Posted 1/26/2008 9:59 PM (GMT -7)
I like Natren probiotics in both powder and capsules.
Pan-colitis DX in 98
Meds:
Prednisone 20mg (tapering). Colazal, Entocort. 
Supplements:
Carlson Fish oil, Glutamine, Whey Protein Isolate,  Multivitamin-mineral, Borage Oil, Digestive Enzymes, Natren probiotics 
Diet:
No sugar, grains, dairy.  Whole foods only. Water only.

Posted 1/27/2008 12:21 AM (GMT -7)
My GI recommended I use Florastor, which has had very good results.
 

Posted 1/27/2008 10:34 AM (GMT -7)
great timing you guys! thanks for starting it Erika - I have been trying to research this for the past 3 days. I have found medical journal abstracts that say they don't help, but a lot of UC/Crohn's sufferers seem to think they do help. Seems that VSL#3 is highly recommended and used in a lot of trials, but I find lots of references to it in the forums saying that people don't do well with it. Several people seem to do well with the Enzymedica Pro Bio and the Nature's Way Primadophilus Reuteri. I also found information (will see if i can find the link) about probiotics in fermented food working better because of the complimentary yeasts and such in the food - that don't come in the pill/powder form - these were specifically homemade yogurt, kefir & saurkraut - the homemade versions ferment correctly and completely....so - that is my research so far....will get back with links if I can find them again.
Posted 1/27/2008 10:54 AM (GMT -7)
http://www.healingcrow.com/ferfun/ferfun.html
this has info on living probiotics - not a medical journal, but has that "common sense" factor to it...

http://www.newhope.com/nutritionsciencenews/NSN_backs/Dec_00/colitis.cfm
long but good article

http://www.ncbi.nlm.nih.gov/sites/entrez
link to searchable database of medical abstracts

http://www.umm.edu/patiented/articles/what_role_of_diet_ulcerative_colitis_000069_7.htm
not about probiotics, but about all foods that help/hinder the intestines & inflammation

http://www.integrative-healthcare.org/mt/archives/2005/09/anti-inflammato.html
while I'm on the subject ... anti-inflammatory foods!
Posted 1/27/2008 11:18 PM (GMT -7)
This is a quick summary for IBD and probiotics from a prof. (Huffnagle) that did a fair amount of research on the subject:
 
Significant number of clinical and research studies
Genus Species Strain (one) manuf.
Lactobacillus casei Shirota Yakult (food)
Lactobacillus plantarum 299v
Lactobacillus rhamnosus GG Culturelle
Saccharomyces boulardii lyo Florastor
VSL#3
Very promising clinical and research studies
Bifideobacterium infantis

35624

Lactobacillus salivarius UCC118
Lactobacillus salivarius

433118

 
I know there is much more out there, but a good list nonetheless.  Either pubmed or google scholar is a good way to get an abstract or summary.  The results could vary by a number of factors, even getting a slightly different strain.

Now the crazy part.  I take Florastor, Garden of Life (might take this one out), Pro-bio, Ultimate Flora, Ultimate Probiotic 12/12 Formula Primadophilus Reuteri powder and recently bought Natren's Healthy Trinity.  Still discovering what works for me.  I also eat yogurt, kefir, cheese.  The thing with VSL3 is that some of the studies required double the dose of what the manuf. suggests for 2 or 3 months, so go fig.

It is also quite possible the immune response may be confusing normally benign bacteria with bad ones.  Not fully understood at this point, but probiotics (the right ones, which may be person specific) seem very promising.


Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron

Post Edited (relativelyquantum) : 1/27/2008 11:47:21 PM (GMT-7)

Posted 1/28/2008 8:31 AM (GMT -7)
I take Custom Probiotics' six strain blend and Natren's Healthy Trinity caps. According to Natasha Trenev, world-reknowned authority on probiotics, certain strains are more effective than others and some strains are entirely ineffective. Sadly, very few manufacturers tell you the strain, so you don't know if you're getting a good supplement or if you're totally wasting your money. She also suggests IBDers require a much higher dose than "healthy" people... up to 7-10 billion colony forming units (CFUs) a day.

Here's an article you might find interesting:

http://www.jinipatelthompson.com/articles_by_jini.php#

Scroll down to the bottom of the page and click on Probiotic Therapy for IBD an IBS.


Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 

Posted 1/28/2008 6:11 PM (GMT -7)
KEFIR

Kefir grains grow in milk over and over.

Over 20 good bacteria and over 10 yeast in the KEFIR.
It has all the mentioned above and more of it.
No probiotic pill you buy has the numbers kefir does and
KEFIR also has yeast and I do not think any probiotic pill has.
Also you can get free Kefir grains. There is a web sight with world wide
list of people willing to share extra KEFIR grains. Also there is KEFIR yahoo group
for giving away FREE kefir grains.

So get more probiotics and get them FREE.

I have the web adresses so if you want it email me.
Steve
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day. X6 1/15/08
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotics
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
grape seed extract.
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.1/22/08 cultued veggies
 
 

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