New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Annie76
Regular Member


Date Joined Jul 2007
Total Posts : 66
   Posted 2/13/2008 12:02 AM (GMT -6)   
I want to both thank and encourage you all. Thanks to those who freely offer their thoughts and advice to those of us who are still finding our way; encouragement to those who needs answers to questions. I had suffered for 9 months in my latest flare, my GI was ready to bump my meds up from Asacol/Rowasa to Imuran because I wasn't improving at all. In desperation, I asked this forum for advice and several of you suggested I try Colazal/Cortenemas. My doctor, though highly skeptical, allowed me a 1 month trial. I have now been on this regimen for 6 weeks and though my symptoms aren't completely gone, there has been a dramatic improvement. I can't thank you enough. I went from having blood in every bm and going 20 - 30 times a day to having almost no blood, better formed stools and less frequency.
left-sided colitis diagnosed after 3rd pregnancy 11 years ago
Current UC Meds: 9 Colazal, 1 cortenema at night
Other Meds: Lipitor, Calcium, multivitamin


quincy
Elite Member


Date Joined May 2003
Total Posts : 30840
   Posted 2/13/2008 2:39 AM (GMT -6)   
Hi Annie....great news!! There are always options and combinations of options...especially with the topical 5ASA and steroid oral/rectal.

Your proactive and determined position with your doctor has paid off.

Don't forget that you might be able to get back on the Rowasa while you're tapering or even for maintenance and at the first signs of a flare in the future....it's still a viable option.

But, your perfect combo may be as what you're using at this time...way to gp!!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/13/2008 7:55 AM (GMT -6)   
Annie, your story is very similiar to mine. I also was going 10-15 times a day with no improvement of symptoms even after trying the Rowasa in the mix. I finally came to the conclusion that I was just unable to tolerate the mesalamines so my GI then switched my med regimine to the Colazal/Cortenemas and I finally found remission. So maybe you are just not able to tolerate the mesalamines either. I'm glad that your preserverance has worked and you are now feeling better. I will cross my fingers for you and hope that the improved symptoms continue!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5187
   Posted 2/13/2008 11:52 AM (GMT -6)   
That's great news, Annie!!!!!! Colazal was my break-through med & many other members writing here have similarly good results with it-- so glad to hear it makes improvement for you, too. It apparently dissolves farther along in the colon than earlier 5-ASAs & therefore seems to do a good job relieving left-sided inflammation. Best wishes for steady progress toward remission! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

Annie76
Regular Member


Date Joined Jul 2007
Total Posts : 66
   Posted 2/13/2008 11:59 PM (GMT -6)   
Thanks for your feedback. Oh, and by the way, I had never heard until I found this forum that you could have IBD and IBS too. I learn so very much!
left-sided colitis diagnosed after 3rd pregnancy 11 years ago
Current UC Meds: 9 Colazal, 1 cortenema at night
Other Meds: Lipitor, Calcium, multivitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, August 18, 2018 1:06 PM (GMT -6)
There are a total of 2,994,113 posts in 328,106 threads.
View Active Threads


Who's Online
This forum has 161259 registered members. Please welcome our newest member, JoeS.
275 Guest(s), 8 Registered Member(s) are currently online.  Details
JimBear, Scaredy Cat, Girlie, KitKat880, ASAdvocate, FlowersGal, garyi, UCmee