I started 60mg a day in sept and then went to 60/40 alt days in Oct and have been at that until yesterday now going down to 40mg a day.
The first month, I had mood swings and hot flashes, those went away mostly a couple months later, I think it was a shock to my system.
I got the beginning of moonface in Dec and it has continued to get worse, I have never had a double chin and now have one, my neck is huge.
I have put on 17 pounds since Nov. I think some of it is from edema from the prednisone.
I still have mood swings, but not as bad, though I feel grumpy alot and generally kind of blah also my mental clarity is not the same as before.
However, in my flare I was a zombie, barely functioning, I would take this over that any day.
My recommendations, take fosomax and 500mg 3xday of cal + vit D to protect your bones. You need potassium so eat a banana a day or take a supplement, I like Langers cran/rasp juice plus (it has 480mg of potassium and I add it to my water to make it taste better, I got really bad leg, calf, foot and toe cramps when I had low potassium (my last test showed good potassium levels and I have not had bad cramping). Also watch your salt (1500mg or less a day my doc told me), carbs and simple sugars. I think my moonface would not be as bad as it is if I had watched my salt. Also my labs show high sugar levels and pred can cause diabetes, so now I have to watch my sugar, I am not diabetic but I need to be careful.
to surmise my thoughts on prednisone, it stinks the side effects are pretty bad, however I need it to get well and the benefits to me still outweigh the risks (though I think the line is pretty close now).
*please note, my situation is probably different than most, check my sig and you'll see.
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday. Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.