Autoimmune Mess

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Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 2/1/2008 10:41 PM (GMT -6)   

Anyone know anything about an autoimmune system gone awry?  I was diagnosed with Celiac disease almost 3 years ago.  Shortly there after I was diagnosed with polycystic ovarian syndrome.  Just two days ago I was diagnosed with Ulcerative Colitis and back in September insulin resistance.  I just don't know when it is going to stop.  I feel like my body, despite my best efforts, is at war with itself.  I can't help but wonder what is next?  What is so odd about all of it is that when they do blood work the results are pretty good...no anemia or vitamin deficiencies etc.  I follow a very strict and very healthy gluten and lactose free diet.   I look very healthy and every doctor I see tells me how healthy I look and that I certainly don’t look sick.  Unfortunately I feel like garbage most of the time and as soon as they start digging for anti-bodies and doing endoscopies, colonoscopies, cat-scans etc they find all kinds of things going on.  No one in my family has any of these issues so either I am adopted and don't know it or there is something in my body that has gone nutty.  Instead of 29 I feel 90.  One thing I found is a condition called hypochlorhydria which is basically low stomach acid.  There seems to be some connection with this condition, celiac and UC.  Sorry for the ranting but I am just going through a period of self pity.  But if anyone knows something about an autoimmune connection for all of these issues I would love to hear about it.  Ugh sad  


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 2/2/2008 4:06 AM (GMT -6)   
Wow, I didn't realise all you were going through. Interesting about the hypochlorhydria....what is it that you're doing about that..taking HCL supplements?

Have they checked your thyroid? Have they done all the relevant blood testing for specific markers..etc?

What type of doctor are you seeing? I can relate to the feeling 90.

What are all the meds you're taking at this time?

It's great you're looking good and keeping your food intake healthy and nutritious.
I hope the docs will help find you more answers.

quincy
*Heather*Status: mini flare Dec 28... tapered to every second night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/2/2008 8:57 AM (GMT -6)   
I can't offer much insight for you regarding your autoimmune issues. I just wanted to say vent all you want and never apologize! I too have a few autoimmune issues that I've been dealing with thru out the years so I can relate. But I like Q's suggestion about having your thyroid checked if you haven't already done so. The messed up thryoid can do so much damage. I've had mine tested numerous times but luckily it's always came back in the normal range.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 2/2/2008 9:39 AM (GMT -6)   
Thanks for your replies. I actually have had my thyroid checked several times and thankfully it has been normal. I am not on too much medication just metformin for the PCOS/IR and I just started Lialda for the UC. The hyphchlorhydria is my own diagnosis :). Before taking the metformin I had about 5 loose BMs a day sometimes more and even worse when I suspect my UC was flaring. After about a week on the metformin I noticed that I now all of the sudden has solid BMs and frequency decreased to about 2-3 a day. Which I found to be really odd since metformin traditionally causes D in a lot of people. I started the metformin in September and since I have been on it this reaction has been consistent. The only time I do not have solid BMs now is when the UC is flaring. None of my Docs have been able to explain this but I found a study online where they used metformin to treat hypochlorhydria and it appears that it was somewhat successful. It could also be that my hormones are out of whack and the Met is helping them get back in place but I don't think I would seen such a dramatic reaction in 1 weeks time if that was the case (especially since I was only taking 1 pill a day the first week). I am back at the doc again in 2 weeks and I am going to push this on him because I really think he should look into it more. I part I am bummed out about the UC diagnosis but I have been going on for so long with these issues that I am happy to be able to have it properly treated. I really have to thank the people on this board that encouraged me to seek out a new GI. My old one had me diagnosed with IBS and was not really willing to do much other investigation. My new doc is great and he is keeping a close eye on me which is comforting to know...and not something a lot docs are willing to do.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/2/2008 9:56 AM (GMT -6)   
Having a good doctor makes a world of difference. It also gives us confidence in persuing matters especially when you have a good health provider by your side. I had to search high and low for my primary but I finally found her. She is truly a godsend because she is willing to think outside the box, which I think for many of us, require that. I also agree that when something has been wrong for so long that it's good to finally put a name to what ails you even if it's not a nice thing such as Uc. I think it's a peace of mind thing.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/2/2008 11:51 AM (GMT -6)   
Wow, sorry to hear you're having so many problems all at once. I also have dealt with any number of autoimmune issues. The docs say if you have one, you're significantly more likely to get others. I say it's all one thing - autoimmune disease - and the UC, Graves disease, dermatitis, etc. are just the same disease manifesting itself in different parts of my body.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

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