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TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 2/3/2008 8:08 AM (GMT -6)   
Every joint in my body hurts, been hurting for days...cant hardly walk till the tylenal kicks in.  Never had this before.  Could it be one of my medications?
Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, prednisone 40m 30m 25m 40m, 35m 30, 50m multi vitamin, Azathioprine 100m (started 1/9/08) levsin,canasa, flagyl, cipro


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 2/3/2008 8:40 AM (GMT -6)   
Prednisone can certainly cause joint pains. I'm not certain of the other medications. I'm in Cortenema and I started get a few joint pains here and there as well. Feel better!
15 cm left sided colitis
currently on a trial of cortenemas,
and now doc added cortifoam i nthe AM and lialda
nothing seems to be working.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/3/2008 8:42 AM (GMT -6)   
Lori, it's most likely from the Pred taper. Most people complain of joint pain when discontinuing Pred. The good news is that it usually goes away after you've been off Pred for a while. One more joy of our beloved/hated med.

You might try the Thermacare wraps on the most painful joints. You can leave them on all day, and I find them very soothing.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 2/3/2008 8:43 AM (GMT -6)   
It recently happened to me in my left knee and right hip about 3 weeks after finishing prednisone and then also before a mild flare. I still dont' know for sure what's going on with my body! GP did x-ray of knee and said it was "mild arthritis" and prescribed an NSAID ( a no-no). GI said just keep taking the tylenol and that it may be related to UC. There are others on the board who have a certain type of arthritis due to UC. I hope they will post. Meanwhile, I like a bag of frozen veggies on my knee and tylenol, the best, to help with pain--especially after walking. I hope it gets better and you may just want to go to the doc to make sure. It is no fun to feel like this and we need their answers,too!!
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg 2X/day as of 1/22/08
 


Candy02783
New Member


Date Joined Feb 2008
Total Posts : 9
   Posted 2/13/2008 11:40 PM (GMT -6)   
joint pains was how i discovered i had crohn's colitis. It might be ur colitis getting worse.  first thing was my ankle swelled, then my left foot, then second to last toe on my left foot, then my right knee.. They didn't know what was worng with me. finally they did a colonoscopy and diagnosed me.  I would stick to the tylenol and elevate ur legs and do leg pumps if the joint pain and swelling is in ur lower extremities.  I am against NSAID, I was prescribed Indomethacin cause the swelling was so painful and bad, but it was just a circular effect, the pain went away but the swelling took forever to go away cause the NSAID was just irritating my colon more.
25 year old female, Diagnosed with Crohn's Colitis May 2007
May 2007-August 2007 Entocort 9mg
September 2007-February 2008 Entocort 6 mg
Currently tappering off Entocort- on 3mg right now
Asacol 400 mg- 4 tablets, twice a day (morning and dinner)- Since January 25th, 2008
Seasonique- 3 weeks on 1 week off--taking it like normal birth control not like your suppose to take it.
 
Current Symptoms- 2 to 3 times a day bathroom; previous symptoms right knee and left foot swell(last time this occurred was during law school finals time in December 2007)


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 2/14/2008 12:05 AM (GMT -6)   
I get this when I am going into a nasty flare.

As Judilyn said, it is also one of the nastier side effects of Prednisone withdrawal. I got this. It lasted around 8 weeks after I stopped the prednisone. Slowly got better over that time.

I don't need much of an excuse to have a hot bath, but due to the drought we've been having here in Australia, it hasn't been much of an option - BUT, a hot bath, and I mean really really warm, helped me heaps when the pain was really bad.

All the same, I'd suggest you go to the GI or doctor or both and get a CRP (inflimation index test) done and see how your inflimation is going... If it is a flare, best catch it now, but its more likely the pred withdrawal. In which case, lots of nice hot baths :-)
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 1x6-MP twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 1xteaspoon of Metamucil smooth powder 3 times a day;
    - 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day;
    - 3xGarlic Oil caps 2 times a day, 5mL Olive Leaf Extract 2 times a day.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 2/14/2008 8:25 AM (GMT -6)   
Hey Lori, I was just going to do a post about this; I've been having terrible joint pain and was in bed about 6:30 last night but it sure did feel good. I get this every so often and my knees and fingers seems to be the worst, yet I almost feel like my whole body seizes up. I'm on Remi, and my treatment is next week. I also believe my body is "flaring" even though I don't have the urgency and blood symptoms. I also have almost a fog or exhausted feeling to go along with it. So the best place for me is in bed...and this is coming from a person who is pretty active! I figure it's one way my body tells me to slow down! So it could be a combo of the pred taper and just plain ole' UC kicking in. Hope you feel better soon.

Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/14/2008 3:28 PM (GMT -6)   
I have been having problems feeling some rigidness in my joints when getting up after sitting for a while, it's like I need to stretch out and then I am ok to move but walk a little funny at first like I am about 40 years older than I actually am, then I am ok.

I just started back on the treadmill and elliptical (the lowest levels @ 45 and 20 min respectively) a few weeks ago after not going to the gym regularly for about 5 months, so maybe that is why too??
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 2/14/2008 8:42 PM (GMT -6)   
Unfortunately, joint pain goes with our UC territory-- be it inflammation, side effects from med, change in the weather, you name it! Monday AM the weather turned very cold where I live-- 10 degrees + windchill when I left for work. Bundled up as I was, my left knee started to hurt just outside the bldg where my workplace is located! By the time I got inside, I felt really uncomfortable using the stairs. That continued all day. Now the weather has warmed up to the high 30s & my knee pain went away on its own, TG. Otherwise I would go for Severin's hot soak, and/or Ben Gay Arthritis Formula lotion. Hope you'll soon get rid of the joint pains, too. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/14/2008 9:32 PM (GMT -6)   
yes, joint pain is reported as a common side effect of weaning from prednisone but the arthritis could also be due to an autoimmune disorder much like uc.

i get it when the pred starts to wear off. i'm down to 7.5 mg, so it's a pretty low dosage. a couple more weeks to go.
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


Candy02783
New Member


Date Joined Feb 2008
Total Posts : 9
   Posted 2/14/2008 9:46 PM (GMT -6)   
I am on asacol 400mg 4 tablets a day. I was wondering what are the regular side effects of the drug.
25 year old female, Diagnosed with Crohn's Colitis May 2007
May 2007-August 2007 Entocort 9mg
September 2007-February 2008 Entocort 6 mg
Currently tappering off Entocort- on 3mg right now
Asacol 400 mg- 4 tablets, twice a day (morning and dinner)- Since January 25th, 2008
Seasonique- 3 weeks on 1 week off--taking it like normal birth control not like your suppose to take it.
 
Current Symptoms- 2 to 3 times a day bathroom; previous symptoms right knee and left foot swell(last time this occurred was during law school finals time in December 2007)


UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 2/14/2008 9:58 PM (GMT -6)   
ditto what most others are saying. i had it extremely bad when tapering pred but that was last year. i get it in a minor way now from time to time but just recently as the temps dropped and we got some sleet and stuff it has been acting up pretty bad. mine jumps around, earlier in the week it was the wrists that were aching now its made its home in my knees. it seems to come and go but the weather really makes things flare up sometimes...spring should be on its way soon for us in the northern hemisphere so hopefully things will improve

 
 
__________________________________________________________________________________
- 29 y/o professional male residing in Northern Virginia
- Indeterminate UC Diagnosis - April, 2006 - Symptoms were sudden and drastic - with appearance of fistula now testing for Crohns
- Completed 3rd Prednisone taper on 4/13/07 - Tapered from early January through mid-April after being hospitalized from a bad flare with anemia & severe joint pain.
- Currently in remission and enjoying life again since getting out of the hospital in early Jan 07' from a nasty flare
- 4 Colazal/day, Multivitamin, Fish oil & Primal Defense Probiotics
- Enjoy the outdoors, relaxing and spending time with family and friends


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 2/14/2008 10:22 PM (GMT -6)   
Well, my boyfriend is upset with me because he says I shouldn't have to live with the pain. I take Aleve (it doesn't bother me) but can I ask what others take? I'm headed for the warm soak, but just wondered if anyone took more than an OTC to help with the pain. And not that I need another pill! :-) Just wondering.
Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


serendipity24
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 2/15/2008 12:56 AM (GMT -6)   
In addition to what everyone else has mentioned...

TAKE CALCIUM SUPPLEMENTS if you're on pred, tapering, just off of it...you get the picture. Prednisone mobilizes Calcium away from the bones to supply it to the rest of the body (part of the sustained cortisol levels)--you need to replace it! Be sure your supplement also has Vit. D or your body can't absorb the Calcium.

And to Loneylane (Carol)--I would recommend against the Aleve just because you're already in an immunosuppressed state on the Remicade. Any ulcers or other kidney/liver disease caused by this drug will be more difficult to heal from. I admit, I've taken Aleve once in a while too when the pain is really tough to deal with, but try to only stick with Tylenol.
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas

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