Posted 2/11/2008 3:11 PM (GMT -7)
Thanks!

Keith....that is what I was curious about. I started taking it at 29.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Posted 2/11/2008 6:19 PM (GMT -7)
i've heard long-term use of azathioprine is actually not too concerning. it has been in use since the 1980s, in much higher doses than we take it, so you figure some people have been on it almost 30 years by now..... I don't think the tumor risk is too great. that's my understanding.
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!

Posted 2/11/2008 6:36 PM (GMT -7)
The Dr at Mayo clinic knew how concerned I was due to all the questions I had on my list that I was asking him on behalf of my husband regarding imuran (aza)

He told me not to be overly concerned. He said that it is a very safe drug if monitored properly(monthly blood tests are faxed to him before he has his secry fax a month's prescription to our pharmacy) and is tolerated within the limits by my husband. So far so good.

Once the year is over I don't know if the monitoring will be every 3 or every 6 months but he is watching real close this first year.

I recall his local GI mentioning something about a 5 year committment way back when...not sure what that is all about....

The Mayo Dr mentioned after the prednisone is eliminated (which it is) getting off all pain meds (maybe we are heading in that direction) and tapering the rectal meds which is already happening - he is not using the canasa on a regular daily basis and now using the cortifoam 3-4 times a week.

It will be interesting to see if the asacol gets decreased from 12 to whatever each day and ultimately does the imuran also get decreased?????

I know it has been said many times on this board about the mistake of getting off all meds but when a person is in a good remission do less meds keep you on a maintenance so that less medication is continually being processed by your body???

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month

Posted 2/11/2008 6:44 PM (GMT -7)
Getting close to 1.5 years here.

Keith - good to know your doc has long term results. A relief to know!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
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Posted 2/11/2008 7:41 PM (GMT -7)
I think 6-mp has been around since either the 1950's or 1960's so there is lots of data on the med.

I think it is a good conversation to have with your GI.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 

Posted 2/11/2008 7:49 PM (GMT -7)
I definitely have those questions in abeyance for the Dr but we are no where near that point in time. My basic questioning is to try to get an idea of others' experiences for comparison sake actually. I know everyone is different but just curious overall with personal experiences out there.

Can't get too anxious and ahead of ourselves - just some personal research and comparisons to put in the mix for the future.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month

Posted 2/11/2008 10:09 PM (GMT -7)
I couldn't imagine being on 6-mp for 20+ years.... I suffer from fatigue and I blame a lot of it on the 6-mp; I'm sure some of it has to do with the UC too.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 

Posted 2/12/2008 5:24 AM (GMT -7)
Almost 1 year on Imuran. Almost 4 years on Salafalk.   Judy February 04: Rushed to hospital with severe blood haemorrhage. Diagnosed with indeterminate UC in 2/3 of my bowel. Treated with heavy doses of Pred; started Salofalk tabs and sups.   April 06 : First major flare – more haemorrhaging. Colonoscopy once against confirmed indeterminate UC.   May 06: Started 40 mg Pred. Weaned down to 10mg by July 8, held at 10mg until December 20, tapering 1mg every 2 weeks, 5mg a day as of February 14. All this plus 10 Salofalk tabs daily.   Jan through May 2007: Suffering from severe headaches and vomiting likely caused by prednisone.   Feb 26 07: Started Imuran with continued success.   May 12 07: Final dose of prednisone after 50 weeks!
Posted 2/12/2008 7:04 AM (GMT -7)
It's a relief to me to hear that everyone who has been on this medication for a long time has not had any serious side effects.  I was hestiant at first to take Imuran because of everything I have read about it.
Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Prednisone 10mg.
Canasa
Multi-Vitamins
Calcium with Vit. D Tablets

Posted 2/12/2008 6:07 PM (GMT -7)
3 1/2 years I believe.

I am in no rush to get off this drug as my only side effect is NO COLITIS. cool

I did years and years (pretty much my whole life) on other drugs that wouldnt keep me in remission and had the nastiest side effects for me.

I would do another 100 years of this drug.
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!

Posted 2/12/2008 11:49 PM (GMT -7)
Just passed my 2 year mark on 6MP. No complaints about it except that it doesn't keep me totally in remission all the time. Still, I've been way better on it. It took nearly 8 months to see the improvement. No side effects for me, though it took about a year to get my white blood count back up to normal.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.

Posted 2/13/2008 5:01 AM (GMT -7)
Julee, I feel the same way about 6mp. I am way better on it but my only complaint is that is doesn't stop all the flares - just makes them more mild.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
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