Grrrr....well, the past two days have not been so good. I swear, it's like the ghost of ulcerative colitis is haunting us - hubby is wiped out again, has pain after eating, sleeps 10 hours, wakes up, eats, takes meds, goes right back to sleep again. He has once again become a permanent fixture on the sofa. :(
I have no idea what to attribute this to - he was doing so well, had more energy, feeling better, and now he's back to being so tired and feeling yucky - he had to skip his uncle's funeral yesterday, and we just canceled the plans we had for today as well.
All I can figure is it's either -
a) part of the healing process and adjustment to an altered digestive system
b) he felt so good he started adding foods he shouldn't have - or just too much too soon - prednisone still has him hungry all the time
c) lack of walking - the weather has been bad for the past few days, plus he felt yucky
d) tapering the prednisone - he's been on 20mg for a week after months of 35mg
I feel like such a whiner today - but I am SO SICK OF THIS! I want my husband back, I know he wants his life back! I know and expected healing to take time, but after such a great start, having a few days that are so much like 'the old days' is really, really frustrating.
Blah - I just needed to vent. I know no one understands like you guys - those of you who have been through this and the spouses/family members who love and care for a loved one. It just makes me feel so helpless and frustrated sometimes.
Thanks for reading my rant.