My Mayo experience was not impressive. I was 5 minutes late for my appointment because I got lost trying to find parking near the clinic and they gave my appointment time away to someone else. So, I was bumped back an hour. I forgot to bring a book to read and they had no good magazines and no newspapers lying around to read so I was bored out of my mind. Then, I finally got taken back by a nurse and she spent about
20-25 minutes reviewing all my medications and some of my other medical history with me, even though I just spent over an hour prior to the appt. filling out about
10 pages of paperwork for Mayo which covered all of the questions this nurse asked me. Then, I had to wait about
another 45 minutes before I got to see someone doing a fellowship, not even the doctor I made my appt. with. He spent a decent amount of time with me, but most of it was just him talking through my past medical records with me, which he had just finished reading through. I already knew everything he was telling me. Then he told me about
all the med. options, which I already knew about
Then I had to wait another hour in the little doctor room before I got to see the "real" doctor. By this time, I was so tired, crabby, hungry and thirsty (since I had to fast since midnight the night before) and just wanting to get the heck out of there. The doctor seemed knowledgable, but I didn't really like him as much as my other one. He said my next step was probably azathioprine, but maybe we could try a few courses of pred if my symptoms get bad. I asked him about
Cortifoam and he told me recent studies show that it doesn't work any better than Rowasa. Anyone know anything about
They didn't really tell me much of anything. They wanted me to schedule more appts. They tell you you're supposed to stay there for 3-5 days so they can schedule things throughout the week, but they didn't tell me this when I originally scheduled my appt. I don't have the time, money or patience to wait around there for 5 days. Plus, the doctor said I should call the fellow with any questions, not him. They did some blood work for various things, but didn't tell me what, except one to see if I metabolize azathioprine, which I'm taking....I am almost in remission. They said I could start tapering my Rowasa. I don't understand why these GIs keep telling me to taper completely off the rectal meds. If I only have rectal inflammation right now, shouldn't I taper off my oral meds first and the rectal meds later?
I don't think I will go back there again. At my other GI's office, I've never had to wait more than 5-10 minutes to get in and they would only take an hour at most. I had to sit at Mayo for almost 4 hours yesterday. Sorry to complain so much. I guess I will just keep doing my own research and suggesting my own meds/dosages to my old GI. Kinda sucks, because I don't really know what I'm doing. I wish I could find a GI who would lead me in the right direction, but I'm sick of looking.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv