New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/9/2008 9:43 AM (GMT -7)   
hey carlow - I know that somewhere on here there is a post where you gave me your email address. sorry I never replied or emailed you. my life has been completely insane. but I did want to tell you that I see Hans Herfarth at UNC, and my surgical consult next month is with Koruda, who I believe you are using for your colectomy, yes? Koruda has a good reputation. are you doing it laproscopically? have you met him yet? what did you think of him?

Herfarth told me that he thinks it is good that I am going for a consult because he doesn't like when his patients meet the surgeon for the first time the day before emergency surgery. but then, in the next breath, he told me I am not near needing surgery yet. so, who knows. all I know is that if this new cortifoam/rowasa combo fails and I have to consider remicade, then I will also be considering surgery.

I know you said you're in eastern NC, but let me know next time you're coming down to chapel hill for an appt at UNC, maybe we can grab tea (since UC-ers don't drink coffee....) and meet up. I hope you're well and again, sorry I lost track of you for a spell.
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/10/2008 11:41 AM (GMT -7)   
bump....
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/12/2008 2:58 PM (GMT -7)   
just hoping you'll see this, carlow, if I keep posting....
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 2/12/2008 6:38 PM (GMT -7)   
Hehe, you succeed! I just noticed this thread tonight, obviously. No worries, I know how frenzied life can get, especially with an active flare. I am having Koruda perform my colectomy. I had my consult with him back on the 25th of January, and I found him quite professional. Actually him and the general surgeon were very knowledgeable and to the point, which I like. I personally cannot stand cheery, overly-enthusiastic docs (nurses like that however are a godsend). He was a bit simple in responses about concerns over having possible chron's-colitis, but the possibility is quite slim given my history and past tests, etc. He doesn't do laproscopic for this type of surgery, citing that the colon can be quite damaged at times and can be hard to remove using a laproscopic approach. He also said, (trying to remember here), that the main incision would be needed regardless of whether or not the surgery was laproscopically assisted. So either way I lose my abdomen muscles for a few weeks.

I'm glad to hear you are trying the rectal meds, and then you have remicade as an option if that fails. I had good success with rowasa enemas before my UC spun out of control. Your GI sounds familiar but I have never met him. He sounds quite reasonable in his opinion of surgical consults. I had my original appt with Koruda back in Dec...I kinda wish I had kept it but my fiancee was graduating on the same day, so I had to reschedule. Could've possibly been done and over with by now if I hadn't, but thats life eh?

As for the next time I'm in town, that will be next week for my surgery! I'll be in town sometime tuesday...but I have to start my colonoscopy prep as soon as I get home :(. I am so not looking forward to that. Rather have tasty tea in chapel hill. Hehe. And I can't wait to have coffee again! I better stop before I start thinking about all the other foods I have given up.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February)

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (30mg taper)
Asacol 8 (Ran out and waiting for refill...actually improving off of it...hmmm)


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/15/2008 10:03 PM (GMT -7)   
Hey Carlow - good to hear from you.
so, koruda doesn't do laproscopic? I didn't know that. Guess I will learn more about that at my consult with him in mid-march. I am really glad to hear you feel good about him. That is a great thing to be able to say going into a surgery. I actually have a friend with Crohns who has had him for 3 surgeries (including 2 temp ileos) over the last few years, and she speaks very highly of him also.

good luck with your surgery, and keep us posted. I am sure you are excited for a UC-free life. what a great thought!
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, February 21, 2018 12:44 AM (GMT -7)
There are a total of 2,931,506 posts in 321,656 threads.
View Active Threads


Who's Online
This forum has 160365 registered members. Please welcome our newest member, memyself.
275 Guest(s), 2 Registered Member(s) are currently online.  Details
OriolCarol, Tall Allen