Posted 2/4/2008 8:07 PM (GMT -6)
I know how you feel. I'm only on Cortenema yet I totally am experiencing the "rush" if you want to call it that. I feel tired, and sleepy, but I can't sleep. It's the worst feeling. At the same time I don't feel like doing any work either. I hope I can come off of these soon!
15 cm left sided colitis
currently on a trial of cortenemas,
and now doc added cortifoam i nthe AM and lialda
nothing seems to be working.

Posted 2/4/2008 10:21 PM (GMT -6)
Prednisone needs to be taken as early in the morning as possible to avoid insomnia, because pred can cause racing mind it attributes to insomnia so it's best to take your pred first thing in the am.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 2/5/2008 6:22 AM (GMT -6)
hey, i slept great last night! hopefully that's the end of the insomnia....knock on wood. thanks everyone
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax

Posted 2/5/2008 9:04 PM (GMT -6)
I take Tylenol PM and it usually helps me sleep at night and its fairly gentle. I was prescribed Ambien and Lunesta and neither really worked for me. Ambien made me feel very uneasy and the Lunesta gave me a headache.

If I am still awake after an hour or so I'll take a Xanax, between the Ty PM and the Xanax that usually does it til my alarm goes off in the morning.

I have to get up at 6 am and if I don't get a full eight hours of sleep I am useless the next day. I also need an hour nap in the afternoon. I think it's the inflammation my body is fighting. But with the Pred wanting me to be awake (that "racing mind" someone else mentioned) it can be a battle to get all the sleep I need.
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, 1/30, 30 mg. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules
12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran (2/07)

Posted 2/9/2008 11:18 PM (GMT -6)
I'm currently on50mg of pred. and i only sleep about 4-5 hours a night. It's horrible!!!! i'm such a 8 hour sleep girl and it's killing me. I usually take a xanax at night, it helps me fall asleep. I just am not a big fan of taking any more meds, but sleep is very important right now and u need to do what u can to get some. The weekends i usually nap when possible. Definitly crappy- makes me moody. mad
Posted 2/9/2008 11:32 PM (GMT -6)
mood swings are also a side effect from pred....take your pred first thing in the am to aid with insomnia but it won't help with the mood swings.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 2/9/2008 11:38 PM (GMT -6)
I always took my Pred at 6 AM. Didn't keep me from being up until 2 AM, and nothing I tried overcame it. My system just doesn't tolerate steroids well, I guess. Sometimes I was so sleep deprived I hesitated to even make a decision because I didn't feel my brain was working all that well.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 2/10/2008 12:21 AM (GMT -6)
I have been taking Ambien every night since I've been on steroids and I will continue until I get off these darn roids. I teach high school and go to school at night, I cannot afford to be "out of it" or I'm worthless. Don't make yourself sicker by becoming sleep deprived is what I say. If you are on steroids you are already taking one of the nastiest drugs there is, may as well throw some good sleeping pills in the mix!
Posted 2/12/2008 7:29 AM (GMT -6)
I didn't sleep a full night for more than a year.
 
Up at 1, then 3, then 5 I was out of bed.
 
I tried to relax. I didn't take anything to help me sleep.
 
This was just 1 of the symptoms I had on pred.
 
Talk to your GI and see if he / she can help.
 
Judy

February 04: Rushed to hospital with severe blood haemorrhage. Diagnosed with indeterminate UC in 2/3 of my bowel. Treated with heavy doses of Pred; started Salofalk tabs and sups.

 

April 06: First major flare – more haemorrhaging. Colonoscopy once against confirmed indeterminate UC.

 

May 06: Started 40 mg Pred. Weaned down to 10mg by July 8, held at 10mg until December 20, tapering 1mg every 2 weeks, 5mg a day as of February 14. All this plus 10 Salofalk tabs daily.

 

Jan through May 2007: Suffering from severe headaches and vomiting likely caused by prednisone.

 

Feb 26 07: Started Imuran with continued success.

 

May 12 07: Final dose of prednisone after 50 weeks!

Posted 2/12/2008 10:57 AM (GMT -6)
Tell your doctor! I had insomnia before I ever started taking steroids. I would literally go days and days without sleep, to mention the slew of other side effect that the "crazy pills" brought to town. Thank goodness I told my doctor and was perscribed Ativan. It helped me to sleep and counter the mental disorganization I was having as well. After I got off the steroids, I switched to Ambien for long term maintence of my insomnia... it knocks me out quick and keeps me asleep. You don't have to take it every night. Before having UC I just dealt with my insomnia and lived with it which was fine then.... but as the other posters have mentioned... Sleep deprivation is really the last thing you need when in your condition... it will only make it harder for you to heal. You need all the strength you can get!!!

~*~*~*~*~*~*~*~*~*~:* ONE LOVE *:~*~*~*~*~*~*~*~*~
Current Symptoms: None!!!!! In remission since Nov. 2006 (woooohoooo!!!)
History: Diagnosed Oct. 2005, flared for 1 year. Hospitalized 9 days Sept. 2006. 2 Blood transfusions, 1 Remicade injection. Drugs:Asacol,Probiotics (Primadophillis Returi), Fish Oil 1000, MultiVitamin, B-12, Biotin, Vitamin-E oil & Cinnamon pill (occasionally). Diet: Vegetarian (Fish/Eggs/Dairy) & SCD diet (somewhat)

Posted 2/12/2008 11:05 AM (GMT 0)
I had the insomina as well, my suggestion get a netflix account deal with it.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort

Posted 2/12/2008 1:51 PM (GMT -6)
i've never had it either (tho have had all the other side effects = ) and been at 60/40 alt days, up until a few days ago, now at 40mg a day. I feel more clear headed the past couple of days.

Hope you are ok!
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 2/12/2008 5:39 PM (GMT -6)
hey all, i am doing great as far as the insomnia...seemed to be a one time thing, lets hope it stays that way, thanks for all the help!
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax

Posted 2/12/2008 6:13 PM (GMT -6)
I know I have issues with insomnia around my period time regardless of being on prednisone, anyone eles notice a pattern with insomnia and their periods?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 2/13/2008 4:36 AM (GMT 0)
Brand new member. Haven't figured it out yet but have to provide input regarding insomnia. I use hypnotic sleep tapes/CDs....use little earphone plugs that aren't uncomfortable. I Never stay awake through a whole session...just drift off to sleep. Mine are about weight loss but you can buy all kinds. Worth a try. Sure do know what you're talking about regarding insomnia ...a great time to catch up on reading.

Sunshine9

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