Posted 2/3/2008 1:01 PM (GMT -6)
thank you Judy-you put so much time into thhis and i appreciate knowing you are there. i know sometimes my posts are long and start to lose the thought but you seem to know what i was saying.-thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50

Posted 2/3/2008 2:14 PM (GMT -6)
Regarding iron supplements, can anyone in the UK recommend a good one. i have tried a couple of iron tablets which both were horrid to take. Any suggestions ?????

Diagnosed May 2005- left sided UC.Diagnosed with iritis in my Right eye March 2007
On Pentasa 8 tabs a day
Also on Pentasa enemas one daily to treat current flare.

Plus Aloe vera, probiotics, multi vits, turmeric,bromelain.

Posted 2/3/2008 3:03 PM (GMT -6)
I live in Ireland. I take Galfer iorn tablets and I drink Spatone iron supplements. My body torelates both excellently after rejecting all other iron supplements!

D
800 mg Asacol a day
500 mg Asacol suppository now and then!
Fibre supplement, Iron supplment,Probioitcs
Balanced Diet, Reduced Stress
 
"There is no greater tragedy in life than doing nothing for fear of doing too little. May you live all the days of your life."
 
 
 
 
 
 
 

Posted 2/3/2008 7:03 PM (GMT -6)
I'm surprised no one has mentioned iron infusions. It's the best way to get iron supplementation without the fear of gut irritation from oral iron supplements or foods that aren't well tolerated. My GI referred me to a hematologist for the infusions. They got me back on track and continue to monitor my levels every six months to a year.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 

Posted 2/4/2008 11:46 AM (GMT -6)
PLEASE - Question... did your daughter's Dr. say why no iron supplements? I am iron-deficient anemic, and the first thing my GI did was put my on iron supplements. I take Slow-FE, which is very easy on the stomach and doesn't cause a problem for me. He said if I can't bring the iron up with the pills, I will need to have an iron infusion (after I deliver this baby). I'm just curious as to why your daughter's GI said no to the iron supplements, as it is different advice from what I am getting.

Also, regarding the iron and the daily vitamin. It is very, very important that your daughter take a daily multi-vitamin with this disease. That is the first thing my GI told me when I was diagnosed, and I have been taking one every day ever since. Right now, because I am pregnant, I take a prenatal, but before I was pregnant, I took Flinstones chewables with iron. I know that sounds crazy, but it is true! Adults can take two Flinstones chewables a day and receive the vitamins they need, plus some extra iron if you choose the one with iron in it. My GI said it was a good way to go... and my OB even agreed with it as an option if I couldn't tolerate a prenatal. If your daughter is having trouble with vitamins, maybe give the Flinstones a try.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)

Posted 2/4/2008 2:51 PM (GMT -6)
Flinstones vitamins have artificial sweeteners in them so something to consider for anyone wanting to avoid them.

q
*Heather*Status: mini flare Dec 28... tapered to every second night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 2/4/2008 4:59 PM (GMT -6)
"Total" cereal.
Dx Left-sided UC Dec. 2006
Currently:
Azathioprine 200mg/day
Prednisone 2.5; 7.5; 10/7.5mg(trying to taper-started at 60 6/1)
Lialda 2/day
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic

Posted 2/5/2008 10:31 AM (GMT -6)
Slow-FE worked for me, as well, when other iron supplements didn't. I found Centrum to be too harsh for my system, but can tolerate Forvia quite well. They have a chewable as well - and it dissolves really fast - doesn't leave the super gritty feeling that I get from Flinstones or the Centrum chewables.

I'm very glad to hear that your daughter has found friend with UC/Crohn's. That kind of support is wonderful!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

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