does 6mp make your body feel tired?

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 401
   Posted 2/3/2008 1:08 PM (GMT -6)   
it's been about 10 days on 50mg of 6mp and my daughter said today that her body feels very tired. i asked if it felt like brain fog too, but she said no her muscles are tired.

i know some of you are going to point ot her diet but believe me she's eating alot of chicken, tukey, sweet potatoes -touch of pasta, peeled apples, and eggs, so there is no car withdrawal going on.
i'm wondering if it's the 6mp-thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/3/2008 1:13 PM (GMT -6)   
I'm on Imuran and yes I feel tired all the time. I counteract it by taking the Imuran at night and making sure I workout regularly. Has she had her thyroid checked?

This disease in general can make anyone feel worn out!
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100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 401
   Posted 2/3/2008 3:45 PM (GMT -6)   
i need to find out about the thyroid but she wasn't tired until today-will check that tomorrow at gp visit, and will ask her if she takes 6mp at night-thank you
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 2/3/2008 7:16 PM (GMT -6)   
I am on 6-MP and I will say that YES - it definanty does this to me. By midday my body starts to feel weak as a puppy all over. This comes and goes in waves. I'll be fine for months, and then get a bout of it for a week or two.

I am on 100mg of 6-MP per day.
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 1xDesert spoon of Metamucil smooth orange 3 times a day;
    - 3xGarlic Oil caps 3 times a day, 7mL Olive Leaf Extract 2 times a day.


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 2/3/2008 7:21 PM (GMT -6)   
Hi. I take 50 mg of 6mp per day. I have for nearly 2 years and I've never thought that it makes me tired. I've definitely had months when I feel lethargic, but I think that if it were the 6mp, I'd feel like that all the time. Exercise always helps me. Even some light stretches can help me feel more energetic. (But, of course, I have to be well enough to feel like doing that. Hard to stretch when you're stuck in the bathroom all day.)

One thing I do is split my 50 mg pills in half -- I take half in the morning and half at night. Since I've done that my blood tests are better and I think my body is metabolizing the drug better. If taking it at night doesn't work, she could try that next.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


Kelsie
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 2/3/2008 8:27 PM (GMT -6)   

yeah  When my teen was on it they were fatigued, but when we increased the dose it got REALLY bad--said legs felt "numb", was so weak and couldn't get out of bed while at the higher dose but to go to the bathroom and MAYBE the kitchen to get something to eat in bed.  Dr. didn't believe it could do that, but it sure did--that is why we went with Remicade.  Great decision for us--feels totally normal again!!  We figured if you are still doing so poorly what good is the medication when you still can't function?  I guess it all comes down to personal tollerance and expections of quality of life.  Luckily our other option (Remicade) has been a Godsend!  We were SO freaked by the potential side effects, but now we are just freaked that it will quit working!!  It is so hard when the meds to help fight the disease have such terrible possible side effects!!  We just try not to think about the "what ifs" and enjoy every day of feeling great.  We know if/when Remicade stops working we will most likely be facing surgery (we hope there are other options available at that time), but until we have exhausted everything, we aren't about to go there yet.

Good luck!! 

Kelsie (mom of UC teen--moderate/severe pancolitis; Remicade only now and doing wonderfully!)


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 401
   Posted 2/4/2008 8:37 AM (GMT -6)   
thanks for the responses
to kelsie- i hope remicade never stops working.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50

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