Posted 2/19/2008 11:26 AM (GMT -6)
Hi
I am new to this site. I want to share my husbands story with UC and Prednisone maybe this will help someone.  Was diagnosed with UC about 20 years ago,been on all the sulpha drugs
still on sulphasalazine and rowasa enemas for flare ups.  prescribed prednisone on and off
last on prednisone for almost 8 years straight!  Every time his doc would prescribe,we would argue about with him the obvious side effects, bloating,weight gain,short temper,irritability etc.,but this was the only thing helping the flare ups.   about 3 years ago we discovered
that most flares came after he ate anything with oranges.  He stopped oranges and eventually all citrus fruits and started to see results.  We finally realized that it was citric acid that caused his flares.  Citric acid is in almost everything, canned, bottled processed
foods, snacks, soda,even lunchmeats and sausage.  We are now avid label readers,and can cook without any citric acid.  No more flareups for two years.  During this time he weaned himself off the steroids and suffered extreme side effects. Huge, rapid weight loss, joint pain, abdominable pain.  After two months he looked like he aged ten years.  I went online and found out that steroids were only masking his symptoms and caused damage to his bones and joints.  He swears he will never take prednisone or any steroid ever again no matter what the doctor says.  Each persons reaction to drugs is different, but I would warn anyone from being on steroids for a long time,even on and off.   The good news is
he was able to regain his strength by slow weight training and put on weight slowly .   He has gone almost two years without any trouble ,but now is having a bad flare up.
We are still avoiding citric acid and are now starting heavy probiotics along with the sulfa
and rowasa.   Hopefully this regimen will put him in remission soon. 
Good luck to everyone, hope this helps someone out there even if it is only for a short time. 
 
Posted 2/19/2008 12:17 PM (GMT -6)
I am prediabetic basically meaning the pred has raised my sugars and I am not yet type 2 diabetic but on my way, so I need to cut out carbs (veggie carbs are ok) and sugars (fruits are ok) and also doing low salt.

Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 2/19/2008 12:42 PM (GMT -6)
Predisone should never be considered a long term treatment plan for UC. The problem is that many of the awful side effects from pred-use may not be discovered until years down the road, even having been off the drug for many years. Any GI that would either encouage or allow his/her patients to stay on this drug long term should not be practicing medicine-in my opinion.

Prednisone is a life saving drug for those with asthma, organ transplants, and other health issues that have no alternatives. UCers have options to prednisone usage and should use the other safer medications, or resort to surgery rather then remaining on steroids.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Posted 2/19/2008 1:29 PM (GMT -6)
you really need to be concerned if you have been using prednisone for years.  a short course of pred will minimize any long term side effects you may experience. 
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!

Posted 2/22/2008 9:50 AM (GMT -6)

NoCitric - On average, about what dose of prednisone was your husband over those eight years would you say?


Ben, 38
 
Symptoms started 10/06, diagnosed 4/07.
Currently taking daily 15mg Prednisone, 75mg 6MP, calcium w/D, 1/2 Prilosec (protects stomach from prednisone), probiotic, multivitamin, double strength fish oil (2).

Posted 2/22/2008 8:59 PM (GMT -6)

BenY,

My husband was on 35 mgs down to 5mgs during that time.  If you have to take it, I would keep the duraton as short as possible.  I'm sure some people are extra sensitive to steroids,

My son was given a inhaled steroid for asthma, and he ballooned up just like his dad within two weeks, and had mood changes, needless to say we took him off asap.  Maybe you can tolerate it better than some, I wish you good luck.   We are still waiting for some improvement hopefully from the probiotics.  

No citric  

 

Posted 2/23/2008 2:26 PM (GMT -6)
Suebear - about your quote below...I didn't know about this. What kind of side effects do you mean? Not that I really want to know. I've been on an average of 20mg for 9 months now.

"The problem is that many of the awful side effects from pred-use may not be discovered until years down the road, even having been off the drug for many years"
Ben, 38
 
Symptoms started 10/06, diagnosed 4/07.
Currently taking daily 15mg Prednisone, 75mg 6MP, calcium w/D, 1/2 Prilosec (protects stomach from prednisone), probiotic, multivitamin, double strength fish oil (2).

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