New Here and in Pain

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braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 2/12/2008 7:48 AM (GMT -6)   
Hi, I have UC for the last 15 years. Flares come and go and I am in the middle of one. My problem is never D but mucus/blood and 20-30 bathroom trips with no bm!. I just had a colonoscopy on Friday. before that I was severly (I think) constipated. No good bm for 3 weeks! NOW I have not had a bm since colonoscopy on Friday. It is Tuesday. I am in pain on scale of 8 with 10 being the worst. It is below my belly button and comes in waves. I have some mucus and blood and nothing else come out. My question is how long does it take someone to bm after colonoscopy? Does this sound normal...what is normal anyway? :-)
I am currently on asascal 2/ 2x a day and cortifoam at bedtime...and let me tell you this HURTS to insert! anyway any thoughts on my problem would be helpfur. I also took a dose of miralax last night. I intend to wait another day and if no bm I am calling dr. Does this sound like I am overly concerned?
thanks

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/12/2008 8:35 AM (GMT -6)   
Welcome to HealingWell, braille.

You should have a bm by two days after your c-scope, if you're eating normally. Has constipation always been your pattern? I wonder if you're getting enough fluids and fiber. Sometimes taking some Fibercon, Metamucil wafers or the like and drinking lots of fluids will help.

You also may want to talk to your GI about an antispasmodic, as the pain and constipation suggest your colon has tightened up and won't let anything pass. Quite a few of UC-ers have IBS also, and that could be true in your case.

Even if the Miralax works, consider calling your GI. Managing constipation with laxatives isn't ideal, and can make it much worse.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 186
   Posted 2/12/2008 8:46 AM (GMT -6)   

I would call your GI today.  That much constant pain is to much to bear.  They should be able to do soemthing for you.  I use Miralax for my son (he doesnt have UC just a lot of constipation) and it is not immediate relief.  It can take 36 - 48 hours to work.  Sounds like you need something more immediate.

Also seems like your Asacol dose is low.  Have they considered upping it?  I have taken as much as 12/day during flares.  For me the dose increase didn't stop flares, but reduced symptoms including pain.


 
sore_guts
 
left-sided UC
400 mg Asacol 4 pills 3 times/day lialda 1 pill 3 times/day
making some very light attempts using Rowasa enemas just cant seem to do these
iron supplements 3 times 1/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 2/12/2008 9:06 AM (GMT -6)   

I see my GI on Thursday the 21st. I am eating normally...maybe to much. I am thinking about stopping that tho...it hurts really bad after eating mad  I am drinking a lot and I take 2 fibercon pills. I have tried metimusial and it tended to give me more pain and not much relief. Constipation has been a problem for me. No D at all. Usually blood and mucus and some flat snake like poo. I have always taken only 2 twice daily asacal pills. In 1998 I had colitis everywhere but the sigmoid colon. I know that is not common. I intend to ask Dr. about that. In 2003 I had it in rectum only. I am not sure about this time. I think he said in rectum but I was out of it, and hubby doesn't remember. Anyway I see him on the 21st. But I don't intend to let this continue for to much longer. My thoughts are that I am so swelled with inflamation somewhere in there that it won't let anything out. I do still get mucus and blood. He didn't seem to concerned with me not having a good bm for 3 weeks before colonoscopy. (I was so thankful for the prep) I had no pain then. Now I do. Altho I have just gone about an hour without pain. Also he has never done blood work on me. I know I am not aneimic(sp) Do they do blood test for anything else? No stool samples either. Is that normal?

thanks 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/12/2008 10:00 AM (GMT -6)   
The skinny bm's are usually an indication that there is inflammation, usually in the rectum. Also, you said it hurts to insert the cortifoam which can be the inflammation as well. Asacol doesn't typically reach the rectum so increasing it might not help you but have you thought about using the steroid enemas instead of the foam? Have you ever tried suppositories? Maybe you can ask to use either the foam or enema in conjunction with the suppository to help with the bleeding/mucous and pain.

As for your GI, to me it seems that he doesn't have your best interest at heart and maybe you should try to find another.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 2/12/2008 10:29 AM (GMT -6)   
Thanks for all the help. I have used the enemas before and I don't think it hit the spot. I think that is why he prescribed the foam. I know my rectum is inflamed. I sure feel it! I do have canasa suppositorys but he wanted me to use the foam. I think he will put me on the canasa for maintainence. I am really confused about the patchy inflamation over the years. I do intend to get more information on Thursday. thanks again

quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 2/12/2008 7:39 PM (GMT -6)   
Hi braille....the c-scope plus the clean-out could have caused you more inflammation...just what you DIDN'T need...yeeeeeeeeowwwwww!!!!!
 
This is what I'd do if I had the meds you have at this time.  Uwe the foam at night and the Canasa at least twice during the day...better yet, maybe you could ask for him to prescribe a 5ASA retention enema for the night and the cortifoam for the day. You have a ways to go yet before you need to think about maintenance.

Don't worry too much about the patchy inflammation at this time or what it means...if it's all limited to the rectum, you definitely need rectal meds.  Hopefully, the doc will have more definitive results when you see him next week.

The constipation and the skinny stools means inflammation (which you can attest to).

You need to eat, dont stop...once the inflammation is down, it'll be better. The worst thing about rectal inflammation vs higher up is that it produces a more solid stool....agony to pass through an inflamed butt!

I have a suggestion when you insert the nozzle of the foam/enema. make sure you have some lubrication (KY). Insert it a bit and start squeezing the dosage while pushing it farther up, then draw it down toward withdrawing it and keep squeezing, then in a bit more till you have no more med left do insert. That will help distribute the med to the lower part of the rectum as well as higher. Sit or lay on your back or right side rather than on the left side.

You could also try to use a soothing cream on the anus such as zinc cream...

Your Asacol is too low...even if you increase it to 6 daily...3 taken twice a day.

Definitely ask the doc for dicyclomine or whatever antispasmodic he deems worthy.

Hang tough...use the meds you have to your advantage..both 5ASA and the steroid until the doc (hopefully) gives you a retention enema of 5ASA.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 2/12/2008 5:49:29 PM (GMT-7)


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 2/13/2008 8:00 AM (GMT -6)   

Thanks Quincy, I do feel better today. I finally passed a little gas and a tiny (really tiny) bit of poo. But it did make me feel better. I do put the cortifoam in just the way you described. Common sense, I guess to get it right on the sore place. I will start taking the canasa today. How far apart should I do this. If I get home at 3:00 or 4:00 and insert one then and then the cortifoam at 10:00 (bedtime) would that be far enough apart. I have thought about using both at bedtime but I did not know if I could use both at once. Also do you know how long a canister will last. It has been awhile and I don't remember. My Dr. perscribed it for 3 weeks with one refill. I don't remember it lasting 3 weeks before but it has been awhile. It cost me $50.00 with my insurance. It is much cheaper by mail which would be a 3 month supply. Gosh even if I don't use it for 3 months I think it would be cheaper. Also have you ever had problems with the canister not filling the tube right. I have to pump and pump it to get it to fill the tube. I'm thinking I have a defective canister. Anythoughts on that?

thanks again

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