Posted 2/16/2008 6:21 AM (GMT -6)
Hi Mark and welcome!
I am currently on prednisone for a flare that I just had. I've been on and off the drug ever since I was diagnosed.
I for one don't seem to have any problems with it. I do experience many of the things others have talked about but, it helps me get my flare under control for the time needed. The other things are nothing to me compared to being in a flare and the pain that comes with that. I am also very active...I exercise a lot and so I think this helps me make it through the bad things about this drug.
I also do think that it works to help you get back in control during a flare. It does for me anyway. I realize that everyone is different however this is just my experience.
I am also on Remicade, however, I just had a pretty bad flare and I really don't think it's working. I had a scope done two weeks ago and the doctor thinks we may need to increase my dosage. I will find out soon how that goes. I had to have some blood work done first and then she'll determine if it's still working for me. I do believe that it worked for a little bit when I first started it but now I really don't think it's working. So, technically it only worked for me maybe a few months.
Best of luck to you and all of the decisions you'll need to make.
This board is wonderful and has helped me so much. I hope you find it helpful too!
UC diagnosed in 1985...22 years.


Remicade


50 mg 6mp, Rowasa and Cortenemas as needed.
Probiotics and Aloe Vera Gel, Chlorella and digestive enzymes.

Posted 2/16/2008 8:43 AM (GMT -6)
Thank you all for your wonderful insight. It's very encouraging to have discovered this community and also helpful emotionally to see you all helping one another. I'm touched.

As I mentioned earlier, I really feel as this is a pivotal decision for me. Get on these drugs – the real serious ones – and I may be on them for a long time and have trouble coming off of them. That's why I'm really wondering about alternative approaches. I think I owe it to my body to try something different before becoming even more dependent on drugs.

I do understand that the everyone's experience is different. But after being on 6MP for a little while, seeing no improvement AND having it affect my liver enzymes, I'm worried that others may do the same. Or worse. Asacol + Courtenema aren't solving the problem either. And, in the last two weeks, things seem to be getting worse. For example, I have pain now when before, I never did. I have more emergency bathroom runs that ever and I'm much more gaseous. (A trifecta!)

It's been 1.5 years since being diagnosed and I don't see the light at the end of the tunnel. Very frustrating!

Forum Information

Currently it is Friday, October 19, 2018 10:55 PM (GMT -6)
There are a total of 3,013,353 posts in 330,022 threads.
View Active Topics

Who's Online

This forum has 161934 registered members. Please welcome our newest member, sharoninps.
224 Guest(s), 5 Registered Member(s) are currently online.  Details
HeartsinPain, Donjr , sebreg , mspt98 , InTheShop