New Member Lots of Pain!

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cricket2
New Member


Date Joined Jan 2008
Total Posts : 12
   Posted 1/27/2008 1:25 AM (GMT -6)   
I have not been to this message board before. I feel desparate. I had a colonoscopy 6 weeks ago. The dr said my right side colon was completely closed and it acted like an autoinmune disease. He gave me medicine that has not helped. I bought a juicer- all liguid diet, and a heating pad, still no help. This has been going on for 6 months. What next?/ I really need some input on this, because nothing is helping me. My right side feels like a ball of fire- my ribs are even sore. Cricket PLEASE, can anyone advise anything that may help the pain?

Post Edited By Moderator (tjf) : 1/27/2008 5:32:00 AM (GMT-7)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/27/2008 5:20 AM (GMT -6)   
Hi and Welcome to HealingWell, Have you seen a GI-doctor yet? And if the pain is real bad I would go to the ER asap.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/27/2008 7:32 AM (GMT -6)   
Hey Cricket and welcome! I gave your post a title. Same questions as above.....do you see a GI doctor? What medicine were you given?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


cricket2
New Member


Date Joined Jan 2008
Total Posts : 12
   Posted 1/27/2008 11:48 AM (GMT -6)   
My GI dr has me on Robinol 2mg ,5 x per day. and Mobic that is an antiinflamatory med. My appointment with him is  this Friday. I had some old pain pills, sometimes I take that, but they are not very strong. It does not get rid of the pain 100%- but it helps some. At first I thought the Liquids would work, so I bought the "Hallelujah Diet book". With this, I get all my vitamins and food as juice. I don't know how to put this... I have read that most people go the bathroom alot. It is the opposite with me. I am not sure how auto-imune disease works. Dr said my rt side colon is attacking itself and has shut down. quote the dr ,"slammed shut". I thought someone might know something that would help the pain. Thank you for your input !!

CityWoman
Regular Member


Date Joined Jun 2004
Total Posts : 123
   Posted 1/27/2008 12:16 PM (GMT -6)   
First, I think your doctor has overstated things. If, in fact, your colon was "slammed shut" then you would be in for emergency surgery because nothing would get through at all.
 
Second, I agree you need to see a GI to know the true diagnosis so they can start you on the proper medication. If he / she used the term "attacking itself" that's the sign of an autoimmune disease. Any autoimmune disease is one where the body starts to attach its own organs. There are dozens of autoimmune diseases. Besides UC, I also have Graves Disease (in remission).
 
Self medicating is not the right approach. Some medications (even over the counter) can make things worse for you in your condition. If you are bleeding, do not take anything with aspirin. My GI won't let me take any Advil or ibuprophin medication since it can start a flare.
 
If you have Chrones or Colitis, you can get treatment. If you've been dealing with this for six months, then the right treatment will help you heal.
 
Ask your GI to explain what you have in detail, and what you need to do now with your "new life".
 
Judy
 
 

February 04: Rushed to hospital with severe blood haemorrhage. Diagnosed with indeterminate UC in 2/3 of my bowel. Treated with heavy doses of Pred; started Salofalk tabs and sups.

 

April 06: First major flare – more haemorrhaging. Colonoscopy once against confirmed indeterminate UC.

 

May 06: Started 40 mg Pred. Weaned down to 10mg by July 8, held at 10mg until December 20, tapering 1mg every 2 weeks, 5mg a day as of February 14. All this plus 10 Salofalk tabs daily.

 

Jan through May 2007: Suffering from severe headaches and vomiting likely caused by prednisone.

 

Feb 26 07: Started Imuran with continued success.

 

May 12 07: Final dose of prednisone after 50 weeks!


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/27/2008 12:34 PM (GMT -6)   
Cricket, I'm sorry you're having so much trouble. You absolutely need to see a gastroenterologist right away. While your doctor is trying to help you, the medications you're on are not the best for anyone with IBD (autoimmune colon disease.)

Robinol is an anti-spasmodic drug. If you have Crohn's or Ulcerative Colitis, it may not be the best for you, as it frequently causes constipation.

Mobic is an NSAID. This is the same family of drugs as aspirin, naproxen, ibuprofen and others. This class of drugs is not usually prescribed for IBD sufferers because it can cause gastric bleeding.

Even with the pain, I'd recommend you restrict yourself to Tylenol for now. Also, if the old pain medication you're taking has an NSAID in it (many do) you may be overdosing yourself. Some of our members have reported that a warm heating pad on their abdomen helps the pain.

Please do call your doctor and ask for a recommendation for a GI, or find one on your own. If not properly treated, your condition could get much worse. And I'm afraid the meds your doctor prescribed may not be making things any better for you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

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