I went through similar emotions before Remicade, I think it's normal. Once I started it, I got really used to it and even looked forward to it (especially after I started feeling so good on it). It will be ok. Oh, and I thought it would be the last thing for me before surgery. But now I am starting Humira. And there is hope that Orencia might be approved for us. So, in the meantime, think of how great Remicade is going to work for you and keep in mind there may be more options if you need to stop Remicade eventually, hopefully not.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil, Tylenol pm, Lyrica for Fibromyalgia started 1/17/08