CCFA symposium- chicago

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kb5
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Date Joined Jan 2007
Total Posts : 1015
   Posted 2/8/2008 8:47 AM (GMT -7)   
Hey all! Thought i would post his for anyone in the chicago area. Saturday March 29 there is an educational symposium about IBD. I have attended this several times and it is always interesting. Last year I posted tons of info about pregnancy and IBD that I got there. If you are interested in attending go to http://www.ccfa.org/chapters/illinois/ for more info on how to sign up.

If anyone wated to go and meet up let me know!

The way it works is there are four sections, each section you have a choice of like 5 lectures to attend. There is food and coffee and such as well as drug company reps giving free stuff.

It's also a great way to get family memebers more info. My husband went last year for the first time and is now picking which lectures he wants to see. It's especially good for those recently diagnosed, you can learn alot about the options out there for us and talk to some really great doctors.

Hope to see some of you there!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 2/8/2008 9:26 AM (GMT -7)   
I'll be attending this event and am looking forward to it.
Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Prednisone 10mg.
Canasa
Multi-Vitamins
Calcium with Vit. D Tablets


ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/8/2008 1:19 PM (GMT -7)   
My daughter and I will be attending this as well. It is well worth it.

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/12/2008 7:32 PM (GMT -7)   
I will be there too! I am looking forward to the sessions on new surgical techniques (Dr. Fichera), IBD Therapies for the Crohns Patient (Dr. Hanauer), Safety and Effectiveness of Medications (Dr. Sales), and To Eat or NOt to Eat (Joan Kanute). There were 16 session to choose from and it was hard to pick out just 4!

Erica
Erica
Crohn's and Ostomy in 2004


ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/12/2008 8:12 PM (GMT -7)   
Dr. Fichera was Ally's surgeon. He's a great guy!

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 2/12/2008 9:25 PM (GMT -7)   
Please pass along what you guys learn. Thanks.
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade remission


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/14/2008 8:05 PM (GMT -7)   
You can register online....here are the links:

patient/family registration:
http://www.register123.com/event/profile/form/index.cfm?PKformid=0x514996d34f

or you can go to
http://www.ccfa.org/chapters/illinois/

Erica
Erica
Crohn's and Ostomy in 2004


RobynO
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted 2/17/2008 6:13 PM (GMT -7)   
Just signed up and looking forward to going! It was great last year!!!!!

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/18/2008 4:49 PM (GMT -7)   

Hope to see you there! :-)


Erica
Crohn's and Ostomy in 2004


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 2/19/2008 7:27 AM (GMT -7)   
My husband sells insurance, one of his favorite insured called yesterday and his wife is in the hospital and just dx'd with UC. Boy did he call the right guy! He told them about ccfa, healingwell, and the symposium. Now we are meeting up with them for lunch while there.

It's great to meet others with UC face to face.

See you there!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 2/19/2008 11:10 AM (GMT -7)   

I was unsure if I could fit this in my schedule, etc. but I'm so excited to possibly meet other people with UC and to network with you guys, I'm trying my hardest to sign up!

Becky


29 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 7.5 mg!
-Re-trying Imuran; I'm at 100 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D(for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/19/2008 9:10 PM (GMT -7)   
As we get closer to the date perhaps we can post a place to meet at the conference?
 
Erica
Erica
Crohn's and Ostomy in 2004


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 2/20/2008 7:36 AM (GMT -7)   
Erica that sounds great!

My husband and I will be attending: (or at least we signed up for)
102 extra intestinal complications
201 IBD therapies for UC
303 Surgical solutions (i've avoided this one the past few years...)
402 safety and effectiveness of medication

Last year there was a great one about yoga and IBD i was sorry to see it wasn't there this year. But i'm still excited
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/21/2008 10:20 AM (GMT -7)   
Sounds good! I might be helping out in between sessions at the University of Chicago's table....not quite sure what the plan is as of yet.

Erica
Erica
Crohn's and Ostomy in 2004


chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 2/21/2008 11:25 AM (GMT -7)   
That would be awesome to meet up.  I'll be looking for a post! :)
Becky

29 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 7.5 mg!
-Re-trying Imuran; I'm at 100 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D(for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 393
   Posted 2/21/2008 12:28 PM (GMT -7)   
I hope this place has enough toilets. . . :)
12 Asacol
100 mg Imuran


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 2/21/2008 1:09 PM (GMT -7)   
UCinGV said...
I hope this place has enough toilets. . . :)

Ahahahaha....
 
That's a good one. :-)
 
 
Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Prednisone 10mg.
Canasa
Multi-Vitamins
Calcium with Vit. D Tablets


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/21/2008 5:28 PM (GMT -7)   
They have big and nice bathrooms.....and if it's crowded you can go one floor below and use identical bathrooms (I also seem to suffer froma small bladder!)
 
Erica
Erica
Crohn's and Ostomy in 2004


RobynO
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted 2/23/2008 10:28 AM (GMT -7)   
I'm going so I look forward to meeting you!

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/23/2008 10:21 PM (GMT -7)   

Just wanted to bump this up it was disappearing on to page 2.

Erica

 


Erica
Crohn's and Ostomy in 2004


RobynO
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted Yesterday 7:21 PM (GMT -7)   
I 2nd what Erica said about the bathrooms-they are nice and most importantly there are a lot of them!

kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted Today 7:44 AM (GMT -7)   
I bet you that's where we will all bump into each other....in the potty!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, started at 60 mg 1/07, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08 now at 150mg imuran
waiting to be scheduled for remicade.
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted Today 8:36 PM (GMT -7)   
If you see a woman with long shocking red hair (and whiter than white) in line at the bathroom that's me!!!!

Erica
Erica
Crohn's and Ostomy in 2004


aquafly79
Regular Member


Date Joined Aug 2007
Total Posts : 317
   Posted Today 10:51 PM (GMT -7)   

Hey all,

I am contemplating going to the Chicago symposium and now I just might go to meet other people. I was going to drag my husband but I think he might be a little fried on my UC/Imuran rants and my mom just doesn't get it, in many ways. She keeps asking my if I can just wean off the Imuran and just take Lialda. If it were only that easy.

Here's my conundrum, though: my specific area of interest is UC care during pregnancy, specifically while on Imuran, as I had a rough pregnancy last year and would like(love) to have more children in the next couple of years. Every time I research Imuran and pregnancy or just UC in general these days, I just get really, really angry and frustrated about all of the above. I also have some issues with my dr. So I wonder if going to this conference will just get my more angry and riled up or will I feel better and more informed? Any thoughts on this would be much appreciated.

meredith

 

 


aquafly79
 
Diagnosed with UC in 2004
Had flares all through pregnancy last year, and current flare on and off for about 6 months, Imuran helped me get off Pred. and get into remission!!
Currently on Lialda, Imuran 75mg,
prenatal vitamin(taking for folic acid and other nutrients), calcium, and Bifidus Balance FOS probiotics.
Mesalamine enemas as needed...
 


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/26/2008 9:45 PM (GMT -7)   
I'm not sure what the presenter will say in the session "the Female factor" but last year they brought in Dr. Uma Mahadevan from the University of California who did an excellent job for the CCFA. I am hoping that they bring in the same quality presenters.

2 years ago it wasn't as good people kept asking questions during the presenter's lecture and she didn't get through her whole presentation. Last year they asked people to hold all questions, write them down on index cards, and they were collected and there was a 15 minute q&a to wrap up the session. It was much better organized last year.

When it get's closer I'll post a place to meet inside the conference-

Erica
Erica
Crohn's and Ostomy in 2004

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