New to Ulcerative Colitis

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tinman
New Member


Date Joined Feb 2008
Total Posts : 3
   Posted 2/8/2008 1:38 PM (GMT -6)   
Hi everyone,
 
I'm new to this discussion board, and also relatively new to ulcerative colitis. I was diagnosed in October 2007 and was subsequently put on Salofalk, 500mg suppositories. This put me into remission until just after Christmas. Since then I have been having sporadic flareups (1 or 2 movements a day that are slightly bloody and looser than normal). I've also had periods of up to a week with no symptoms at all. I had an appointment with my specialist last month and we both agreed that the symptoms were not severe enough to require an increase in medication.
 
So after all that boring background information, my question is this: I've noticed that my symptoms are definitely correlated to how much stress I feel on a given day, but the more symptoms I have, the more I worry and stress about it. Does anyone have any advice on managing this disease so that I can achieve a lasting remission again?

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/8/2008 2:29 PM (GMT -6)   
Tinman, if you're not already taking a good probiotic, that might help you. Most of us do take them and find that they help us.

As you're on suppositories only, I assume that your colonoscopy showed only proctitis, is that correct? If the suppositories aren't doing the trick for you, you might consider talking to your doctor about using the enemas instead. They provide more medication to a larger area than suppositories.

Yes, stress does seem to affect most of us to some extent. I find that having UC is sort of like being an alcoholic, in that I have to follow at least the first of the eight steps in the program: admit that I am powerless over my UC and hope for help from a higher power. If you can attain the mind set that you really can't control this DD with willpower, sometimes it relieves the stress. Although of course you want to be in full remission, your real job now is just to live each day the best you can. It's a bit of a curse, but the DD does teach us patience.

Welcome to the forum, by the way. I'm glad you found us.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 2/8/2008 11:07 PM (GMT -6)   
Hi..welcome to the forum.

Regarding not necessary to increase meds....what exactly were the meds that the doctor would have increased?

You should be on at least the retention enemas...they will get up to and into (maybe even a touch past) the sigmoid. It would be good to keep all clear above where your UC is at this time. It can be a great deterrant for it to spread.....which it's definitely possible.

Where exactly did your doc determine your uc...as in how many cms or inches?

Are you still taking the suppositories? Did you stop them before Christmas.

If your doctor doesn't want you to use higher dosage meds...at least get him to give you the 1000mg suppositories.

If you're having some symptoms...you're not on enough meds..and the fact that your stools are looser could be a symptom that your UC is higher than the lower rectum. Sporatic bleeding means the mucosal layer is very fragile...trying to heal, but not quite.

The symptoms during the day could be flare, could be certain foods or can be IBS/stress...or all 3. Throw in nearing a period (if you're female)...that's 4.

When did you see your doc last? When was your last c-scope.

I very much second the suggestion of probiotcs.
 
I've the feeling you're not in N.America..

quincy
*Heather*Status: mini flare Dec 28... tapered to every second night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 2/9/2008 7:25 AM (GMT -6)   
I am clearly not an expert like many of this forum but I would think that if you noticed stress level and flare ups then I would really work on that area. I have heard meditation, yoga, couseling........stuff like that to try to manage your stress levels better.
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


tinman
New Member


Date Joined Feb 2008
Total Posts : 3
   Posted 2/9/2008 10:17 AM (GMT -6)   
Thanks for the interest quincy,

I am actually North American (Canadian to be specific), and the meds I'm taking (Salofalk) are a 5ASA medication. When my UC was diagnosed, it had progressed 8cm (about 3 inches). I am still taking the suppositories and was taking them at the start of my flare during Christmas. At the time I last saw my doctor (middle of January), I had not experienced symptoms for a numbered of days, so we both supposed that it was coming under contol again. My last scope was at the end of September 2007, when I was diagnosed.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 2/9/2008 12:40 PM (GMT -6)   
Hi...I'm Canadian as well.

I still think you should be on a higher dosage of meds...you do know you can use them more often...

Stress can definitely exacerbate symptoms..most of us have IBS as well...just adds another nice aspect to the mix..lol!

q
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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