Q - I asked my doc about rectal meds after reading about them on this forum and he said since I have LS they wouldn't go up enough to do anything. He said they are only for rectal problems.
wow....I'm almost speechless ( yeah, right..lol!). Do you think they would help considering UC starts at the rectum?
It doesn't matter how high it goes (and I emphasise that point).....and if you're only on oral 5ASA meds...it won't deal with the rectum.
I don't know how any GI doctor would ever, ever, ever use the same bovine excretion excuse to patients who depend on their treatment to get better.
My theory of that is many GIs have already realised that many patients won't be faithful in using them...or the doctors are themselves butt med shy.
The "bottom" line is this......YOU must be proactive in YOUR care (I'm not yelling, just emphasising). You have a responsibility to understand what can work for you and to not waste the time with a doctor who won't even prescribe you a first-line med to an area where the actual disease starts.
I have witnessed resistance of many a member here who eventually use them and have found relief...be it months or years.
Treat both ends...only makes sense....and through using it for 19 years, my UC has never spread, nor has it ever been as bad as my initial flare. I have my doc to thank for that and that was a mighty long time ago where the idea was starting to be embrased. Your doctor is a tad behind the times.
I hope you reconsider to request them rather than ask about them....at least you'll know.
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!