During my last infusion, I started itching and they slowed it down. A few hours after, I had horrible charley horse cramps in my calves. Then at night, my hands and feet were tingling and numb. The cramps lasted all night and throughout the next day and I took several pain killers with no pain relief. The Arthritis doctor tell me this was totally a coincidence, it is not a side effect or reaction. Baloney. Seven days later I had debilitating joint pain and had to break down and take Prednisone because again, I could not get any relief with Darvocets, Tramadol, anything. I hear there is a test to see if you have antibodies against Remicade. I have chosen not to take it any more without taking the test because I am frightened what may happen to me even if the test comes out ok. The Remicade nurse said I could take Prednisone 3 days before the infusion and after to prevent reactions, but I feel the Remicade is causing me pelvic pain and joint pains although all the doctors act like I am crazy. They tell me they never heard of such reactions, or it's impossible to have a reaction that long after the infusion. Well if you really search side effects you can find these things so it is possible....
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil, Darvocet, Tylenol pm, Lyrica for Fibro started 1/17/08