UC -and- Irritable Bowel? Together?

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tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 2/1/2008 7:18 AM (GMT -6)   
Hi all! I've been having a flare for about 6 weeks now that is being more stubborn than my previous ones. (previously, a quick 4-6 week prednisone taper shushed me right up.) I am still on 20 mg of pred and while I am able to work and run around, I'm still in the bathroom with cramping and small bits of stool anywhere from 10 to 20 times a day. I'm not losing weight, or really losing a lot of stool, but the cramping and frequent potty trips are a big inconvenience! I'm trying to work and shuffle two very active little boys to and fro. (It's not the best sign when my oldest heads straight to the bathroom when we walk into the grocery store, bank, or mall!)

I am going for a second colonoscopy next week so my GI can "re-map" the extent of my disease and see how he can best modify my meds to help me out.

He said that there is a possibility that I have irritable bowel on top of my UC, and that's one of the reasons he wants to do another scope-if there are no ulcerations, he'll treat me for IBS as well as IBD, which I understand means anti-spasmodics during active times.

Have any of you heard of this dual diagnosis, or have it? Just curious!

I will update you with the final word next Thursday, after the lovely scope. I can't wait until Wednesday, when I can eat and drink all the clear liquids my heart desires, right? :)
Erica, 31
Diagnosed July 2006, 3 days after birth of second son via colonoscopy/upper endoscopy at age 29
Currently doing well with:
125mg imuran
Asacol as preventative for cancer (does not ease symptoms)

Now in a prednisone taper (20 mg until next week)

Experimenting with:
a modified low residue diet
live culture yogurt and probiotics


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 2/1/2008 8:30 AM (GMT -6)   
According to my GI it's very common to have both conditions. I had both. I could never really determine the difference between the two, was my UC more bothersome than the IBS?, but I think in retrospect that the discomfort I felt when I was in remssion was the IBS and the last flare I had before surgery was defintely the UC.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/1/2008 9:28 AM (GMT -6)   
I started out with IBS and was "upgraded" to UC. I see it as a progression, but my gastro at the time assured me I still had IBS as well as UC. Gee, thanks doc.

In my experience, antispasmodic drugs just cover up the symptoms of IBS. Better to get at the source. Dietary modifications and high doses of probiotics will help normalize bowel function.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 2/1/2008 9:29 AM (GMT -6)   
thats eactly what i am going thru right now and mr dr thinks its ibs as well as the uc. he put me on levsin and it seems to be helpin the pain.
Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, prednisone 40m 30m 25m 40m, 35m 30, multi vitamin, Azathioprine 100m (started 1/9/08) levsin,canasa


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 2/1/2008 9:57 AM (GMT -6)   
I think I had IBS for 3 years before my UC came along. Half the time I think its IBS bothering me instead of the UC. I know my mom has IBS too so it isn't uncommon in our household :)

Sam

Diagnosed in September 2004

Currently on...4800mg Asacol, 25mg Elavil, Ortho Tricyclen and some immodium

"If you don't like something, change it. If you can't change it, change your attitude"

Maya Angelou


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 2/1/2008 10:44 AM (GMT -6)   
I've had bowel problems for 2.5 years. In this time I've only had bleeding for about 3 months. My doctor is now saying that my IBS is the dominant disease and that my IBD flares up only now and then. I sense they realise they have been treating me for perhaps the wrong condition mostly.

D
800 mg Asacol a day
500 mg Asacol suppository now and then!
Fibre supplement, Iron supplment,Probioitcs
Balanced Diet, Reduced Stress
 
"There is no greater tragedy in life than doing nothing for fear of doing too little. May you live all the days of your life."
 
 
 
 
 
 
 


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 2/1/2008 1:36 PM (GMT -6)   
Heck I thought everyone who had UC had IBS first. I also suffer from LBS from time to time...LBS is Leaky Butt Syndrome.
Age: 30
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day
Supplements: 2 Omega 3s, b-6, calcium, and multivitamin
No. of colonoscopies: I lost count at 6...LOL!
Last scope: 10/9/05-everything looked ok.
 
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 2/1/2008 2:46 PM (GMT -6)   
I have both and it is hard to tell the difference sometimes.But i realise that UC pains are more acute and IBS are more constant.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4177
   Posted 2/1/2008 6:06 PM (GMT -6)   
jars05 said...
Heck I thought everyone who had UC had IBS first. I also suffer from LBS from time to time...LBS is Leaky Butt Syndrome.

I never had IBS first. Leaky Butt Syndrome...nice. =)
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/1/2008 6:57 PM (GMT -6)   
I have had crohns for 16 yrs and 5 yrs ago I also developed IBS on top of having active CD...my GI explained to me that it's not unheard of for a long time IBDer to develop IBS as well especially for those that suffer with long and or frequent flares or continuous flares like me.

He's a top leading researcher in the IBD world so I'm confident with his DX of my IBS. The good thing is that with both IBD and IBS there are some very important things that can help both, exercising regularly, eating enough fibre and probiotics on a daily basis, flaring from IBD/IBS or not.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/1/2008 7:08 PM (GMT -6)   
I have both. I have had IBS for probably 20 years (I'm 31). My IBS usually acts up when I eat something fried or super rich.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 2/2/2008 9:47 AM (GMT -6)   
I started with UC and then remissed into irritable bowel. The UC to me is painful cramps and blood and mucous, the irritable bowel is the urgency and alternating constipation and frequent movements. UC is debilitating, iriitable bowel is a major annoyance. I flare into UC every now and then.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 6 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 2/3/2008 2:57 PM (GMT -6)   
thank you everyone! I had no idea that IBS/IBD combo was so common. Some of you suggest more fiber, however my GI said to limit fiber-he said that it's irritating to a colon that is inflammed. He suggested I use a low-residue diet when flaring, and try to limit my daily fiber intake all the time. Though, for IBS, I do understand the rationale of adding fiber, reducing stress, and exercise...this is all so confusing!
Erica, 31
Diagnosed July 2006, 3 days after birth of second son via colonoscopy/upper endoscopy at age 29
Currently doing well with:
125mg imuran
Asacol as preventative for cancer (does not ease symptoms)

Now in a prednisone taper (20 mg until next week)

Experimenting with:
a modified low residue diet
live culture yogurt and probiotics


Lindy
New Member


Date Joined Jan 2008
Total Posts : 14
   Posted 2/5/2008 4:53 PM (GMT -6)   
From all I've read on this subject IBS lead into UC.  I have had IBS for 20 some yrs. & now have UC.  I read in an article on UC that when you start out with IBS & then go into UC after having UC for 8 to 10 yrs. you can develop colon cancer.  This scares the H---out of me.  Has anyone else read about this or heard anything?  I have suffered it seems all my life with intestinal problems & hate to think that I will have to deal with colon cancer in another 10 yrs.  Why do some people always have everything wrong with them & other people are pretty healthy?  Heredity & genes?  Or is our environment?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/5/2008 6:33 PM (GMT -6)   
Keep in mind it can be in combination with one another but it's not written in stone, it's no so for everyone, and many GI still disagree that a patient can have both.

IBD is related to genetics and an environmental trigger.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 2/5/2008 8:02 PM (GMT -6)   
Lindy, There are mixed studies about whether UC increases your risk for colon cancer or not. Some very reputable sources say that there is no increased risk, and some others say the risk is just slightly higher for UC patients. My GI said that the cancer risk is for any UC sufferer, not just those who had IBS previously (I didn't-my UC came completely out of the blue). Gi said that once I've had my UC for 8 years, he'll do colonoscopies every 18 months-2 years to check for polyps and do biopsies. The odds of you having colon cancer are still very low, and frequent scopes will make sure that any problems are caught early. Don't worry, the odds of you getting cancer are very, very low.
Erica, 31
Diagnosed July 2006, 3 days after birth of second son via colonoscopy/upper endoscopy at age 29
Currently doing well with:
125mg imuran
Asacol as preventative for cancer (does not ease symptoms)

Now in a prednisone taper (20 mg until next week)

Experimenting with:
a modified low residue diet
live culture yogurt and probiotics


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/5/2008 8:50 PM (GMT -6)   
From all the sources I've encountered there is an increased risk of colon cancer linked to having UC or crohns-colitis or any long term inflammation of the colon...my GP and I just discussed it again the other day...the longer you have inflammation in the colon the higher increased risk you have of getting colon cancer...3% per year it the latest number my GP told me.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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