something new finally quick ?

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Regular Member

Date Joined May 2006
Total Posts : 41
   Posted 2/9/2008 9:10 PM (GMT -6)   
Sooo I've been taking the same meds since I was diagnosed. Tried a few other things that didn't work. Now my GI is going to try remicade.
This might be a stupid question but does it have an effect physically like pred does?? moon face???

i hope not cause when she mentioned pred i said NOOOO! and she let me felt good :)
Diagnosed with universal UC in 2002

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 2/9/2008 11:01 PM (GMT -6)   
Hi JLeigh, I've been on Remi for over 2 years, and as a matter of fact, since Pred wasn't working for me except giving me a nice moonface, my doc put me on Remi. I lost 20 pounds of pred weight, and also the moon face and feel really good. Hope this helps!

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
Co-Moderator for the UC Forum

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 2/9/2008 11:45 PM (GMT -6)   
No moon face, no weight gain. Hope it works as well for you as it has for me!
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 2/10/2008 5:33 PM (GMT -6)   
All drugs carry the possibility of side effects. It's important to educate yourself so you know what to look for. However, "moon face" is only a result of high and/or extended steroid dose.

Remicade's side effects from

Headache, stomach pain, or nausea may occur. If this effect persists or worsens, tell your doctor or pharmacist promptly.

Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.

Tell your doctor immediately if any of these unlikely but serious side effects occur: pain/swelling at injection site, joint/muscle pain.

Tell your doctor immediately if any of these rare but very serious side effects occur: swelling ankles/feet, easy bruising/bleeding, vision changes, seizures, confusion, muscle weakness, numbness/tingling of arms/legs, butterfly-shaped facial rash, chest pain, pain/redness/swelling of arms or legs, shortness of breath, fast/slow/irregular heartbeat.

This drug may rarely cause serious (possibly fatal) liver disease. Most cases occur 2 weeks to more than a year after starting infliximab. Tell your doctor immediately if you develop symptoms of liver disease, including dark urine, extreme tiredness, severe stomach/abdominal pain, or yellowing eyes/skin.

Because infliximab works by blocking the immune system, it may lower your ability to fight infections. This may make you more likely to get a serious (rarely fatal) infection or make any infection you have worse. Tell your doctor immediately if you have any signs of infection (e.g., cough, cold, sore throat, fever, chills).

The immune system is also important in preventing and controlling cancer. Though very unlikely, you may have a slightly increased risk of developing cancer (e.g., lymphoma) with this medication. Tell your doctor immediately if you develop symptoms such as: unusual lumps/growths, swollen glands, night sweats, changes in skin appearance, unexplained weight loss.

A very serious allergic reaction to this drug is rare. However, seek immediate medical attention if you notice any symptoms of a serious allergic reaction, including: rash, itching, swelling, severe dizziness, trouble breathing, difficulty swallowing.

This is not a complete list of possible side effects. If you notice other effects not listed above, contact your doctor or pharmacist.
Diagnosed with ulcerative colitis spring 1999.
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.

Veteran Member

Date Joined Jan 2006
Total Posts : 616
   Posted 2/10/2008 11:00 PM (GMT -6)   
The only side effect I've had is FEELING GOOD!
Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March

Regular Member

Date Joined Jan 2008
Total Posts : 56
   Posted 2/11/2008 3:48 AM (GMT -6)   
i was in the same situation as you. my doc suggested going back on pred, and i basically started crying in his office. i started Prograf (Tacrolimus), however. It's his last-resort drug before remicade. Not all that well known, but it's been my miracle drug!! benefits--it's an oral pill and not an infusion. and i've had no side effects at all! Just something to consider or ask your doc about. But i've heard great things about remicade too...I just like the freedom of a pill.

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas

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