State of confusion

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jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 2/15/2008 5:35 PM (GMT -6)   
I just need to talk this out with someone. Today was a bad day for me. I was a work and it was like I was in a fog all day long. People would talk to me and It was like I was not even hearing them. The whole time, I realized that this was happening to me. I am sure it is UC related. Does anyone else experience times like this? I just feel so dumb lately. Is there anything we can do about this?
 
Thanks for listening
Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 2/15/2008 5:39 PM (GMT -6)   
Yes, I have been like this almost all the time since getting UC. I didn't know if it was related or not, but it seemed to start right when I got UC. I think it is almost the worst part about UC, because I feel like an idiot half the time. I am wondering if it's caused by the meds.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/15/2008 7:39 PM (GMT -6)   
I my gosh Janice, I've been experiencing the same thing the last few days, and along with it terrible joint pain. It's so awful when you have to keep your job up while feeling so poorly. Plus it's embarrassing to me because then I feel like people think I'm nuts while trying to explain it. I'm sorry this is happening, and all I can suggest is just try and sleep as much as you can until it disappears...at least that's what I do! Hope you feel better soon Janice.
Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/15/2008 7:49 PM (GMT -6)   
Happens to me all the time. It was really bad when I was pred. Lately I have been so tired I can hardly get off the sofa...sorry to complain in your post!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 717
   Posted 2/15/2008 8:22 PM (GMT -6)   
As I see it hasn't been posted yet, let me just say the obligatory:
 
"It's just stress"
 
(Then I won't bother to define stress, leaving what I just said a paradox, wrapped in a riddle with an enigma and things such as that)
 
Ok, now that I'm done playing devil's advocate, I hear you 100%.  I have good and bad days, myself, but I have found even my ability to spell which I used to take pride in has gone to pieces among many examples.
 
I never thought about if it could be the medication.  I always blamed it on whatever disease process.  At any rate, all I take is Colazal.
 
Try to get proper sleep, yes, and follow your GIs instructions if they're a good doc and if not find another one.  And keep hope alive, things can get better.
 
Wishing you the best
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


robray
Regular Member


Date Joined Mar 2005
Total Posts : 130
   Posted 2/16/2008 3:01 AM (GMT -6)   
I feel the same way. I am having a very hard time with it. Can't seem to concentrate long enough to get anything done at work. Pretty common when I am flaring and just had a major bathroom battle. I was feeling really down on myself because I am not really flaring right now, but then I realised it is probably the drugs. Sucks! Without the drugs we get sick. With the drugs we can't think straight.

Pan UC 17 years, dipentum, entocort

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/16/2008 3:21 AM (GMT -6)   
Besides having frequency issues and this brain fog thing I don't know how people going through this can even keep their jobs let alone get new ones...it is so not easy having this DD and trying to work let alone live normally/functionally.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/16/2008 8:27 AM (GMT -6)   
Hey, you just described the last 10 years of my life! :) Supposedly I have fibro too which can cause a mental fog and I say some pretty strange things because it seems I have a short from my brain to my mouth but there are times that people will say something to me and I can't comprehend what they're saying. But I honestly can't remember if I had the mental fog before the fibro thing or early in my diagnosis because it was so long ago. I'm sure I did, just not as severe as now. One thing you can try to take is gingko biloba - this can help sharpen the mental status. I took it for a while and it does help but I'm not good at keeping up on the supplements only because I try to take as little pills as I can - I HATE taking pills! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 2/16/2008 11:37 AM (GMT -6)   
Thanks to everyone for there replies. I am just glad I am not in this alone. All of my friends just look at me like I am an idiot. One even accused me of not listening to her and saying that I don't care about anyone but myself. I tried to explain about the meds and UC, but she didn't understand and just says i blame everything on this disease. This really hurt me, because if it is one thing i do is care about my friends. It is just they don't know what we go through.

Red, I think i might give the ginko i try. How long is it till you see results? Is there any side effects that i should be concerned with?
Thanks
Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/16/2008 11:45 AM (GMT -6)   
I didn't have any side effects and it took about 2 weeks before I noticed a difference in my mental status. As for your friend saying those things, it doesn't seem like she's a friend at all because SHE is not listening to you. I personally stay away from people like that - but I know it hurts nonetheless.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/16/2008 11:49 AM (GMT -6)   
I was always in a fog when I was in a bad flare. What with loss of blood, lack of sleep and steroids, some days it scared me just to drive. I'm better now, but I seem to have problems remembering names.

Good, one more thing to worry about. Is Alzheimer's autoimmune?


Just kidding.......I hope.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 2/16/2008 12:13 PM (GMT -6)   
I feel like this often. I also have been d'xd with fibromyalgia and blame it on that. I find myself talking about something with a friend and in the middle of the convarsation I get confused about what I was talking about and they stare at me waiting for me to finish my thought, it is so embarrassing! I have locked myself out of the house twice in the past month!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica for Fibromyalgia started 1/17/08


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 717
   Posted 2/16/2008 12:59 PM (GMT -6)   
This brain fog can lead to being misunderstood for sure. People can read into it all kinds of WRONG conclusions; laziness, disinterest, boredom, incompetence, yes even selfishness.

Things like that about the disease make me feel like it is truly an ordeal. Even when I have a bad day at work and try to talk to people about it, I get the feeling everyone skips over what I'm saying and just thinks "Here he goes again, *****ing about the disease."

Sometimes I really feel that the best thing in the world is just to be understood. I am sometimes around people who try to judge the truth or validity of what you say based on your body language, emotional expression, behavior, etc. And I feel like saying, "Look, Sherlock Holmes, don't read into my overall presentation, just LISTEN TO MY WORDS, I have a traumatic process going on in my body, and yes I may have stuttered or came across as "low energy," but its not a comment on my mental status or attitude, or a prediction of the truth of my statement, I am just in poor health!

Don't forget; it is much easier for people, even our friends and family, to place the blame for our conditions directly on us. It is easier to say "that person can't manage stress," than it is to admit there are literally hundreds and thousands of mysterious frightening, debilitating medical conditions that may strike anyone and anytime. And to admit that medicine and science sometimes don't know what's wrong either. And to admit that sometimes sick people still have to get up in the morning and go to work...

In other words, I think people that do not understand or care to, are simply displaying a side of their human nature. Maybe only the sick can really know the differences between these two worlds or health and sickness. But no doubt, most of the hardship one has to carry around on one's own, with the exception of boards like this.

Bottom line is I've decided I don't do enough praying.


Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 2/16/2008 3:13 PM (GMT -6)   
I always get like this Janice.So you are not on your own at all.Sometimes it is the ones close to us that are the most unsensitive to us.Yesterday i nearly had an accident whilst driving because of the brain fog/fatigue.I lalso ost my car keys for about 2 hours and my wife is always saying that i'm never listening to people properly.i guess we all have these days, people that don't understand(or want to understand) will always be ignorant so let them go.Let them think what they want because that is their problem and not yours.
    You are too nice of a person to let someone upset uyou like that.
                            lots of hugs heading your way
                                    Marty


                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]

Post Edited (fatboyslim) : 2/16/2008 1:23:39 PM (GMT-7)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5187
   Posted 2/16/2008 8:43 PM (GMT -6)   
Apart from insensitivity of relatives, friends, and/or bosses & co-workers, there is the fact that modern life is complicated. There are so many chores one has to do. A neighbor of mine says that even her 85-yr-old father, a widower living in suburban house, is making himself lists of tasks which need to be done so as not to overlook something essential. This afternoon while I was on my way home from grocery shopping, the thought occurred to me that I should run into the public library branch to see if they have an income tax form I need. But no! I got distracted, went home, unpacked the groceries, & then realized that I still hadn't picked up the tax forms & the library would be closing in 10 minutes! (Sigh.) Well, another errand that will just have to wait a few more days ... / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

gmasusie
Regular Member


Date Joined Nov 2007
Total Posts : 30
   Posted 2/17/2008 9:48 PM (GMT -6)   
Iam so glad Iam not the only one!!! I was going to post the same question! I have ben on Asacol for 8 months and the mind fog seems so bad some days! Tho it could be that Iam 52,but some days I scare myself the things I forget. The stupid mistakes I make at work. Somedays its really bad...I just have to say I had a giant brain fart. LOL  To  excuse myself for being so out of it.

BTC
Regular Member


Date Joined Dec 2007
Total Posts : 96
   Posted 2/17/2008 10:47 PM (GMT -6)   
This is making me even madder at my doc for not giving me Azul - I NEVER had this tiredness or brain fog with it and I was taking alot more Pred than now. I know I was younger but I really believe Azul is better PLUS he won't give me the rectal meds I know I need. I'm having regular BM's but some tissue and light blood and rectal pain. And like doors12 says - I really want to find out what's causing this. I truly believe there's more to all of it than just and body attacking itself. That's my part of my prayers every day, to have a healing and learn more about this horrid thing to help others. I spend time every day doing research into inflamation, PH balance and all the relationships to UC and other autoimmune diseases. I'm so glad we have this forum to vent and share.

mythreesons
Regular Member


Date Joined Feb 2008
Total Posts : 21
   Posted 2/18/2008 1:42 AM (GMT -6)   
Hi there, I've been the same way. the other day I went to the market on the way home from work and could not remember what I went in for when I got there. I had to call my wife to remind me. I'm going to write things down from now on. I'll start a conversation and lose track or where i was going or ramble on when leaving a voice mail at work because i'm not remembering the point I wanted to make. In general I feel dumb. I've been told that short term memory can really get messed up with this. I am new to this UC monster and I can't belive how many different facets of your life it changes. I'm on 40 mg prednisone, 4 400 mg Asacol 3 times a day and a 4g/60 ml mesalamine suspension enema.
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