prednisone insomnia

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ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 2/4/2008 5:06 AM (GMT -6)   
never had prednisone insomnia until last night....only at 20 mg...any suggestions?
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/4/2008 6:44 AM (GMT -6)   
I had pred. insomnia the entire time I was on it. Suggestion wise...I took a warm bath at night and read to calm down. I had a newborn at the time so sleeping pills were not an option for me.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/4/2008 7:54 AM (GMT -6)   
I have terrible insomnia with Pred. Since I didn't want to take sleeping medication, I just tried to relax and decide that when my body needed sleep, it would take it. Also, I learned to sleep when I could. The "experts" always say if you have insomnia, don't take naps, go to bed at the same time every day, blah, blah. None of that worked for me. I went for a long time refusing to let myself nap so I'd sleep at night. What I found was that naps made no difference in whether I slept at night. So, following my dear husband's suggestion, I started sleeping whenever I could. If I was home and felt sleepy, I laid down and slept for thirty minutes or an hour.

If you don't mind taking another med, try calling your doctor and asking for something to help you sleep.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 2/4/2008 10:02 AM (GMT -6)   
On high doses of pred, much higher than 20, i would only sleep for about 4 hours a night. i took advantage and watched the sun rise, read books, and as judilyn said slept when i felt i needed it. It was actually kinda of nice. I took a vacation in the mountains and the sunrises were amazing.

I agree with Judilyn, if you need a regular schedule and don't mind the meds, call your doc.

Good luck!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 2/4/2008 4:02 PM (GMT -6)   
When I've had problems I take a couple Tylenol PM. Doesn't leave me feeling groggy, but YMMV. This past summer when I was on between 30 & 60mg I actually loved it. I was able to get to sleep most of the time at a reasonable time, and would wake up at 5 a.m. ready to go (I'm not a morning person!) Pred. isn't all bad!
Dx Left-sided UC Dec. 2006
Currently:
Azathioprine 200mg/day
Prednisone 2.5; 7.5; 10/7.5mg(trying to taper-started at 60 6/1)
Lialda 2/day
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic


SGRUBB
Regular Member


Date Joined Jun 2007
Total Posts : 67
   Posted 2/4/2008 5:15 PM (GMT -6)   
Funny thing....I am back on 60mg of pred due to a bad flare I am having and just last night...after being on this for almost 5 days now, I am having major insomnia! The pred is still not totally working for me yet though. I am giving it two more days...and then may have to see what is up because I feel worse then I have have on it. Usually I tolerate it very well, but not this time.
UC diagnosed in 1985...22 years.


Was on Remicade...no longer working for me as of January 30, 2008



50 mg 6mp, Rowasa and Cortenemas as needed.
Probiotics and Aloe Vera Gel (Just started this a few days ago...)


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 2/4/2008 5:39 PM (GMT -6)   
i only weigh about 20 lbs, but do you think 20 mgs could actually be causing this? i had been tapered but settled on 20 for longer than a week - maybe my body is used to the taper? how ever my uc is better than its been a while. today even though i was exhausted, i didn't have much of an urge to go, kinda weird. btw, thanks to everyone's reply - always good to know in my frustration that i'm not along although i wouldn't wish this on anyone.
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/4/2008 7:02 PM (GMT -6)   
PMI, it depends on your body's response. I have trigger fingers in both hands, and the treatment for these is steroid injections into the tendon sheaths. The last time I had this done, I had insomnia for about two weeks. Just from having steroid injections into my hands! So it depends on how sensitive your system is to it.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 2/4/2008 7:07 PM (GMT -6)   
I know how you feel. I'm only on Cortenema yet I totally am experiencing the "rush" if you want to call it that. I feel tired, and sleepy, but I can't sleep. It's the worst feeling. At the same time I don't feel like doing any work either. I hope I can come off of these soon!
15 cm left sided colitis
currently on a trial of cortenemas,
and now doc added cortifoam i nthe AM and lialda
nothing seems to be working.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/4/2008 9:21 PM (GMT -6)   
Prednisone needs to be taken as early in the morning as possible to avoid insomnia, because pred can cause racing mind it attributes to insomnia so it's best to take your pred first thing in the am.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 2/5/2008 5:22 AM (GMT -6)   
hey, i slept great last night! hopefully that's the end of the insomnia....knock on wood. thanks everyone
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/5/2008 8:04 PM (GMT -6)   
I take Tylenol PM and it usually helps me sleep at night and its fairly gentle. I was prescribed Ambien and Lunesta and neither really worked for me. Ambien made me feel very uneasy and the Lunesta gave me a headache.

If I am still awake after an hour or so I'll take a Xanax, between the Ty PM and the Xanax that usually does it til my alarm goes off in the morning.

I have to get up at 6 am and if I don't get a full eight hours of sleep I am useless the next day. I also need an hour nap in the afternoon. I think it's the inflammation my body is fighting. But with the Pred wanting me to be awake (that "racing mind" someone else mentioned) it can be a battle to get all the sleep I need.
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, 1/30, 30 mg. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules
12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran (2/07)


UC2008
New Member


Date Joined Feb 2008
Total Posts : 12
   Posted 2/9/2008 10:18 PM (GMT -6)   
I'm currently on50mg of pred. and i only sleep about 4-5 hours a night. It's horrible!!!! i'm such a 8 hour sleep girl and it's killing me. I usually take a xanax at night, it helps me fall asleep. I just am not a big fan of taking any more meds, but sleep is very important right now and u need to do what u can to get some. The weekends i usually nap when possible. Definitly crappy- makes me moody. mad

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/9/2008 10:32 PM (GMT -6)   
mood swings are also a side effect from pred....take your pred first thing in the am to aid with insomnia but it won't help with the mood swings.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/9/2008 10:38 PM (GMT -6)   
I always took my Pred at 6 AM. Didn't keep me from being up until 2 AM, and nothing I tried overcame it. My system just doesn't tolerate steroids well, I guess. Sometimes I was so sleep deprived I hesitated to even make a decision because I didn't feel my brain was working all that well.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 2/9/2008 11:21 PM (GMT -6)   
I have been taking Ambien every night since I've been on steroids and I will continue until I get off these darn roids. I teach high school and go to school at night, I cannot afford to be "out of it" or I'm worthless. Don't make yourself sicker by becoming sleep deprived is what I say. If you are on steroids you are already taking one of the nastiest drugs there is, may as well throw some good sleeping pills in the mix!

CityWoman
Regular Member


Date Joined Jun 2004
Total Posts : 123
   Posted 2/12/2008 6:29 AM (GMT -6)   
I didn't sleep a full night for more than a year.
 
Up at 1, then 3, then 5 I was out of bed.
 
I tried to relax. I didn't take anything to help me sleep.
 
This was just 1 of the symptoms I had on pred.
 
Talk to your GI and see if he / she can help.
 
Judy

February 04: Rushed to hospital with severe blood haemorrhage. Diagnosed with indeterminate UC in 2/3 of my bowel. Treated with heavy doses of Pred; started Salofalk tabs and sups.

 

April 06: First major flare – more haemorrhaging. Colonoscopy once against confirmed indeterminate UC.

 

May 06: Started 40 mg Pred. Weaned down to 10mg by July 8, held at 10mg until December 20, tapering 1mg every 2 weeks, 5mg a day as of February 14. All this plus 10 Salofalk tabs daily.

 

Jan through May 2007: Suffering from severe headaches and vomiting likely caused by prednisone.

 

Feb 26 07: Started Imuran with continued success.

 

May 12 07: Final dose of prednisone after 50 weeks!


~:*OneLove*:~
Regular Member


Date Joined Sep 2006
Total Posts : 64
   Posted 2/12/2008 9:57 AM (GMT -6)   
Tell your doctor! I had insomnia before I ever started taking steroids. I would literally go days and days without sleep, to mention the slew of other side effect that the "crazy pills" brought to town. Thank goodness I told my doctor and was perscribed Ativan. It helped me to sleep and counter the mental disorganization I was having as well. After I got off the steroids, I switched to Ambien for long term maintence of my insomnia... it knocks me out quick and keeps me asleep. You don't have to take it every night. Before having UC I just dealt with my insomnia and lived with it which was fine then.... but as the other posters have mentioned... Sleep deprivation is really the last thing you need when in your condition... it will only make it harder for you to heal. You need all the strength you can get!!!

~*~*~*~*~*~*~*~*~*~:* ONE LOVE *:~*~*~*~*~*~*~*~*~
Current Symptoms: None!!!!! In remission since Nov. 2006 (woooohoooo!!!)
History: Diagnosed Oct. 2005, flared for 1 year. Hospitalized 9 days Sept. 2006. 2 Blood transfusions, 1 Remicade injection. Drugs:Asacol,Probiotics (Primadophillis Returi), Fish Oil 1000, MultiVitamin, B-12, Biotin, Vitamin-E oil & Cinnamon pill (occasionally). Diet: Vegetarian (Fish/Eggs/Dairy) & SCD diet (somewhat)


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 2/12/2008 10:05 AM (GMT -6)   
I had the insomina as well, my suggestion get a netflix account deal with it.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/12/2008 12:51 PM (GMT -6)   
i've never had it either (tho have had all the other side effects = ) and been at 60/40 alt days, up until a few days ago, now at 40mg a day. I feel more clear headed the past couple of days.

Hope you are ok!
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 2/12/2008 4:39 PM (GMT -6)   
hey all, i am doing great as far as the insomnia...seemed to be a one time thing, lets hope it stays that way, thanks for all the help!
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/12/2008 5:13 PM (GMT -6)   
I know I have issues with insomnia around my period time regardless of being on prednisone, anyone eles notice a pattern with insomnia and their periods?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Sunshine9
New Member


Date Joined Feb 2008
Total Posts : 1
   Posted 2/12/2008 9:36 PM (GMT -6)   
Brand new member. Haven't figured it out yet but have to provide input regarding insomnia. I use hypnotic sleep tapes/CDs....use little earphone plugs that aren't uncomfortable. I Never stay awake through a whole session...just drift off to sleep. Mine are about weight loss but you can buy all kinds. Worth a try. Sure do know what you're talking about regarding insomnia ...a great time to catch up on reading.

Sunshine9
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