This brain fog can lead to being misunderstood for sure. People can read into it all kinds of WRONG conclusions; laziness, disinterest, boredom, incompetence, yes even selfishness.
Things like that about
the disease make me feel like it is truly an ordeal. Even when I have a bad day at work and try to talk to people about
it, I get the feeling everyone skips over what I'm saying and just thinks "Here he goes again, *****ing about
Sometimes I really feel that the best thing in the world is just to be understood. I am sometimes around people who try to judge the truth or validity of what you say based on your body language, emotional expression, behavior, etc. And I feel like saying, "Look, Sherlock Holmes, don't read into my overall presentation, just LISTEN TO MY WORDS, I have a traumatic process going on in my body, and yes I may have stuttered or came across as "low energy," but its not a comment on my mental status or attitude, or a prediction of the truth of my statement, I am just in poor health!
Don't forget; it is much easier for people, even our friends and family, to place the blame for our conditions directly on us. It is easier to say "that person can't manage stress," than it is to admit there are literally hundreds and thousands of mysterious frightening, debilitating medical conditions that may strike anyone and anytime. And to admit that medicine and science sometimes don't know what's wrong either. And to admit that sometimes sick people still have to get up in the morning and go to work...
In other words, I think people that do not understand or care to, are simply displaying a side of their human nature. Maybe only the sick can really know the differences between these two worlds or health and sickness. But no doubt, most of the hardship one has to carry around on one's own, with the exception of boards like this.
Bottom line is I've decided I don't do enough praying.
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses.