4 weeks Pregnant w/ a VERY active flare

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**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 1/31/2008 7:44 PM (GMT -6)   
I just recently found out that I am pregnant (only about 4 weeks).  This news is very very welcomed; however, it comes during the worst flare that I have had since being diagnosed a year ago.  I've already been hospitalized (3 weeks ago) and I've been on prednisone (40mg) since I was discharged.  I was also taking Asacol (1600mg 3x's a day) and doing hydrocordisone enemas at night and in the day (even though that's almost impossible!).  I went back to GI today because my flare is just not getting under control.  I'm still going up to 4 times a day with lots of blood and cramping so bad I feel like I'm going to pass out.  My doctors are very concerned that my UC is going to cause a miscarriage.  So, they've switched me to Rowasa enemas @ night and the hydro enemas in the morning.  They took me off of Asacol and put me on Sulfasalazine instead.  I'm also going to continue the Prednisone. If I don't improve in the next week, they want to admit me again and give me steroids by IV.  I'm worried about losing the baby, but I'm also worried about how much stuff I'm putting into my body so early into the pregnancy.  I've done a lot of reading and most of the stuff that I'm on is "ok" during pregnancy, but it still doesn't feel right.  Has anyone had a similar situation?  The doctors said the most important thing is to get the flare under control.  Any comments, stories, or experiences are welcomed.
 
  confused
Diagnosed w/ UC in Jan 2007
Asacol - 1600mg 4x's a day
Prednisone - 40mg for the last 7 days (and counting)


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 1/31/2008 8:20 PM (GMT -6)   
Congratulations on your pregnancy!! I wish I had advice to give you about this, but I don't. I know with my son, it took almost 2 weeks on prednisone before he started seeing improvement, but then he improved quickly.

I'll be praying that all goes well with your pregnancy and that your flare goes quickly into remission. Please keep us posted.
Julie - Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Biotin, Vit/Min
& Daughter 8 UC dx 08/07 Colazal, Prednisone, 6MP, Iron, Vit/Min.


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 1/31/2008 8:30 PM (GMT -6)   
Thank you for your kind post.  So both of your children have UC?!  Did I read that right?  I wish the best for your family as well.

Diagnosed w/ UC in Jan 2007
Asacol - 1600mg 4x's a day
Prednisone - 40mg for the last 7 days (and counting)


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 1/31/2008 8:54 PM (GMT -6)   
Yes, 2 of my 3 kiddos have UC. My son has had it for at least 8 years (dx 6 years ago) and my daughter was dx this past summer. She actually started showing symptoms at 7 mos of age. Thankfully, so far my middle child shows no signs!! Neither my husband nor I have it - only other family member with it is my husband's niece.

Try to get as much rest as you can. Thankfully at this very early stage, the baby doesn't need very from you and hopefully by the time he/she does, you'll be doing much better!
Julie - Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Biotin, Vit/Min
& Daughter 8 UC dx 08/07 Colazal, Prednisone, 6MP, Iron, Vit/Min.


Sherman Tank
Regular Member


Date Joined Jan 2008
Total Posts : 34
   Posted 1/31/2008 9:11 PM (GMT -6)   
I had a flare right at the beginning of my pregnancy last January. Luckily I got it under control with the Rowasa Enemas and Asacol (they didnt take me off). Acupuncture helped as well. I think at first the pregnancy was jarring to my system but after it balanced out (post-morning sickness- about 2 months) my symptoms went away and stayed away until recently. My little boy just turned one and is quite healthy- no reactions to the medicine as far as we can tell.
Congrads on the pregnancy! Good luck.
Diagnosed proctosigmoiditis/ UC 2004
Misdiagnosed with just Hemeroids since I was 12!!
Bad flare after birth of first son in 2004,
another bad flare pregnant with 2nd baby summer 2006
recent reallly bad flare Dec 2007- 1st time w/ prednisone
Just tapered off Jan 20,2008, Flaring again today :(
Asacol for last 4 years 3pills 2X's, ROWASA as needed up to 3X's a day,
now just ASA 3X's a day


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 1/31/2008 9:51 PM (GMT -6)   
I've flared with my last two pregnancies after being diagnosed with UC. It could take a while for the prednisone to kick in, especially if you have been on it before. I was on prednisone throughout my last pregnancy and then tapered down slowly and eventually had to go on Remicade to get off of it. Even though I was on prednisone things were never really under control until the third trimester. However, the prednisone did help. As hard as it is, try not to stress about it. Maybe your OB would do an ultrasound to check on things and give you some peace of mind.

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade remission


*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 1/31/2008 11:51 PM (GMT -6)   
I had the worst flare of my life when I was six weeks pregnant.  Stupidly I thought because I was in remission and have relatively minor UC that I would stay in remission.  I didn't!  I had to go on hydrocortisone enemas and I was sick as a dog for 14 days straight.  All I did was go to the bathroom and lay on the couch.  Literally.  I had such bad cramps and bloody D/mucous I thought there was no way for me to keep my baby.  Well she is now 20 months and healthy as anything.  Such a delight!  I wasn't on prednisone, so I can't speak to that, but I was on Rowasa and hydrocortisone  enemas.  Once I got mine under control I stayed in remission with only Rowasa enemas, which I slowly tapered all the way down to one a week until I stopped breastfeeding and flared again.  I had to go on Asacol to get that one under control.  The hormones really play a number on my UC, but once the initial shock of the hormone surge/change if I keep using my meds I can get things back under control.  As for the meds effecting the baby I know exactly how you feel.  Who wants to start their babies off with drugs in their system, however you have to remember the placenta  is there for a reason to filter things for the baby and also these are category B drugs.  You have to do what you feel is best, but honestly your body can not fight off UC and keep your baby without any drugs.  My suggestion is do what it takes to get your flare back in remission and then try to taper as soon as you can, with the guidance of your GI.  Good luck.  I know this is a scary time, but you will get through it and then you will have nothing but joy(and sleepless nights!  tongue )
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


skinbiz
New Member


Date Joined Feb 2008
Total Posts : 3
   Posted 2/4/2008 12:27 PM (GMT -6)   

Nicole-

I am new here but wanted to reply to you...my heart skipped a beat when I read your post...don't want to scare you but I suffered a miscarriage during a bad flare back in 2003...however nearly a year to the day I became pg again (still in a flare) and that baby is now a wonderful 3 1/2 healthy boy! I discontinued my Asacol when I got pg but had to resume at about 7 mo along...it was HORRIBLE! For some reason my pg body hated the asacol...the pain was undescribable...I was in the hospital nearly the entire month of Mar in 2004...I was on IV morphine for the pain until the asacol left my system...I was in IV prednisone, lost all my pregnancy weight plus some, dr's thought I might have to have a feeding tube inserted too.  Also had a colonscopy/endoscopy (only time I didn't awaken during a colonscopy) Thankfully I recovered and with the help of Boost High Calorie shakes gained weight and gave birth to a 8.5 lb baby about 13 weeks later. My thoughts are with you and that baby Nicole! Good healthy vibes your way.


SGRUBB
Regular Member


Date Joined Jun 2007
Total Posts : 67
   Posted 2/4/2008 2:56 PM (GMT -6)   
I wish you all the best with your pregnancy. I did very well with both of my pregnancies...however, after they were born, I flared all over again. Strange how things happen.

Please keep us posted. I would love to know how you are making out!
UC diagnosed in 1985...22 years.


Was on Remicade...no longer working for me as of January 30, 2008



50 mg 6mp, Rowasa and Cortenemas as needed.
Probiotics and Aloe Vera Gel (Just started this a few days ago...)


PSUDOC
Regular Member


Date Joined Jun 2007
Total Posts : 360
   Posted 2/8/2008 1:19 PM (GMT -6)   

I was in remission before my pregnancy, but starting flaring at 6 weeks. I am on Asacol and Imuran already. They added Canasa suppositories and that has mostly calmed it down (although not completely).

It's scary to be on drugs when you're pregnant -- Imuran is a class D, so I'm terrified all the time. But your baby needs you to be healthy more than anything.

It's possible your flare may calm down in a few weeks -- my doctor puzzled over my flare because he swore that most women get better rather than worse during pregnancy.

Good luck!


weedlewub
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 2/8/2008 1:33 PM (GMT -6)   
I took prednisone during the third trimester with my son (who is now 5 months) and he turned out just fine.
Diagnosed with UC in Jan 2006
 
Currently taking spanish black radish, congaplex, zymex, multizyme,l-glutamine, calsol, protefood, and homeopathic "intestinal distress" drops.

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