New member, many questions

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UC2008
New Member


Date Joined Feb 2008
Total Posts : 12
   Posted 2/7/2008 10:28 AM (GMT -6)   
I'm a new member. I was just diagonsed with uc January 1st ( what a way to start the new year) I've been having stomach problems since the end of 2004. Had a colonoscopy my doctor said i was fine. I went to another one because the bleeding wasn't stopping and he said i had mild colitis- nothing to be concerned with. He told me ways to control it through diet. I never had lose bowls, always constipation. I went to an accupuncturist for a long time and actually all of my symptoms stopped for about a year. This december, they came back stronger and worse than ever. More blood and massive uncontrollable lose bowls. Finally i couldn't take the pain anymore, went to the emergency room January 1st, where they diagonosed me with severe uc. He scoped me 60cm and couldn't go any further because it was so bad. 60 cm is alot from what i have read here. They started me on iv steroids. I was there for 4 days. They sent me home on 40mg of prednisone, asacol 400 mg 2/3x day. He then upped my asacol to 12/day within 6 days. Shortly after, i began experiencing extremely bad body pain. My lower legs hurt so bad that i couldn't walk. My doctor swore it wasn't due to the medication. They admitted me to the hospital again to run tests to check for infection. Spinal tap and all. Everything came back clean. Within 2 days of being off the asacol my pain disappeared. I was in the hospital for 5 more days receiving iv steroids and iron. Now i am on 60 mg of prednisone, and every week with tapper down 10mg. He said he will start me on Pentasa soon. Has anyone taken Pentasa? I hate the prednisone. It makes my vision weird, my head cloudy, makes me sad. Sorry this is so long, i'm very scared right now. I am still going to work with my accupuncturist and i'm also starting to see a chiropractor. Also, trying to fing a new GI specialist because i feel that my current one doesn't listen to me. My doctor also told me that i can't take probiotics or fish oil, is that crazy? if anyone has any advice or feedback i would greatly appreciate it.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/7/2008 11:22 AM (GMT -6)   
Hi and welcome :) Some doctors don't believe in the benefits of probiotics but if you look at some of the posts here, you will here first hand account from Uc'ers that yes, probiotics do indeed help. I think you should start one as soon as you're able regardless of what your GI says. I understand your fear but know that we are here for you. Do you know where in your colon your Uc is? By knowing this, we can offer more advice on how to treat it. For instance, if your Uc is only in your rectum, you would probably benefit better from suppositories or enemas and if your Uc is higher into your colon, then enemas (Rowasa or Salofalk) would help. Or if the pain and bleeding is intense then you can use a steroid based enema such as Colocort. As for the Asacol, it could be that you are sensitive to the ingredients. I am too so my doctor switched me to Colazal and so far so good. Please take the time to read some of the older posts to see how others are coping and if you ever have a question or concern, don't hesitate to ask.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/7/2008 11:23 AM (GMT -6)   
hi and welcome, sorry to hear about all the difficulties. I have not taken pentasa but the prednisone side effects I can commiserate with.

Definitely get a new GI, I can't belive they told you it was mild and just control it through diet, that is horrible.

I hope you get your flare under control soon!
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 2/7/2008 11:46 AM (GMT -6)   
Hi and welcome to HW.One of the most important things you could have when dealing with adisease like uc is a good doctor.Find one whi is going to work with you to get you better.We've heard some crazy stories from doctors who don't seem to know much about UC.
You will find this site a great help and very informative.If there is any questions you have we will try and help you out.
I've been Pred loads of times.The side effects are nasty but the benefits massive.Are you taking any rectal 5-ASA MEDS. These enemas can really help with the healing process.I was on 60mgs of Pred so many times.It is not a nice place to be,mood swings,insomnia, hyperactive and dizzy:)
Youi are not alone, most of us have been there.Welcome to HW
mARTY
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


UC2008
New Member


Date Joined Feb 2008
Total Posts : 12
   Posted 2/7/2008 12:18 PM (GMT -6)   
thank u guys for all ur input!! it's nice to talk to people who are going through this also. I did go to a new doctor. He has me on prednisone 50mg, as long as i progress he'll drop me slowly each week. He also put me on colazal, 3/3x day. Hopefully i react better to this than the asacol. So far my bleeding has gotten better, but the bm's are different every day. Some days good, some days uncontrollable. He told me to take probiotics and iron supplements, so i've added that to my many pills.
My colonoscopy they went up 60cm into my colon, and it was so bad that he stopped for fear of puncturing anything. 60cm is alot from what i'm reading here. I may ask my new doctor to give me another one, i really need to know how bad it really is.
Thank u guys for ur feedback. I'm sure you'll hear from me alot.
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