Remission or flare and working...

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Numb78
Regular Member


Date Joined Sep 2007
Total Posts : 63
   Posted 1/28/2008 8:39 AM (GMT -6)   
I have a two part question for you folks. I have been off work now since late Sep with a pretty nasty flare. After going to through 2 rounds of 40mg pred, salofalk enemas, cortifoam, nothing seems to be working for me. I started 100mg of imuran on Jan 15/07 and I know it takes a while for that stuff to work but I do think it might be doing something already. Currently I have to run to the bathroom about 3-5 times in the morning and I get anything from just mucus to D and some formed stools. The afternoons tend to be much better.

My first question is what do most people call remission. After I was first diagnosed 2 years ago I was fixed up with prednisone and I was completely symptom free for 2 years!! Now since I've been in this flare for so long I'm wondering if I will ever get back to symptom free life again or do I have to re-define what is considered remission. What type of symptoms do most people experience when they are in "remission"

Second how many people continue to work during a flare and how many take time off work. I luckily work for a large company that has an amazing disability program but I really want to get back to work. My job is a good mixture of office work and field work so I'm a little afraid of being out in the field and having "the urge". I know this question is tough to answer giving so many people have different types of jobs but I'm wondering how many people just tough it out through the flare and how many take the time at home to recover. In actuality I'm going stir crazy and home and really want to get back to work but I'm afraid that the stress of trying to catch up on everything I missed might make my problems even worse... Do I go back now or wait until the imuran kicks in completely... If the imuran will even get me into remission is another question completely....
Currently in a flare since summer 07 - I need to get back to remission!!!
Current Meds: 25mg Pred, 2000mg salofalk, calcium supplements, Pantoloc, Buscopan, Clonazopam
Started 100mg Imuran Jan 15/08.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/28/2008 8:53 AM (GMT -6)   
Numb, remission is generally considered no symptoms at all. I consider myself in remission, though, even though I go 2-4 times a day. The schedule is consistent so I can anticipate, and I have no D, bleeding, mucus or pain. For me, that's wonderful.

I've worked throughout, even when I was going 20 times a day. I arranged to be in the office all the time, and my employer was wonderfully accomodating about letting me work from home occasionally when things got really bad. You might be able to talk to your HR officer about some accommodations at work. Perhaps things could be shifted so you could be in the office, or you could work part time during your "good" hours. Most employers would rather have a good employee back on adjusted duty than off on disability. Do check though, because if you work part-time you'll probably lose the disability payment.

Good luck to you, and glad to hear you're feeling better.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

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