tkctwbd, do you know how much of your colon is involved?
There are a number of things to consider before deciding on surgery:
- Have you ever tried rectal meds? Mesalamine or cortisone enemas can help with the proctitis. Oral meds don't always make it all the way to the rectum.
- Have you tried any other "first-line" drugs? Balsalazide (Colazal) has worked for quite a few of us who didn't respond well to Asacol.
- Probiotics are a great idea, I can't imagine why your GI would tell you not to take them. Most UC-ers do take a probiotic daily, and especially when taking any antibiotics.
- Once your fever is conquered, you might look into Remicade or Humira. Remicade has been around long enough that you can find a lot of discussion of it on this forum if you doa search.
I have to tell you, the thought of someone with UC taking 8 Imodium a day makes me shudder. Usually, we're told to avoid Imodium because it slows the motility of the bowel and can lead to toxic megacolon, which required emergency colectomy and can be fatal. Sometimes our docs will okay 1 - 3 a day, but 8 is a lot.
Finally, be wary of people promising "cures." At this time, the only cure known is surgery, although most of us never have to go to that extreme.
Welcome to the forum. I'm sorry you're having such a bad flare, and hope you'll find support here and perhaps some information to help you.