Do you know what dose of Remicade you're on?

SGRUBB

Regular Member

Joined : Jun 2007

Posts : 67

Posted 2/4/2008 7:46 PM (GMT -6)

I may have to have my dose of Remicade changed from 5mg to 10mg and then have it moved to 6 weeks instead of 8 weeks. I am going to find out next week depending on the results from my blood test. The blood work is going to be a check of the anti-bodies in my system from the Remicade. We'll see how this goes.

I have been on Remicade since June of 2007. I was doing well for at least 3 months or so maybe a bit longer but then, had a flare again. Was on some prednisone and then well, got a bit better and for the past month or so, major flare and I'm back on 60mg of pred. I had a colonoscopy last week and it showed that half of my colon looks good the other half looks bad...which is why I am back on the pred. Anyway, I personally don't think that the Remicade is working anymore but I am curious to hear what anyone else has experienced with this.

Thank you!

UC diagnosed in 1985...22 years.

Was on Remicade...no longer working for me as of January 30, 2008

50 mg 6mp, Rowasa and Cortenemas as needed.
Probiotics and Aloe Vera Gel (Just started this a few days ago...)

jujub

Elite Member

Joined : Mar 2003

Posts : 10407

Posted 2/4/2008 7:52 PM (GMT -6)

I'm on 5 mg./kg. every 8 weeks. This is the most common dose for UC, however some do need the higher dose and/or more often. Hope it works out for you.

Judy

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

~~Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine~~

Colazal, Remicade, Nature's Way Primadophilus Reuteri.

In remission since April, 2006. Remicade has been my wonder drug.

Co-Moderator UC Forum

princesscolon

Veteran Member

Joined : Apr 2006

Posts : 733

Posted 2/4/2008 10:14 PM (GMT -6)

I got upped to 10mgs every 6 weeks and it didn't seem to help and I think it caused my joint pains. I hope you have a better result than I did.

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: ~~Remicade 700mgs every 6 wks~~ (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil, Tylenol pm, Lyrica for Fibromyalgia started 1/17/08

Eva Lou

Veteran Member

Joined : Sep 2006

Posts : 3442

Posted 2/5/2008 9:56 AM (GMT -6)

I'm also on the 10mgs/kg, every 6 weeks. I started on the 5mg dose, it worked great for about 3 infusions, then the effects started to lessen. We tried the 10mg dose, have had 4 infusions at that dose- again, the first 2 worked awesome, & it has lessened since then. I mean, I still consider myself to be in remission, but I'm sure my GI would disagree! good luck! I fear that once the high doses lose effectiveness, you're pretty much screwed....

diagnosed with UC '02

meds-

Asacol- 8 tabs/day

Remicade infusions

Imuran- 100mgs/day

Prednisone- 5mgs every other day

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