Hubby has not been able to get over that hump of constant fatigue too. He played 9 holes of golf yesterday and came home and collapsed and went to bed and stayed there for the rest of the day/night. He has a handicapped pass for his golf cart which he uses on the course on the last few holes when he gets too tired to walk the rest of the course. It's great he was able to get that so he can at least play some golf otherwise he wouldn't be able to do that.
Rested all day today - Dr appt at 5 pm - had a light bite to eat and then a movie. Those 4 hrs tonight was enjoyable but he had to rest all day so we could go out.
It is so weird that with all the sleep and rest he gets he never truly feels rested like alot of you say as well.
We took a cruise last month but he has to pace himself and get naps in between. I find when there is a lot available to do and more people around it kind of motivates him to push a little harder and enjoy himself a little more. I think it gets his mind off things and he somehow finds a way to have some fun. If he is just sitting there and not much going on - he could doze right there in the chair.
I think the UC in of itself causes the fatigue as well as all the different meds???
The fact that he isn't in a constant state of urgency and frequency at least allows us to have some kind of a social life even though it is limiting and we have to plan accordingly. Our credit card bills are lower - not so many charges for eating out!!!
How nice when people can just go and do what they want without having to evaluate and plan ahead and be able to be spontaneous. It was just a few years ago that was the way it always was for us and many of you as well.
We sure have a different appreciation of things now and take nothing for granted now.