut when there really isn't.
-Since the gut is populated by over 200 different microogranisms that normally exist in very specific populations, it is thought that perhaps an overgrowth of native species, or the lack of certain species, or the ratio of species, is off balance with UC sufferers, and this may be the reason our immune system begins to react inappropriately .
-In other words, the garden of our gut has some weeds! (or, not enough good plants.)

In shopping around, I have found that there are a huge number of different probiotics available, the most common being bacteria in the lactobacillus family. I've also seen some research studies online that cite e.coli as another beneficial probiotic species.

My GI's take is that probiotics may be of a benefit, but that there isn't enough good research to understand how to use them best.

I know a lot of posts have addressed this in the past, but I thought a thread to discuss specifics- what species, what dosages, was in order. If anybody has links to any research regarding probiotics and UC, I'd love a link to the info!
Erica, 31
Diagnosed July 2006, 3 days after birth of second son via colonoscopy/upper endoscopy at age 29
Currently doing well with:
125mg imuran
Asacol as preventative for cancer (does not ease symptoms)

Now in a prednisone taper (20 mg until next week)

Experimenting with:
a modified low residue diet
live culture yogurt and probiotics


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/26/2008 9:29 AM (GMT -6)   
Erica, I'm not that savvy when it comes to probiotics but I have tried a few in the past which didn't agree with me such as VSL#3 and another one (can't remember the name). But upon recommendation from someone here on the forum, I decided to try Pro-Bio from Enymedica. I have found that this helps me tremendously. This probiotic doesn't have to be refridgerated and has a shelf life of 1 year (2 if refridgerated) plus it didn't cause me to have the gassy affect that some of the other probiotics did to me.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/26/2008 10:24 AM (GMT -6)   
Erika, I tried VSL#3 first because there was some research showing that it was effective. In addition to being inconvenient to take and very expensive, it gave me horrid gas and cramping. Now I take Natures Way Primidophilus Reuteri. It's one capsule a day, easy and convenient. It contains l. rhamnosus, l. reuteri and l. acidophilus. An added bonus is that it costs me about 30 cents a day.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/26/2008 11:33 AM (GMT -6)   
I had a peek at my Pro-Bio bottle and this is what it contains:
No less then 1 Billion CPU
L. Acidophilus
L. Casei
L. Bulgaris
L. Plantarum
L. Rhamnosus
L. Salivarius

Bacillus Subtilius - no less then 3 billion CPU
L. Paracasei - no less then 1 billion CPU

total
5 Billion CPU
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


Scottishcammy
Regular Member


Date Joined Nov 2007
Total Posts : 124
   Posted 1/26/2008 12:06 PM (GMT -6)   
I have just bought the following, though I've no idea of the amounts or contents are any good!!! :-)
 
 
if anyone knows of they are any good/bad, I'd be grateful to you. :-)
Diagnosed Indeterminate Colitis 25/11/2007 (update: told by consultant 15/01/08 in his opinion definitely UC). 1 x Solofalk Enema/day 40mg Prednisolone 35mg Prednisolone 30mg Prednisolone 20mg Prednisolone 25mg Prednisolone 20mg Prednisolone 15mg Prednisolone 4g Pentasa/day

Taken off Pentasa and now on 15mg Prednisolone, Omeprazole 20mg, 2 x Calcium Adcal D3, and started 50mg Azathioprine/Imuran.


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 1/26/2008 1:18 PM (GMT -6)   
I use Pro-Bio . I like the fact that it is enteric coated and doesnt' need refrigerated. So far i like it
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


OUsooner
Regular Member


Date Joined Sep 2004
Total Posts : 80
   Posted 1/26/2008 11:59 PM (GMT -6)   
I like Natren probiotics in both powder and capsules.
Pan-colitis DX in 98
Meds:
Prednisone 20mg (tapering). Colazal, Entocort. 
Supplements:
Carlson Fish oil, Glutamine, Whey Protein Isolate,  Multivitamin-mineral, Borage Oil, Digestive Enzymes, Natren probiotics 
Diet:
No sugar, grains, dairy.  Whole foods only. Water only.


UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 1/27/2008 2:21 AM (GMT -6)   
My GI recommended I use Florastor, which has had very good results.
 


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/27/2008 12:34 PM (GMT -6)   
great timing you guys! thanks for starting it Erika - I have been trying to research this for the past 3 days. I have found medical journal abstracts that say they don't help, but a lot of UC/Crohn's sufferers seem to think they do help. Seems that VSL#3 is highly recommended and used in a lot of trials, but I find lots of references to it in the forums saying that people don't do well with it. Several people seem to do well with the Enzymedica Pro Bio and the Nature's Way Primadophilus Reuteri. I also found information (will see if i can find the link) about probiotics in fermented food working better because of the complimentary yeasts and such in the food - that don't come in the pill/powder form - these were specifically homemade yogurt, kefir & saurkraut - the homemade versions ferment correctly and completely....so - that is my research so far....will get back with links if I can find them again.

lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/27/2008 12:54 PM (GMT -6)   
http://www.healingcrow.com/ferfun/ferfun.html
this has info on living probiotics - not a medical journal, but has that "common sense" factor to it...

http://www.newhope.com/nutritionsciencenews/NSN_backs/Dec_00/colitis.cfm
long but good article

http://www.ncbi.nlm.nih.gov/sites/entrez
link to searchable database of medical abstracts

http://www.umm.edu/patiented/articles/what_role_of_diet_ulcerative_colitis_000069_7.htm
not about probiotics, but about all foods that help/hinder the intestines & inflammation

http://www.integrative-healthcare.org/mt/archives/2005/09/anti-inflammato.html
while I'm on the subject ... anti-inflammatory foods!

relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 1/28/2008 1:18 AM (GMT -6)   
This is a quick summary for IBD and probiotics from a prof. (Huffnagle) that did a fair amount of research on the subject:
 
Significant number of clinical and research studies
Genus Species Strain (one) manuf.
Lactobacillus casei Shirota Yakult (food)
Lactobacillus plantarum 299v
Lactobacillus rhamnosus GG Culturelle
Saccharomyces boulardii lyo Florastor
VSL#3
Very promising clinical and research studies
Bifideobacterium infantis

35624

Lactobacillus salivarius UCC118
Lactobacillus salivarius

433118

 
I know there is much more out there, but a good list nonetheless.  Either pubmed or google scholar is a good way to get an abstract or summary.  The results could vary by a number of factors, even getting a slightly different strain.

Now the crazy part.  I take Florastor, Garden of Life (might take this one out), Pro-bio, Ultimate Flora, Ultimate Probiotic 12/12 Formula Primadophilus Reuteri powder and recently bought Natren's Healthy Trinity.  Still discovering what works for me.  I also eat yogurt, kefir, cheese.  The thing with VSL3 is that some of the studies required double the dose of what the manuf. suggests for 2 or 3 months, so go fig.

It is also quite possible the immune response may be confusing normally benign bacteria with bad ones.  Not fully understood at this point, but probiotics (the right ones, which may be person specific) seem very promising.


Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron

Post Edited (relativelyquantum) : 1/27/2008 11:47:21 PM (GMT-7)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/28/2008 10:31 AM (GMT -6)   
I take Custom Probiotics' six strain blend and Natren's Healthy Trinity caps. According to Natasha Trenev, world-reknowned authority on probiotics, certain strains are more effective than others and some strains are entirely ineffective. Sadly, very few manufacturers tell you the strain, so you don't know if you're getting a good supplement or if you're totally wasting your money. She also suggests IBDers require a much higher dose than "healthy" people... up to 7-10 billion colony forming units (CFUs) a day.

Here's an article you might find interesting:

http://www.jinipatelthompson.com/articles_by_jini.php#

Scroll down to the bottom of the page and click on Probiotic Therapy for IBD an IBS.


Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/28/2008 8:11 PM (GMT -6)   
KEFIR

Kefir grains grow in milk over and over.

Over 20 good bacteria and over 10 yeast in the KEFIR.
It has all the mentioned above and more of it.
No probiotic pill you buy has the numbers kefir does and
KEFIR also has yeast and I do not think any probiotic pill has.
Also you can get free Kefir grains. There is a web sight with world wide
list of people willing to share extra KEFIR grains. Also there is KEFIR yahoo group
for giving away FREE kefir grains.

So get more probiotics and get them FREE.

I have the web adresses so if you want it email me.
Steve
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day. X6 1/15/08
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotics
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
grape seed extract.
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.1/22/08 cultued veggies
 
 

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