Posted 3/1/2008 11:18 AM (GMT -6)

Mitzo, thanks for the feedback.  I actually tried nicorette a while back.  After about 2 days of being on it I had dizzy spells and heart palpitations and stopped taking it immediately - I was on the lowest dosage.  I checked my local smoke-shop (where I used to buy cigs from) and surprisingly they had the original Swedish Snus in stock.

JM, it's great to hear that you're doing so well - I suppose with UC it's luck of the draw and just a matter of finding what works for you.

A word of caution for ex-smokers considering taking up smoking again is that if it doesn't work for you then you run the risk of getting addicted to smoking again as well having to deal with UC.  Also, I read about an ex-smoker who got into remission after taking up smoking.  After a while they quit smoking again and the UC came back with much worse symptoms and then starting to smoke again after that had no effect on the UC.

It's a tough decision whether to start smoking or not but I'm still keeping that option open for me.  However, I'd first try a smoke-free choice such as Snus and see how that works.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.

Posted 3/1/2008 3:53 PM (GMT -6)
EricaM said...
My Dr. (David Rubin at the university of Chicago) told me that smoking helps with UC but does the opposite for Crohn's Disease. He's a leading doctor in the field of UC/Crohn's/IBD so I would be very careful of what you do.

Yes, this is common knowledge, but I have crohns (crohns-colitis specifically, CD is affecting my colon) and I quit smoking for 3 yrs and went through total hell, I started again and things improved, so it varies from case to case, nothing is written in stone that's for sure.
 
CD affected my small intestines when I first got sick and at the same time, my colon, rectom and anus with perianal crohns skin tags...it is thought that smoking for CDers causes problems with flares in the small intestines, but luckily for me my CD has not affected my small intestines since I first got sick back 17 yrs ago.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 3/1/2008 5:52 PM (GMT -6)
Rio, enjoy those snus, you are lucky to live where they are available in shops - it is a bit of an acquired taste, but relatively harmless (read up on the literature!) and discrete. I hope something helps you with the UC. Hey, maybe I'll see you on snuson.com and we can share snus stories!
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.

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