Posted 2/5/2008 9:46 AM (GMT -6)
Hi Sue - Thanks for your detailed and thoughtful post. I really appreciate it.
I actually do have a surgical consult next month, with a top CR surgeon at the GI clinic at UNC-Chapel Hill. I believe he has done about 700 colon removal surgeries, and he is doing 1-step j-pouches laproscopically (though I don't yet know how many of those he has performed and will ask him that). I am not sure where I am headed with regards to surgery... I just know my quality of life needs to improve, and because I have not yet had my kids (I am engaged right now so we are thinking about it a lot), and because I am generally concerned about the long-term implications of remi, I am thinking of surgery instead of remi. Remi may not be a good option for me since you can't get pregnant on it and since I, personally, feels that it leads to a cycle of always being a first-generation user on a new/powerful drug, which is something I am uncomfortable with.
if you don't mind, would you give me some ideas of questions that you, personally, think are important to ask a surgeon. Obviously I will do more research, but any thoughts you have would be great.
by the way, where are you located? where did you have your surgery? how did you pick your surgeon?
thanks again for taking the time to answer my posts. It is so helpful and meaningful to have the opportunity to solicit your opinion since you have been through this already.
if it is easier, I could email you.... I checked for your email but it is listed as unavailable in your profile. if you would prefer that, please let me know and I will provide you my email address.