Questions about Remicade

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Lady in Pink
New Member


Date Joined Jan 2008
Total Posts : 2
   Posted 1/30/2008 9:00 AM (GMT -7)   
Hi! I was diagnosed with UC in Nov. 2006,  I am currently looking into trying "Remicade". The Meds I am on now are: Asacol, Loeprenamine, the Hemrroidal suppositories and the Rowasa
Enema Suppositories.  I was put on Prednisone in 2006 and had a shot respite of being in remission,,,,,I'm at my wits end as I cannot seem to get in remission and this effects your life to the MAX.  I'm constantly going the bathroom or looking for one.  I wonder if anyone has tried "Remicade" and can share how it worked for them.  I'm praying that something will work and I will stay in remission for a good long time.  I also take Ativan & Zoloft,  Last year I had a Total Hysterectomy schedule 3 or 4 times but could never get Uc under control.
 
Any feed back will be greatly appreciated/  Lady in Pink

Post Edited By Moderator (Judilyn) : 1/30/2008 4:57:34 PM (GMT-7)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/30/2008 9:12 AM (GMT -7)   
Hi and welcome to the forum Lady in Pink! I am on Remi right now and have been for quite some time. It has done wonders for me, and it gave me my life back. When I started Remi, I was quite ill, so I was thankful that it had such a great effect on me, but this is my story. If you have any other questions, please feel free to ask and again, welcome to the forum! You've found an awesome group of people.

Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/30/2008 4:59 PM (GMT -7)   
Welcome, Lady in Pink. I've been in remission for nearly two years due to Remicade. There are a lot of us here taking it, some with good results and others not so good. Like anything else, we react differently.

I hope you don't mind that I took the liberty of giving your thread a more descriptive title. I think you'll get more responses with the specific topic in the title.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 1/30/2008 5:17 PM (GMT -7)   
Hi, I've been on Remicade for about 13 months now and it has been the only thing that put me into remission after a year of trying pretty much every other drug.
Humira is not used as much for UC because so far in the U.S. it's only approved for Chrons disease.
Sounds like you are where I was, which was pretty much use remicade or have my colon removed. Remicade turned things right around and has continued to work well for me.
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
Eleventh Remicade infusion End of January


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 1/31/2008 6:38 AM (GMT -7)   
How long does it take to see improvement with Remicade?
UC Mom
Son diagnosed 10, 2006 at age 15
12 asacol daily
Culturelle Probiotic
Omega 3
Multi Vitamin


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/31/2008 7:47 AM (GMT -7)   
For me it was overnight; literally. For others, it's taken a few infusions to get into remission. I wish I had a firm answer for you, but this illness is so bizarre to say the least!
Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


transformers
New Member


Date Joined Jan 2008
Total Posts : 12
   Posted 1/31/2008 9:07 PM (GMT -7)   
Is it true that once you start on Remicade you shouldn't stop because you develop antibodies and becomes ineffective?

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/31/2008 10:12 PM (GMT -7)   
Some doctors will give short courses of Remicade and stop it, but I think most won't. Not everyone develops antibodies, but some do. Like everything else with this disease, it's a roll of the dice. I got three infusions in 2004 then had to stop because my insurance wouldn't cover additional treatments. I started back on it in early 2006 with no problem. I started getting noticibly better after the second infusion each time.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/1/2008 3:35 AM (GMT -7)   
Hi, I have been on Remicade for sometime now and I am in remission.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 

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