My GI recently brought that up to me as well and I nearly fell off the exam table, I was like, whoa.....I don't even want to consider that. It's scary that there are so few options out there and I was terrified for a couple of weeks too.
The prednisone took a couple of months to start working for me at 60mg a day (I got worse after starting it - though I had to stop the Asacol so that is part of it, but still...) I went on Azathioprine Oct 16 and have been on it for 3 mos now, also hydrocortisone enemas really helped sort me out and they put me on cipro as well. Now I have 1-2 bm's a day, no blood, urgency is minimal but my stools are still stringy and not completely normal (i'll take it).
There are other options still, I hope they are able to get the right combo of meds to help you. Try to stay positive, ez to say, I know....
Major Flare Sept/Oct 07 ~ working on remission almost there
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.