baseline of health question

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Sherman Tank
Regular Member


Date Joined Jan 2008
Total Posts : 34
   Posted 2/8/2008 10:08 PM (GMT -6)   
I guess my big question with UC is- is this just who we are now and we need the drugs or is there still a healthy baseline in us- an optimal possibility of health where there is no UC?
What do you think?
Diagnosed proctosigmoiditis/ UC 2004
Misdiagnosed with just Hemeroids since I was 12!!
Bad flare after birth of first son in 2004,
another bad flare pregnant with 2nd baby summer 2006
recent reallly bad flare Dec 2007- 1st time w/ prednisone
Just tapered off Jan 20,2008, Flaring again today :(
Asacol for last 4 years 3pills 2X's, ROWASA as needed up to 3X's a day,
now just Asacol 3X's a day, probiotics 2X's, fish oil
Tryed-acupuncture, herbal remedies


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/8/2008 11:10 PM (GMT -6)   
UC is a chronic disease. The only cure at this time is removal of the colon. Some of us can go for different lengths of time without medications, but flares almost always follow, and the disease can be more difficult to get back into remission then.

We're still us, just a little inconvenienced sometimes. Enjoy the good times, make every day count.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 2/9/2008 7:32 AM (GMT -6)   
I am a healthy person who nees to take supplements and some meds to treat a condition. Like everyone in life I get sick now and then. I believed this when I was very sick with pancolitis and I believe this now that I'm in my seventh month of remission.

As for allowing the med community or anyone else etc to label me with having being chronically ill. No. I'm not applyng that to myself. Period. I told my doctor to not decribe my condition as such and he doesn't.

The optimal health for your UC is not a baseline. It's the way you choose to think of yourself. All of us with this condition will have rough times. I don't view my rough times as being permanent. They will pass and I continue at all time to be a very healthy person.

D
400-800 mg Asacol a day
Iron supplment,Probioitcs
Balanced Diet (...ish!!), Reduced Stress
 
"There are only about a half dozen things that make 80% of the difference in any area of our lives."
 
 
 
 
 
 
 


weedlewub
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 2/9/2008 7:36 AM (GMT -6)   
I believe that there is a way we can get healthy, but then again I am a firm believer in alternative medicine. I feel like you have to treat the entire mind, body and spirit to ge twell, and unfortunately modern medicine just treats our physical symptoms without getting to the root cause of why we got sick in the first place.

I have to believe that ther is a way for me to get better without taking horrible drugs for the rest of my life. Otherwise I would begin to get really depressed.
Diagnosed with UC in Jan 2006
 
Currently taking spanish black radish, congaplex, zymex, multizyme,l-glutamine, calsol, protefood, and homeopathic "intestinal distress" drops.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/9/2008 9:32 AM (GMT -6)   
Damo, to clarify my feeling, I have a chronic disease, but I am not chronically ill. Most of the time, I'm as well as the next person. I own my colon, it doesn't own me.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/9/2008 11:41 AM (GMT -6)   
I think it compares to being diabetic (type 2). It's an issue you'll always have, but it can be controlled and a state of health maintained with healthier lifestyle changes, supplements and some maintenance meds. Even in my years of "remission," I remained on a low maintenance dose of azulfadine as a sort of safety net. However, I feel probiotics, dietary changes and omega-3s did more to keep me healthy.

As far as ever returning to "normal" as most folks would define it: eating whatever junk I want, drinking, never or rarely exercising, burning the candle at both ends: no. I'll never live like that again. My new lifestyle is much healthier and rewarding.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 2/9/2008 1:09 PM (GMT -6)   
Judilyn,

That's a great attitude. I wasn't referring to you specifically. I'm sorry if I gave that impression. For me I consider myself neither chronically ill nor do I consider UC to be a chronic condition for me. Nor will I ever!

I also agree with princesa. Since I got this condition I've now become a healthier person. Better diet and less stress and an improved awareness of my body. I listen to my body more.

D
400-800 mg Asacol a day
Iron supplment,Probioitcs
Balanced Diet (...ish!!), Reduced Stress
 
"There are only about a half dozen things that make 80% of the difference in any area of our lives."
 
 
 
 
 
 
 

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