If you won the lottery...

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princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 1/31/2008 10:38 AM (GMT -6)   
...say a billion dollars, lol, and didn't have to work or anything, what would you do for your UC or your health that you don't do now?
I would...
take yoga classes
try acupuncture
have a nutritonist/cook
eat more fish
buy organic foods
 
I forgot the main thing I think we'd all do... go to one of the best GI's in the U.S, whoever that is!


Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica for Fibromyalgia started 1/17/08

Post Edited (princesscolon) : 1/31/2008 9:17:11 AM (GMT-7)


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 1/31/2008 10:48 AM (GMT -6)   
For my overall health, I would hire a personal chef and personal trainer. I would also install a great gym in my home, so I didn't have to work out with anyone else!

For my overall quality of life, I would travel more. I would spend as much time in Europe as possible!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 1/31/2008 10:55 AM (GMT -6)   
I would do everything stated above (except accumpuncture, scared of needles) and donate a very large chunk of money to the study of UC. After buying a small town for all my husband, friends and family to live within walking distance of one another. well...most of the family anyway...
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/31/2008 11:21 AM (GMT -6)   
I like both of your ideas. I think we definitely need more research on UC as there is still a lot of confusion about it! And we need better meds! I'm adding a swimming pool to my wish list, so I could get some safe exercise... ooh and a hot tub for painful days. I could go on and on, one of the problems with being a Princess! LOL
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica for Fibromyalgia started 1/17/08


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 1/31/2008 11:50 AM (GMT -6)   
Privately back UC research

but the private chef thing was a given even if I didn't have UC.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/31/2008 12:12 PM (GMT -6)   
Jeez, I'm SO in the minority cause I'd schedule surgery with the best colorectal surgeon ASAP, then take as long as I needed to recuperate. I'd hire someone to clean the house, do the chores, cook for my family, etc. I'd buy tons of new cute bag-friendly clothes. I'd quit work for as long as it took for me to mentally/physically adjust. I'd probably not work again, just travel around the country. So that's what I would do!

(oh yeah, I'd only hire someone to do the household stuff while I was recuperating- well, I'd probably keep the cleaners!)

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 5mgs every other day
 

Post Edited (Eva Lou) : 1/31/2008 10:53:08 AM (GMT-7)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/31/2008 12:16 PM (GMT -6)   
I would move into the country and into a bigger home, hire a maid (I don't mind doing my own cooking). And of course this new bigger home would have an indoor swimming pool and hot tub! I would spend more time traveling raising awareness of Uc and Crohns. I would also donate to find a cure. But what I would really want to do first was get the BCIR surgery. This would be my ideal surgery to get for Uc but my insurance wouldn't cover that (nor many other insurances for that matter - so that is where the billion dollars would come in handy!). I would set money away for my kids educations and invest the rest in hopes that by the time my kids inherit it, the money would have doubled. It's always nice to dream isn't it?? :)


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 1/31/2008 12:33 PM (GMT -6)   
I would definitely not be a landscaper anymore. I think I'd travel a lot, SERIOUSLY consider j-pouch surgery. I like the idea of buying a small town, but I do already live in a the family compound, so don't really need to do that.
I'd go skiing a lot, and maybe go back to school. I guess i might as well buy a plane while I'm at it :)
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/31/2008 12:44 PM (GMT -6)   
I agree with all the above mentioned replies and I would design my own hospital room at the very best University for IBD. Have my own personal chef come in and cook for me when I am there! Have a manacurist and hairstylist and massage therapist! If I don't have to use it, I would let someone stay there for free who doesn't have insurance and has a chronic illness such as CD or UC.

If only I had the money!
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 1/31/2008 1:23 PM (GMT -6)   

I'd buy a bigger and more powerful anti-clogging toilet and install a better ventilation system. lol

No, seriously. I'd put out a reward for anyone who finds a cure for uc, of course the results will have to be verified by other doctors, GI's, etc. that inflammation is actually gone, etc.

Then I'd pay off the mortage, my parent's mortgage and my mother-in-law's mortage and I'd open a community center, equipped with an indoor swimming pool, basketball court, gymnasium and music and arts departments. Hopefully, there will also be programs there to teach trade skills as well.

:-)

NBT

 


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 1/31/2008 1:51 PM (GMT -6)   
Red - I am not familiar with the BCIR surgery. What is that?
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/31/2008 1:56 PM (GMT -6)   
I would back tons of research, eat all organic and then buy lots of Chanel & Gucci handbags. Oh and Louboutin shoes of course!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/31/2008 2:21 PM (GMT -6)   
I would definitely take yoga classes more often, and actually join the gym so I could work out when I wanted as well... I would rescue two labradors (or maybe more), a yellow and chocolate to go with the black lab I already have :) and move back to Florida into a modest sized house with an acre of fenced land for them to run and play in. I would also have a pool and hot tub to relax in!!

I would travel a lot, pay off my credit card debt (only $3,000 at this point so compared to a billion dollars that would be pocket change! haha) and also pay off my parent's debt and mortgage. I'd also have a huge beautiful wedding with my boyfriend and then have some babies :)

I like the idea of a personal chef/nutritionist, as well as a super powered self cleaning toilet, hehe
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/31/2008 2:42 PM (GMT -6)   

BCIR is a surgery where they make an internal reservoir out of your small intestine (after removal of the large intestine) and you use a "straw" to empty the contents of your internal pouch.

http://www.bcirostomy.com/testimonials.html


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/31/2008 3:11 PM (GMT -6)   
Red_34 said...

BCIR is a surgery where they make an internal reservoir out of your small intestine (after removal of the large intestine) and you use a "straw" to empty the contents of your internal pouch.

http://www.bcirostomy.com/testimonials.html


Wow, I wish I had known the doctor who performs these is in St Petersburg Florida; I lived minutes away from there my whole life and would have just gone to him from the beginning!
It gives me hope to know that though because now I know if things get bad I can always go home and go to this hospital. How exciting!
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


JM
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 1/31/2008 3:34 PM (GMT -6)   
I learned a long time ago that money does not bring me happiness, only my attitude does that. After building my log home on my land in Montana, I would probably give away the rest.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/31/2008 4:13 PM (GMT -6)   
Oh I know what you mean! I just wished they would make the BCIR more mainstream then the Jpouch or Ileo's. We had a member on here a few years ago that had this procedure done and we followed her thru every step of the way. Needless to say she doesn't come on here no more so I sincerely hope that it's because she is finally enjoying life again.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 1/31/2008 4:39 PM (GMT -6)   
would donate for uc reseach
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/31/2008 6:30 PM (GMT -6)   
Hmmm if I won a billion dollars I would...

Pay off my college loans (which are already racking up)
Build my parent's a house in Grand Marais, MN
Buy any coach bag I think is even remotely cute :)
Buy season tickets for the Minnesota Wild
And give the rest to research
I think I would still work though. I'm excited for my career even though its still 3 years away!


**Red, were you talking about Eileen??

Sam

Diagnosed in September 2004

Currently on...4800mg Asacol, 25mg Elavil, Ortho Tricyclen and some immodium

"If you don't like something, change it. If you can't change it, change your attitude"

Maya Angelou


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/31/2008 9:39 PM (GMT -6)   
No Brenda :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/31/2008 11:36 PM (GMT -6)   
Ohh! Man there have been so many people in and out of here!

Sam

Diagnosed in September 2004

Currently on...4800mg Asacol, 25mg Elavil, Ortho Tricyclen and some immodium

"If you don't like something, change it. If you can't change it, change your attitude"

Maya Angelou


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/1/2008 8:22 AM (GMT -6)   
Hi, I want to have a personal chef to cook healthy for me. Also built a custom home in warm state.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 2/1/2008 9:49 AM (GMT -6)   
I wonder why the BCIR surgery isn't more widely used, considering it's been around since the 80's and seems to be a great alternative. The main thing about surgery that always freaked me out was 1) having to have a bag and 2) having to have part of my intestine sticking through my abdomen. I think I'm honestly just too vain to be able to mentally handle that. But with the BCIR it's just a little hole that you can cover with a bandage and empty by the catheter... You'd think they'd want more people to be able to have that option!
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/1/2008 1:18 PM (GMT -6)   
I don't know why either. I think more doctors should educate themselves on this procedure to make it more available to many more people. If I'm not mistaken, I believe the surgery (without insurance) is around $30,000-40,000 so maybe it's a cost issue.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 2/1/2008 2:32 PM (GMT -6)   
Well I wouldn't have to do anything if I won the lottery because that would take all of my stress away. I would bet that lottery amount that I would never see another flare after hitting the jackpot.
Age: 30
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day
Supplements: 2 Omega 3s, b-6, calcium, and multivitamin
No. of colonoscopies: I lost count at 6...LOL!
Last scope: 10/9/05-everything looked ok.
 
 

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