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kaylee'smom
New Member


Date Joined Feb 2008
Total Posts : 1
   Posted 2/16/2008 11:45 AM (GMT -6)   
I am a new member to this site and let me tell you I have learned so much from everyone. I am researching ulcerative colitis for my father who was recently diagnosed. Starting about 2 weeks ago he began experiencing severe cramping and bleeding. After finally convincing my father that this was not just going to go away he went to see a family doctor who in turn ordered him to have a colonoscopy. During the procedure they found several severe ulcers, inflammation and irritation from the rectum up through most of the colon. They also took several pieces of the ulcers for biopsy. He was sent home on a steroid that needs to be taken for a week. That's it. He is scheduled to return for an appointment with the same doctor in a week to go over the biopsy results.

As of today, he is still in severe pain. He is not able to eat much of anything, he can't sleep and is in the restroom at least every half hour. I know that he needs to see a specialist but since this is the weekend I'm wondering if you could help me work through some of my questions until Monday.

My questions to you are:

Is there anything that he can take on top of the steroids that may help ease some of the pain?

Are there any specific foods that seem to help?

Is this normal for the condition? I do not have a lot of faith in the doctor he is seeing and have a hard time believing they are doing everything needed to keep this under control.

Thank you for any help! I know that my main concern will be getting him into a specialist. It is like pulling teeth to drag my father where he needs to be. He is a rancher living in the middle of nowhere and we will need to travel at least 3 hours to see a specialist.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/16/2008 12:13 PM (GMT -6)   
Welcome to HealingWell, kanlee'smom. I'm sorry your father is going through this. I was well into adulthood myself when diagnosed, and yes, we can be stubborn. First of all, whatever he does, he should not take any NSAID's for pain relief. That includes aspirin, ibuprofen, naproxen, alka-selzer, etc. Tylenol is okay and if he happens to have something with tylenol and codeine he could take that in moderation. NSAID's cause GI bleeding, and we already have that problem.

He may want something soothing for his bottom, as it will probably get sore. Stock up on wet wipes (adult ones like Cottonelle) and something like A&D ointment, Desitin cream, etc. That will form a barrier and help prevent irritation.

Sometimes a warm heating pad will help the abdominal pain. If it becomes really severe and sharp, he will need to go to the emergency room, as occasionally the colon can rupture during a bad flare, and that's a life-threatening emergency.

How long ago did he start the steroids? Sometimes they take a few days to kick in. They can be a life saver during a bad flare, but be sure he and his doctor understand they are not for long-term use. In addition to some really bad side effects, they will eventually become ineffective. So it's important that he get on a regimen of meds specific for IBD. Usually it's best to take an oral 5-ASA such as Asacol or Balsalazide as well as Rowasa, which is a mesalamine enema. That way the disease is treated from both ends.

Proper treatment should return him to his full daily activities. It could take a while, but we have to be a little patient with the treatments, it can take a while to find the right combination for us. Whatever he loves to do, he should be able to do if he's taking good care of his colon. This may be an incentive for him to accept treatment.

Good luck, and keep us posted on how you all are doing.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 185
   Posted 2/16/2008 12:50 PM (GMT -6)   
Also a good thing to get started on immediately if he isn't already - probiotics. 
 
sore_guts
 
left-sided UC
400 mg Asacol 4 pills 3 times/day lialda 1 pill 3 times/day
making some very light attempts using Rowasa enemas just cant seem to do these
iron supplements 3 times 1/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 

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