The easiest way to get started is to go to www.crohnsandme.com
. The Advocacy link will bring you to directions on how to simply click and a request will automatically be sent to your local Representative and Senator. You can also see Ally on the site!
Ideally you will hear back from one of the legislators that is being contacted. The next step would be to set up a meeting about why this legislation is so important and needed. At the meeting, bring information about Ally's Law such as the actual wording, information about IBD and statistics of how many people have Crohn's or colitis, states that have already passed it or who have it pending, specific instances or places where access has been denied, your contact information, etc. It's always nice to follow up with thank you notes. Find out what the next steps are and make sure you stay in contact with them.
I believe many legislative sessions are coming to an end, but you can get things going for when the session starts again in the Fall.
Within the past month I have spoken with people in WA, OR, TN, WI who have recently held a meeting with their legislator. The bill is pending in many more states in various stages of legislation.
I'm definitely willing to help with any questions. Thank you for your involvement!