Posted 2/10/2008 12:31 PM (GMT -6)
When you mentioned the snow removal task, Paul, I thought to ask about your vitamin D level. (Bloods) My gastro says it should test at 30 or higher. Low vit D levels are another factor that can affect no. of bms daily. You have so much to do, especially with the winter chores added on. No wonder you fell asleep waiting for the study coordinator! Hope the Abatacept starts to kick in soon. The cruise is definitely something to look forward to! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
Posted 2/10/2008 12:39 PM (GMT -6)
Hey Paul, I'm so glad you are keeping us updated as this may be a treatment option for me. The Remi is working well, but my doc wants me to try Abatacept. I'm hoping that it is starting to work for you. Darn that snow! It's so pretty but is always begging to be shoveled while in the driveway! Take care, and gosh you have something wonderful to look forward too!

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
Co-Moderator for the UC Forum

Posted 2/10/2008 7:02 PM (GMT -6)
Hey Paul. I started to notice small improvements from 14 days after my 3rd infusion. Nothing earth shattering per se, but the greatest thing I noticed was I gained quite a bit more control. Instead of having 1 minute to get to the toilet, I had 5.

The changes became more pronounced after the 4th infusion.

Seems Abatacept takes quite a bit longer to work for UC people then for Chrons, so if you can, try to get at least 5 infusions before giving up. It does take a while to work, but it has helped myself and the others in my trial heaps.

Keep us posted!
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 1xDesert spoon of Metamucil smooth orange 3 times a day;
    - 3xGarlic Oil caps 3 times a day, 7mL Olive Leaf Extract 2 times a day.

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