If it wasn't for...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 2/13/2008 12:17 PM (GMT -7)   
Who helps you get through the hard times? For me my #1 stress reliever is my 2 year old Daughter Leyah Pie. When she was born I went into remission, when my family left me and her mother gave her back to me a couple months ago I went into remission...
But the person who has more understanding about my suffering is my mother Linda, I call her Lovelyness. She moved a block away from me to help with my daughter and my UC. She cooks sooo healthy for me. She went from cooking mostly mexican food before my UC to mostly vegetables now. She was always there for me even during my worst confusing flares and prednisone mood swings would drive me crazy, but she understood and took care of me. She is so incredably caring that I don't know what I would have done without her. She's the best. I know she'll never read this, but I love you Ma.
                                                                                         
28/M/TX
Severe Colitis (pancolitis) since January 9, 2005
currently:  I must say Under Control, 1 formed BM/day
RX/day:  2.5mg prednisone every other day
Lost job and insurance 10/2007 and stopped taking asacol and Imuran
(believe me I know my body and do not recommend doing this!!!)
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it. For Lent I gave up peanuts, sweets, and fried foods...
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 2/13/2008 12:37 PM (GMT -7)   
Great thread! I have a great support group around me. My mom, as yours, is the strength I don't always have. She has been there for me no matter what, even paying the bills that my husband and i can't. She goes to every doc appt and knows as much about this DD as I do. But my husband is the one that is here the most. He is a rock. This past year is the first flare he has dealt with and what a doozy to start with. I have gained so much weight on pred and as bad as I may feel about myself he is always there to tell me how beautiful i am and how much he loves me. I know how scared he is but he does his best to hide it from me, so i can be the one crying and have a shoulder to lean on. I love him with all my heart. I can't forget my best friend though. While my husband has only seen this flare my bff has been here for the whole ten years. lots of mood swings, crying, laughing...she really keeps me grounded. She is the one I can laugh at myself with. i can talk to her about poo and she doesn't find it strange or gross and she can always make me smile no matter how down i am. It's actually because of her that i first went to the doctor ten years ago. She saw how sick i was (i had been hiding it from everyone hoping it would go away) and she called my mom and told her how sick i was. Those three are my heart. They keep me strong and fighting.

Oh and of course my dog! Dog lover's know that a kiss from a pooch is all it takes to make a smile appear on the worst days.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/13/2008 12:41 PM (GMT -7)   
My husband is my warm blanket and back stiffener during the bad times. My friends and co-workers also always make me feel so appreciated and loved when I'm sick - they can always tell because I have spot right between my eyebrows that turns really pink when I don't feel good.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/13/2008 1:35 PM (GMT -7)   
my husband, who like kb called her husband he is a "rock", but he also keeps me strong. My bff always calls to check on me especially when she knows I am getting a test done she wants to know how it goes, both my Aunts are great and a friend/coworker has really been there for me too.
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 2/13/2008 2:04 PM (GMT -7)   
I dont know what I would do without my husband, before being dx I lived in the restroom are in bed for 8 months it took the doctor that long to figure out what was going on then I was dx with uc and three weeks later had a heart attack. my husband and son took care of me and everything else for the whole time I was down. and didnt complain one time. And my husband has ms so he isnt in the best of health but he is always there for me and worries all the time.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 2/13/2008 2:05 PM (GMT -7)   
I'd have to say I have a great network of support from my work friends, Mom, and boyfriend. And also, when I just don't feel so great...my sweet dog always comes to be near me.

Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 2/13/2008 2:47 PM (GMT -7)   
My dog Cooper gets me through the hard times.  He's hilarious and always picks me up when I'm down.
Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Prednisone 10mg.
Canasa
Multi-Vitamins
Calcium with Vit. D Tablets


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/13/2008 3:36 PM (GMT -7)   
What a nice thread :) I loathe having to rely on anyone for anything but there are times that I just don't have a choice. So for me, my husband is my love, soul mate and rock. He has always been there for me thru my many health crisis's and he can make me laugh when I think things are at their worse. He cried with me when I got my diagnosis and reassured me when going for my many tests. I would totally be lost without him. Him and I have been together now for 21 years :)

Another person for me to lean on is my awesome mother in law. She has helped so much over the years that I don't know how I can ever repay her. When I think about it, I really do have a great support network of both family and friends.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/13/2008 4:54 PM (GMT -7)   
Nice thread - we also have great friends who have been so supportive since this happened. I have a sister who lives nearby too. Unfortunately both our parents are gone - I do miss being able to pick up the phone and speak with my Mom over things. My Mother-in-Law was a real sweetie too.

However, since we relocated to Florida and both Moms had gotten on in years with their own problems before passing away, we probably would have not confided too much as we would have given them something else to be worrying about.

It has been 3 and 3 1/2 years since we lost both of them but I still miss being able to pick up the phone and hear their voices. So for those of you who still have them and can be comforted by them that is a gift in of itself even when you're not doing all that great.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, February 19, 2018 10:36 AM (GMT -7)
There are a total of 2,930,865 posts in 321,574 threads.
View Active Threads


Who's Online
This forum has 160312 registered members. Please welcome our newest member, pilotdonc.
449 Guest(s), 11 Registered Member(s) are currently online.  Details
mattamx, tickbite666, JOKERWILD477, tcoach1, Missouri, Lynnwood, FlowersGal, garyi, insomniaaa, Tim Tam, iPoop