Anyone Using Nicotine Patch or Started Smoking Again to Induce Remission?

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Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 2/9/2008 5:31 PM (GMT -6)   
I think this topic was discussed before....BUT...I am curious to know if anyone is having success with either of these two methods. If so, how long before you saw "improvement"?
What strength patch? How many cigs per day? My GI doc says that it's unethical/immoral to suggest this method to UCers, although he does admit that some of his patients are in remission from smoking. So I would appreciate any detailed info to anyone now smoking or presently using the patch.

I am an ex-smoker (quit 3 years ago) - but never smoked more than 8-10 cigs/day.

I tried the 7mg patch a couple of weeks ago, but it gave me a headache and then I developed a small hive-like reaction on my arm.

I'm supposed to receive my 4th Remicade treatment at double dose (10mg/kg) the end of February. As of now, I have not experienced any positive effects from the first 3 treatments. My GI Doc says that if the 4th Remicade treatment doesn't "kick in", he highly suggests surgery - ASAP. He thinks I'm in denial about the seriousness of my UC (severe/progressive/high steroid dependent etc...).

I guess I'm grasping at anything to avoid having the surgery. Even after reading everyone's positive response after their surgery - I'm still so freaked out.a

Thanks!
Sindi
pancolitis/proctitis 2002; IBS throughout childhood
Recurrence/Major Flare Jan 2007 with no let up
Asacol 1600mg, Prednisone 40mg, Mesalamine Enema (1000mg) @ bedtime
Salofalk suppositories in a.m.; Librax as needed
Calcium/Vit. D, VSL#3; synthroid .137mg, estradiol
Started Remicade December 7, 2007


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 2/9/2008 6:05 PM (GMT -6)   
Here's a link to a recent discussion on this:
 
Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone 60mg - taper.


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/9/2008 9:03 PM (GMT -6)   
hey Colon - first, I love your user name. makes me laugh.
second, I didn't read the earlier conversation on the forum about this, but I will say that this is something I have discussed with my GI previously. he said that studies have been done with nicotine patches and that the patches don't really work. unfortunately, it appears to be the carbon monoxide, in other words the actual act of smoking, that induces remission in UC.
I think the general consensus in the medical community is that the known risks of smoking outweigh the benefits even though smoking can help with remission.
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/9/2008 9:17 PM (GMT -6)   
I had a colon and rectom surgeon tell me to never quit smoking (this was 16 yrs ago) and I should have listened to him because I quit for 3 yrs and went through shear hell for it...I started again (3/day and now 6/day since my dad died) and felt better (along with the natural stuff I take and diet changes and exercising regularly) within a few days of starting up again...my current GP told me that for the amount I smoke a day it's equivilant to standing on a corner downtown waiting for the light to change (as far as what toxins and pollutants I'm inhaling/exposed to).

To each their own.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tipoil
Regular Member


Date Joined Feb 2008
Total Posts : 21
   Posted 2/9/2008 10:25 PM (GMT -6)   
Interesting that I just came across this info today, re: nicotine patch may help UC victims !
I have been diagnosed over 20 yrs ago and at the time I was a pipe smoker until 2 yrs ago.  My symptoms have been increasingly worse in intensity lately and when I think of it, it seems to coincide with the time I have put the pipe away. And I was not a heavy smoker, just 3 or so pipes a day.  After reading about this today, it really makes me wonder if this is only a coincidence or maybe smoking was helping me with the UC.
 
Tipoil Dx 1987 = UC

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/9/2008 10:28 PM (GMT -6)   
Not likely a coincidence, there's research on the benefits of carbon monoxide and UC (likely any type of colon inflammation), smoking is suppose to make crohns worse, but I have crohns-colitis (my CD is affecting my colon) and I do better while smoking than not.
 
Read this link...
 
 
The good news is, researchers are working on a med that has the same benefit of smoking without the possible bad side effects of smoking.
 
 
:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


tipoil
Regular Member


Date Joined Feb 2008
Total Posts : 21
   Posted 2/9/2008 11:19 PM (GMT -6)   
interesting article pb4....tyvm

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/9/2008 11:39 PM (GMT -6)   
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 2/9/2008 11:56 PM (GMT -6)   
Thanks all for your comments. Thanks also for the interesting article pb4. There also has to be some sort of genetic and/or auto immune component as we all know people who have quit smoking and do not suffer from UC.
pancolitis/proctitis 2002; IBS throughout childhood
Recurrence/Major Flare Jan 2007 with no let up
Asacol 1600mg, Prednisone 40mg, Mesalamine Enema (1000mg) @ bedtime
Salofalk suppositories in a.m.; Librax as needed; Xanax as needed.
Calcium/Vit. D, Culturelle; synthroid .137mg, estradiol
Remicade December 7, 2007, Dec. 21st, Jan. 18, 2008


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/10/2008 12:07 AM (GMT -6)   
You're very welcome, and yes, there definitely is a genetic component to UC (IBD), my mom has UC and I have crohns (crohns-colitis specifically)...it's genetics and having the disease being triggered which is thought to be environmental.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 2/10/2008 3:24 AM (GMT -6)   
I quit smoking once for a year and was severely ill the entire time. Nothing worked to get the bleeding and diarrhea under control, not even prednisone. I couldn't even remember what it was like to have a solid BM. I then started smoking again one day and was in remission within the month.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


Westcoast Joe
Regular Member


Date Joined Apr 2005
Total Posts : 130
   Posted 2/10/2008 8:40 AM (GMT -6)   
I have 3 friends that quit smoking and developed colitis. I also quit chewing tobacco and thats when my troubles started. I stated to chew again and it was to late. My 3 friends started to smoke and have been good ever since. The Mayo clinic has been working on this for years. My doctor told me to try it and the patch did not work. I chew now just for the peace of it. good luck . Westy

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 2/25/2008 7:39 AM (GMT -6)   
The only thing that makes me well is smoking. The only thing. Now I use smokeless tobacco - snus (spitless and discrete, look it up!) that seems to be almost as good as cigs.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 6 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 2/25/2008 8:42 AM (GMT -6)   

Mitzo,

Just wondering, what kind of snus do you use? There's the original Swedish snus and then Marlboro and Camel have come out with their own versions too (which they say have less nicotine than the Swedish snus).

I smoked about 5-10 cigarettes a day, on and off for about 10 years and was diagnosed with UC a few months after quitting.  I do not want to get back to smoking again but have been looking into snus to see whether it's something worth trying.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


JM
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/29/2008 4:29 PM (GMT -6)   
I started back smoking after being quit for 3 years less 8 days. I am 61, so smoking risk are not as important as being normal. Lets face it, if I live to be 80, I still only have less than 7300 days. I think I will enjoy what I have without being miserable. I was Dx in December and was in a slight remission (no bleeding for 10 days) and then it started again. I decide on January 1 that if I was still bleeding on the 2nd ( I was) I would start back smoking. Within 24 hours all of the symptoms were gone except some bloating. Within 36 hours everything was normal and continues to be normal after nearly 2 months. I am not taking anything for my colitis at all. I still take some vitamins as usual. I also had developed asthma during the time I quit and filmed over eyes. My joints ached and I could not make a fist without popping my joints. On my last visit to my new primary care physician, she could not detect any asthma at all. I feel confident that my new glasses will be okay for a change ( I was having to have them re-done because they were constantly changing because of the filming over them). I can now reach my rear-end without any trouble from my stiff joints. I can make a firm fist. I will keep on smoking and hope that this never returns again.

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 3/1/2008 1:35 AM (GMT -6)   
My Dr. (David Rubin at the university of Chicago) told me that smoking helps with UC but does the opposite for Crohn's Disease. He's a leading doctor in the field of UC/Crohn's/IBD so I would be very careful of what you do.
Erica
Crohn's and Ostomy in 2004


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/1/2008 9:35 AM (GMT -6)   
Rio, to answer your question about snus, I import the Swedish products over the internet. They are top quality - do a bit of internet searching to see what they contain, it is a clean product manufactured under strict quality control conditions, with surprisingly minimal health risks including almost no link to oral cancer!. Just slip a little tobacco bag under your lip and let it sit there and release flavour and nicotine, very clean and discrete. My only gripe is that these products are unavalaible here in Canada and I regularly have shipments seized at Customs and delivery is delayed and occasionally I have a small fee to pay to pick them up at the post office. We have a domestic brand available here which is less pleasant to use, it is like the Camel and Marlboro in the US. I buy those too, but just to ensure I do not have to go without due to customs hold-ups. To find out more on a forum: www.snuson.com, and to order, www.buysnus.com or www.northerner.com. Snus seems to work on my colitis in a similar way to smoking, and is a much more pleasant product that the nauseating patch and gum that pharma is pushing. Check out this forum for horrendous Nicorette side effect testimonials! - http://www.askapatient.com/viewrating.asp?drug=18612&name=NICORETTE
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 6 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/1/2008 10:18 AM (GMT -6)   

Mitzo, thanks for the feedback.  I actually tried nicorette a while back.  After about 2 days of being on it I had dizzy spells and heart palpitations and stopped taking it immediately - I was on the lowest dosage.  I checked my local smoke-shop (where I used to buy cigs from) and surprisingly they had the original Swedish Snus in stock.

JM, it's great to hear that you're doing so well - I suppose with UC it's luck of the draw and just a matter of finding what works for you.

A word of caution for ex-smokers considering taking up smoking again is that if it doesn't work for you then you run the risk of getting addicted to smoking again as well having to deal with UC.  Also, I read about an ex-smoker who got into remission after taking up smoking.  After a while they quit smoking again and the UC came back with much worse symptoms and then starting to smoke again after that had no effect on the UC.

It's a tough decision whether to start smoking or not but I'm still keeping that option open for me.  However, I'd first try a smoke-free choice such as Snus and see how that works.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/1/2008 2:53 PM (GMT -6)   
EricaM said...
My Dr. (David Rubin at the university of Chicago) told me that smoking helps with UC but does the opposite for Crohn's Disease. He's a leading doctor in the field of UC/Crohn's/IBD so I would be very careful of what you do.

Yes, this is common knowledge, but I have crohns (crohns-colitis specifically, CD is affecting my colon) and I quit smoking for 3 yrs and went through total hell, I started again and things improved, so it varies from case to case, nothing is written in stone that's for sure.
 
CD affected my small intestines when I first got sick and at the same time, my colon, rectom and anus with perianal crohns skin tags...it is thought that smoking for CDers causes problems with flares in the small intestines, but luckily for me my CD has not affected my small intestines since I first got sick back 17 yrs ago.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/1/2008 4:52 PM (GMT -6)   
Rio, enjoy those snus, you are lucky to live where they are available in shops - it is a bit of an acquired taste, but relatively harmless (read up on the literature!) and discrete. I hope something helps you with the UC. Hey, maybe I'll see you on snuson.com and we can share snus stories!
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.

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