I've been battling with this flare for a few weeks now. This symptom is actually something new for me--usually I'm constipated. I wake up in the morning and after the first instance of putting anything in my mouth the urgency starts. I run to the bathroom and then begin the process over the course of 3 hours of totally emptying out my colon. It's formed but soft. Along with that comes pressure, urgency, cramps, spasms, involuntary straining-and this keeps up until I'm passing almost water. But being empty doesn't stop the urgency--I just keep up the involuntary straining until it just eventually stops on it's own. No blood or mucous though. I'm pretty good then for the rest of the day.
First I tried the cortenemas--can't keep them in no how.
Then PA thinking it was proctitis put me on this lidocane/cortisone cream that you squeeze inside yourself from a tube--don't think it went up far enough.
Then the doctor upped the cortifoam to twice a day.
Anti-spasmotics are not working.
No matter what I do, nothing is working. Nothing is staying in long enough to do it's job. And if I can keep it in--like at nighttime, it doesn't do anything.
We've tried moving my Liada to nighttime. Then tried twice a day.
Rowasas and Canasas are way to harsh right now.
The doctor threatened that if the cortifoam don't help after two weeks, I'm going to have to go on oral steriods. I'm so frightened of that given I'm menopausal and I already have osteopenia, hairloss, and insomnia to begin with.
Has anyone every had this instance where the rectal meds don't work? I'm wondering if the rectals don't work why should the oral medicine work?
Has anyone had the oral medicine not work either?
Left sided UC 3 1/2 years