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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/11/2008 7:54 AM (GMT -7)   
I saw your post in the cipro thread.   I worry about me too, I think/hope I will be ok, I just want to get off prednisone......I don't even know if it's worth it for me to stay on it, I mean MCD wont kill me (most likely) maybe I can just live with it, I mean I have been for the past 7 years, what's another 50 years????  I feel that way but another part of me knows I need to get the MCD taken care of and I have been talking with other MCD & FSGS patients on a Nephrology board, so I know I am not alone and that it could be worse....though I keep on saying that to myself and worse things keep on happening, so maybe I should stop that?  = )
 
I guess the only good thing so far, is I am learning what really matters in life and before I just let so many stupid things bother me and run my life and occupy my time and now that I don't, that part of it is nice and I don't know how/why I let things like that bother me but now they don't and I just want to be well, I know I will get there, I get down, but keep on picking myself back up.
 
How are things going with you?
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 622
   Posted 2/11/2008 4:05 PM (GMT -7)   
There's that silver lining, girlfriend: A brand new outlook on life, a reprioritizing of what is important and what is not. I wish the lesson wasn't being learned through these kinds of struggles -- but maybe without struggles, we'd never learn?

I'm just fine. I really am so lucky. I wish I could give you some of my good luck, hon, and get you better. Other than taking those pills each morning, I never have to think (much, anyway) about this illness or my depression anymore. That is such a blessing. I've been really, really busy with work, and I'm redoing my upper level, so when I'm not working, I'm stripping wallpaper or busting up ceramic tile or shopping for vanities and lights and . . . and . . . and . . .

I don't understand MCD. I'm gonna have to do some reading, I can see.

Hang in there, sweetie.

Mitz

P.S. Thanks for askin' about me!
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/12/2008 11:47 AM (GMT -7)   
glad you are doing well Mitz! Stripping wallpaper that is almost as bad as UC, jk!

Stay Well.
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

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