Feeling Good and Wanted to Share

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Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 698
   Posted 2/1/2008 6:43 PM (GMT -6)   
Hello all. As some of you may or may not know, I had had a terrible late 2006/early 2007 culminating in a surgery and then 4 months of recovery. Well its been a long road, but I am BACK IN ACTION!

Being a police officer, we have to take a physical test each year to get our raises, get promoted, etc. The test involves an obstical course with stairs, pushing and pulling tests, and has to be completed in 4 minutes and 15 seconds or less. Well I ran the test on Wednesday and got my best time yet.....3 minutes, 1 second. Highest in my platoon/shift!

I had trained very very hard for it, and dieted, and trained intensively. I was hoping to get into the exclusive "under 3 minute" club, but didnt make it (next year! ;)). But making a personal best, and being that last year at this time I couldn't even walk, I am just so darn happy.

Anyways, I wanted to tell my experience to show (particularly the newly diagnosed members) that we will have ups and downs with this disease, and that we can overcome it.

I know that I will have flares again, and I'm not looking forward to the 20 plus times a day on the toilet, blood, pain and all the other symptoms I get, but they will come back, i have no doubt. But what i also know, is that there will be up times again, like i am having now, and this gives me a lot of hope.
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 2/1/2008 7:02 PM (GMT -6)   
Good for you!!!  You are a trooper, and it paid off.

UC Mom
Son diagnosed 10, 2006 at age 15
12 asacol daily
Culturelle Probiotic
Omega 3
Multi Vitamin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/1/2008 7:05 PM (GMT -6)   
Very glad to hear that you're doing well and I hope it continues for you!!!!!


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/1/2008 7:05 PM (GMT -6)   
That's awesome! Congrats!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


SGRUBB
Regular Member


Date Joined Jun 2007
Total Posts : 67
   Posted 2/1/2008 7:18 PM (GMT -6)   
That is wonderful news! I'm currently having a flare and it's not very good but, I also realize these things you have said. I have good and bad times. I would say that at this point I personally have not been in a true remission for nearly 2 years. Going through a trial and error of things now, but, eventually, it will all work out and there will come a day that I will feel good again.

I love hearing stories like these. So glad you are feeling better.
UC diagnosed in 1985...22 years.


Was on Remicade...no longer working for me as of January 30, 2008



6mp

Rowasa

Cortenemas


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 2/1/2008 7:46 PM (GMT -6)   
That is great and inspiring news! I hope you keep on doing so well.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica for Fibromyalgia started 1/17/08


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 2/1/2008 7:50 PM (GMT -6)   
Congrats. I am very impressed with your achievements! Certainly gets me motivated as well. It's great to hear good news... definitely inspiring. Keep it up and I hope that your continues to get better!!!
15 cm left sided colitis
currently on a trial of cortenemas,
and now doc added cortifoam i nthe AM and lialda
nothing seems to be working.


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 2/1/2008 7:53 PM (GMT -6)   
thats great news, glad you are doing so well.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 2/1/2008 8:01 PM (GMT -6)   
awesome news and thanks for the encouragement for all of us!
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/1/2008 8:52 PM (GMT -6)   
I remember when you were at your low point with this too so it's absolutely great that you are back in top form! It's always nice to hear good stories every now and then :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 2/1/2008 9:24 PM (GMT -6)   
Great news. Keep up your good spirits and health.

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/1/2008 9:40 PM (GMT -6)   
Wow! I must say I am so impressed. I worked in probation and parole and then juvenile corrections and my husband was a police officer. I left corrections for a lot of reasons (some bad apples hired, unsafe work conditions) but it was so nice to get into a new line of work (law) where I have a lot better access to the restrooms. My husband left the police force for a variety of reasons as well but I think his number 1 reason was his severe IBS-D. He would be at calls and feel the urge. And as you know, getting all that gear on and off is so hard. He wasn't eating to avoid pooping and then he was getting weak which is so bad in that line of work. He once got very ill transporting someone to jail and had to use the jail bathroom and was very embarassed. He couldn't even pull over and run in the woods because he was alone on a transport! It sounds like you have a partner which must help. I only was able to work for 3 years in corrections because I insisted on accommodations. No transports, no fence duty, no jobs where I was without relief w/in 5 minutes. I honestly don't know how you do it with UC and am so pleased that you are able to. I did ride alongs with him and was always so anxious about the bathroom. We did an OUI stop and had to wait with a car until it was removed. I almost had to run into the woods. I begged my husband to let me ride w/ his supervisor back to the station with the arrested guy but they wouldn't let me. Again, super duper kudos for staying in that line of work and not finding more bathroom accessible jobs. I do have to say his department tried to accommodate him but b/c he was only there 3 years he didn't feel comfortable taking a detective spot when other people were waiting to be promoted. He was going to take a school resource position but than someone else beat him to it. sigh.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 2/1/2008 11:44 PM (GMT -6)   
awesome- that hard work really paid off!
Jessica 26/F
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 20 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 2/2/2008 3:09 AM (GMT -6)   
Awesome to hear of your accomplishment Bob!!...it's been a tough go for you initially, and you've come through with what I would definitely call a personal best!

q
*Heather*Status: mini flare Dec 28... tapered to every second night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


maddypoo
New Member


Date Joined Feb 2008
Total Posts : 6
   Posted 2/2/2008 3:57 AM (GMT -6)   
Wow, what a story, well done to you for all your hard work. I gives everyone real encouragement to battle on and get on with the rest of their lives.

AshNH
Regular Member


Date Joined Jul 2007
Total Posts : 208
   Posted 2/2/2008 6:52 AM (GMT -6)   
Good for you. That's great news.
Ash 39 NH, vegetarian
Current meds: Asacol 12/day, Imuran 150mg
L-glutamine, Rowasa


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/2/2008 10:47 AM (GMT -6)   
What super news, Bob! Obviously you're highly motivated and I'm so glad you're healthy enough to do so well. It's good to have people like you out there protecting us. Thank you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

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